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  1. #1
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    Default Still coming to terms with having to wait

    My DH (!) and I had been TTC from when we got together and faced unexplained infertility. I went through the monthly heartbreak until my PCOS kicked up a notch and my cycle ground to a halt for over a year. I was diagnosed with Multiple Sclerosis when I was 19, and have been symptomatic from about 9 years old. I started off on a disease modifying drug (aka DMD) and stopped within a year due to side effects - I was largely med free for about 10 years, just taking steroids as needed for flares and managing by ignoring it basically. A couple years ago I had a really big flare, I lost feeling over my whole body and struggled to walk unaided for over a month. I started having bladder issues and trouble swallowing if I was tired. It took a very long time for me to show any improvement and throughout this I was still working, and still suffering recurring flares each one worse than the next. A year ago I started having to cut back on my work hours, now I’m unable to work. I’m very lucky that DH has a great job and earns enough to support us and our animals. One of the hardest side effects of this flare, my sex drive disappeared. I can’t FEEL, the sensation is comparable to wearing thick wool gloves. I feel terrible, obviously DH isn’t suffering the loss of sensation and sex drive that I am and it has to be hard on him but he never complains. I got some hard truths from one of the GPs I see, and it’s led to us putting a stop to our TTC efforts for minimum 2.5 years and that really hurts. The GP pointed out to me that with my current issues, I would not be a good mother. I would not be able to deal with the lack of sleep and stress, our house is not suitable for raising a young child in because I’ve no energy to properly clean the house and we have 4 cats, 2 dogs and a dingo and often look after my mums 2 dogs (loooooots of animal hair). It wouldn’t be fair to DH as he would be having to do a lot of the night time stuff and he works long hours and it’s hard work. GP said it would be a lot better to get a handle on my own health, then look into adding to our family. As someone who imagined having a brood off kids by the age of 30, I’ve had to readjust my life views because if we ever do manage to have children we won’t be starting until I’m in my mid 30s, so it’s highly likely we will only have 1 or 2. I don’t really know what the point of this post is other than to vent a little. I’m sad, I’m grieving the life I thought I would have and I’m angry at the limitations my disease has put on the life I do have

  2. #2
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    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts
    Quote Originally Posted by CluckyChook View Post
    My DH (!) and I had been TTC from when we got together and faced unexplained infertility. I went through the monthly heartbreak until my PCOS kicked up a notch and my cycle ground to a halt for over a year. I was diagnosed with Multiple Sclerosis when I was 19, and have been symptomatic from about 9 years old. I started off on a disease modifying drug (aka DMD) and stopped within a year due to side effects - I was largely med free for about 10 years, just taking steroids as needed for flares and managing by ignoring it basically. A couple years ago I had a really big flare, I lost feeling over my whole body and struggled to walk unaided for over a month. I started having bladder issues and trouble swallowing if I was tired. It took a very long time for me to show any improvement and throughout this I was still working, and still suffering recurring flares each one worse than the next. A year ago I started having to cut back on my work hours, now I’m unable to work. I’m very lucky that DH has a great job and earns enough to support us and our animals. One of the hardest side effects of this flare, my sex drive disappeared. I can’t FEEL, the sensation is comparable to wearing thick wool gloves. I feel terrible, obviously DH isn’t suffering the loss of sensation and sex drive that I am and it has to be hard on him but he never complains. I got some hard truths from one of the GPs I see, and it’s led to us putting a stop to our TTC efforts for minimum 2.5 years and that really hurts. The GP pointed out to me that with my current issues, I would not be a good mother. I would not be able to deal with the lack of sleep and stress, our house is not suitable for raising a young child in because I’ve no energy to properly clean the house and we have 4 cats, 2 dogs and a dingo and often look after my mums 2 dogs (loooooots of animal hair). It wouldn’t be fair to DH as he would be having to do a lot of the night time stuff and he works long hours and it’s hard work. GP said it would be a lot better to get a handle on my own health, then look into adding to our family. As someone who imagined having a brood off kids by the age of 30, I’ve had to readjust my life views because if we ever do manage to have children we won’t be starting until I’m in my mid 30s, so it’s highly likely we will only have 1 or 2. I don’t really know what the point of this post is other than to vent a little. I’m sad, I’m grieving the life I thought I would have and I’m angry at the limitations my disease has put on the life I do have
    I couldn't read and run as someone close to me has MS.

    I highly recommend getting as much support and advice as you can.

    It's a b!itch of a disease. You do need to listen to your doctor and get on top of your treatments,.if not already, see a specialist MS neurologist.

    There arealso great online support groups and having that virtual village (alongside her family and friends) helps my friend stay strong through it all. Wishing you the best of everything on your journey.

  3. The Following User Says Thank You to Stretched For This Useful Post:

    CluckyChook (24-11-2019)

  4. #3
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    Quote Originally Posted by Stretched View Post
    I couldn't read and run as someone close to me has MS.

    I highly recommend getting as much support and advice as you can.

    It's a b!itch of a disease. You do need to listen to your doctor and get on top of your treatments,.if not already, see a specialist MS neurologist.

    There arealso great online support groups and having that virtual village (alongside her family and friends) helps my friend stay strong through it all. Wishing you the best of everything on your journey.
    Thanks. I have a neurologist but I live remote so it takes a while between referral and appointment. My next one is in January and I’ve decided I’m going to request Mavenclad. This disease has slowly taken so much from me and it sucks :/


 

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