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  1. #1
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    Default Breast cancer gene

    I'm a regular hubber seeking support anonymously.

    We've just discovered that my kid's paternal grandmother has the BRCA1 gene (my mother in law). This is the gene that increases lifetime breast cancer risk to between 70-90% of all those that carry it. Made famous when Angelina Jolie underwent a preventative mastectomy because she carries the gene. Anyway, chances are 50/50 my husband has inherited the gene and if he has everyone of our 4 children (3 girls) has a 50/50 chance of having it. Hubby will be tested ASAP.

    I'm somewhat freaking out and would love to hear from others who have lived with this.

  2. #2
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    My family has a history of breast cancer - all the women on my mother's side have had it, although not the BRCA1 gene. But because there is such a high occurrence in my family they treat it like having the BRCA1 gene (they think it's a genetic link but with a gene that has not yet been determined).

    I can imagine it's a very scary prospect that your daughters may have this gene, however knowledge is power. If the gene has been passed on it will mean that they will have access to early breast screening. In my case I will start getting yearly MRI scans now that I am 30 (I think usually women don't start until around 40-45 and), and they are more sensitive compared to mammograms.

    Depending how old your daughters are, I imagine technology and detection and prevention options will be much more advanced when they are in the 'at risk' age. In just 10 years it has improved so much.

    Hoping for good news for you x

  3. #3
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    I have had genetic testing done after a history of breast, ovarian and bowel cancer in my mum’s family.
    My sister and I was both tested. She has inherited the BRCA1 gene. I have not.
    It was a traumatic time being tested and then dealing with the aftermath.
    I felt guilt that my sister has inherited this horrific gene when I have not.
    I watched her research mastectomy and hysterectomy, I watched her contemplate whether she should have children or not (our mother died when We we’re 14&16)
    Unfortunately until your husband is tested there is nothing you can do.
    If he has not inherited it then your daughters won’t have.
    If he has then yes, each of your girls have a 50/50 chance of inheriting the gene.
    It is not a death sentence.
    Just like not inheriting the gene doesn’t keep you safe from breast and ovarian cancers.
    If you can, try and consider it as being aware and prepared.
    Regular screening. Tests. Once they’re old enough, appointments with specialists as recommended and a health care plan.
    Hoping for good news for you

  4. #4
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    Quote Originally Posted by FayBelle View Post
    My family has a history of breast cancer - all the women on my mother's side have had it, although not the BRCA1 gene. But because there is such a high occurrence in my family they treat it like having the BRCA1 gene (they think it's a genetic link but with a gene that has not yet been determined).

    I can imagine it's a very scary prospect that your daughters may have this gene, however knowledge is power. If the gene has been passed on it will mean that they will have access to early breast screening. In my case I will start getting yearly MRI scans now that I am 30 (I think usually women don't start until around 40-45 and), and they are more sensitive compared to mammograms.

    Depending how old your daughters are, I imagine technology and detection and prevention options will be much more advanced when they are in the 'at risk' age. In just 10 years it has improved so much.

    Hoping for good news for you x
    Thanks so much for your reply. I'm sorry to hear about your family's history. My MIL had breast cancer in her early 30's. It must be so difficult to live with, but there are two ways to look at it of course and it is a positive that as you say, knowledge is power.
    It is definitely encouraging to think about technology advances with regards to my daughters. Things have come so far in the last few decades I can imagine hopefully it will be easy for them to detect by then. I have read that QLD is progressive in this field and working on a blood test to detect certain cancers.

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    FayBelle  (07-12-2018)

  6. #5
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    Quote Originally Posted by Mod-LIKE A BOSS View Post
    I have had genetic testing done after a history of breast, ovarian and bowel cancer in my mum’s family.
    My sister and I was both tested. She has inherited the BRCA1 gene. I have not.
    It was a traumatic time being tested and then dealing with the aftermath.
    I felt guilt that my sister has inherited this horrific gene when I have not.
    I watched her research mastectomy and hysterectomy, I watched her contemplate whether she should have children or not (our mother died when We we’re 14&16)
    Unfortunately until your husband is tested there is nothing you can do.
    If he has not inherited it then your daughters won’t have.
    If he has then yes, each of your girls have a 50/50 chance of inheriting the gene.
    It is not a death sentence.
    Just like not inheriting the gene doesn’t keep you safe from breast and ovarian cancers.
    If you can, try and consider it as being aware and prepared.
    Regular screening. Tests. Once they’re old enough, appointments with specialists as recommended and a health care plan.
    Hoping for good news for you
    I'm so sorry to hear about your mum. I hadn't even thought about how challenging that could be for siblings to manage, that simple fact that one will be positive and another will not. My husband has 6 siblings. It is very hard for him to be going through this, thinking that half his siblings (including possibly himself) will be testing positive to this gene. And of course my husband is feeling horrific guilt that he may have passed this faulty gene on to his daughters.
    I am dreading the time between him being tested and receiving the results. At the moment I am kind of burying my head in the sand. But if he's positive, it will be devastating to work through. I can't shake the thought of telling my daughters: you may have this gene, and if you do, you will almost certainly develop cancer at some time in your life. It's just a matter of when. How difficult to carry that load as a young woman.


 

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