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  1. #1
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    Default Low AMH and Endometriosis over 35.

    Hello everyone,

    Just a quick background for me....
    I have had endometriosis since 22 years old and I'm now 37 and about to embark on the IVF journey.
    Whilst this is all exciting for me and I'm trying to stay positive, I also have days of worry. See I was told 2 months ago that my AMH is half of what it should be for my age (5.1) And today I had a day 12 ultrasound with my IVF specialist as I'm on Letrezole 5mg for days 3-7 of my cycle. Unfortunately the scan showed no signs that I had ovulated (going off my temps on my app it said ovulation had occured on day 9) so I asked if he could see any indication that ovulation might be immanent but again he said no and there is no lead follicle either. As you ladies could imagine this has also dampened my spirits reg our first IVF cycle due to start end of December
    I was wondering if there is anyone out there going through similar troubles who I can connect with or just seeing some sucsess stories from ppl who have suffered through similar would be lovely right now.
    I'll just add that my IVF specialist thinks I have endo on my bladder and possibly on my right ovary as there was a shadow on the ultrasound which he says is potentially endo. I also get very bad pains after sex but only around the day's I'm close to ovulating. It feels like immense pressure in the general ovary, bladder, uterus, bowl area and gets so bad that I can't stand my pants around my waist and find the pain is worsened when I sit down......does anyone else get this too.
    I think I just want to know that I'm definitely not alone with all these symptoms and that one day I may get my miracle bub.
    Sorry for such a long post, I have a lot on my mind
    Have a lovely weekend ladies and good luck to all of you in 2ww or starting IVF this month xx

  2. The Following User Says Thank You to Linz12 For This Useful Post:

    Loz3119 (17-11-2018)

  3. #2
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    Default Low AMH and Endometriosis over 35.

    Quote Originally Posted by Linz12 View Post
    Hello everyone,

    Just a quick background for me....
    I have had endometriosis since 22 years old and I'm now 37 and about to embark on the IVF journey.
    Whilst this is all exciting for me and I'm trying to stay positive, I also have days of worry. See I was told 2 months ago that my AMH is half of what it should be for my age (5.1) And today I had a day 12 ultrasound with my IVF specialist as I'm on Letrezole 5mg for days 3-7 of my cycle. Unfortunately the scan showed no signs that I had ovulated (going off my temps on my app it said ovulation had occured on day 9) so I asked if he could see any indication that ovulation might be immanent but again he said no and there is no lead follicle either. As you ladies could imagine this has also dampened my spirits reg our first IVF cycle due to start end of December
    I was wondering if there is anyone out there going through similar troubles who I can connect with or just seeing some sucsess stories from ppl who have suffered through similar would be lovely right now.
    I'll just add that my IVF specialist thinks I have endo on my bladder and possibly on my right ovary as there was a shadow on the ultrasound which he says is potentially endo. I also get very bad pains after sex but only around the day's I'm close to ovulating. It feels like immense pressure in the general ovary, bladder, uterus, bowl area and gets so bad that I can't stand my pants around my waist and find the pain is worsened when I sit down......does anyone else get this too.
    I think I just want to know that I'm definitely not alone with all these symptoms and that one day I may get my miracle bub.
    Sorry for such a long post, I have a lot on my mind
    Have a lovely weekend ladies and good luck to all of you in 2ww or starting IVF this month xx
    Hi Linz12

    Just wanted to say hi and that I too have endometriosis, I’m 36. I’d also been told my AMH was on the lower side for my age group.

    I didn’t realise I had endo until recently. I’d been trying to have a baby since I was 33 - we did IVF (before I knew I had endo), and although we got good embryos - they didn’t implant.

    Anyway I stumbled across my now FS who suspected endo, and I had a laparoscopy earlier this year, in which he found endo and got rid of it. We then tried naturally for 3 months, and had one frozen embryo waiting for us so decided to go straight into an FET cycle. Due to the endo my FS put me on an ultra long down regulation (Zolodex injections x 2, this was to suppress my ovaries and calm down the endo and get my uterus ready for the embryo). I’m now just over 6 weeks pregnant with that embryo!

    Sorry I can’t be much help with the medication side of things, but I’ve heard that it’s normal for a little bit of trial and error for your FS to know what your body responds well too (which I’ve experienced).

    Good luck and I wish you all the very best

    Edit: I forgot to mention that I also had pain around ovulation (like a really tender feeling) and sex (at ovulation time).
    Last edited by Loz3119; 17-11-2018 at 15:48.

  4. #3
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    Hi Loz3119

    Thank you so much for sharing your positive story and massive congratulations to you and your partner.
    Because I've not done a cycle yet I'm not too sure what down reg means apart from it's a different protocol.
    My specialist showed my protocol and it was called an antagonist and I'll be using Gonal F 300mg, Cetrotide and Ovidrel.
    There was something about a vaginal pessary as well I think but not sure when I start those due to me wanting a freeze all cycle so we can do PGS testing on the embryos first.
    I can't believe how much it all costs financially and mentally. I started out thinking really positive and that I should try to enjoy the journey as much as possible but lately I can feel the doubt/concerns creeping in especially after yesterday's results and having no lead follicle even whilst on Letrezole
    How did you find it financially if you don't mind me asking. Myself and my partner don't have a great income and we have a mortgage etc so having to use my super then his super next time if needed 🤞🤞🤞
    I'm wondering what the bulk billed places are like ??? As this might be where we are forced to go say if this takes more than 3-4 tries..... man I'm so over endometriosis. Had 2 lap surgeries in the past and it just comes back
    Wish it would leave me alone so I could at least enjoy trying naturally again.
    Sorry for waffling on a bit, but really appreciated your reply. It gives me hope

  5. #4
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    Hey

    Thank you! yes a down reg is just another protocol which I really believe helped! And good idea about the PGS testing, we did that too.
    You are so right - it’s so hard both mentally and financially.
    I’ll PM you!
    X

  6. #5
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    Quote Originally Posted by Linz12 View Post
    Hi Loz3119

    Thank you so much for sharing your positive story and massive congratulations to you and your partner.
    Because I've not done a cycle yet I'm not too sure what down reg means apart from it's a different protocol.
    My specialist showed my protocol and it was called an antagonist and I'll be using Gonal F 300mg, Cetrotide and Ovidrel.
    There was something about a vaginal pessary as well I think but not sure when I start those due to me wanting a freeze all cycle so we can do PGS testing on the embryos first.
    I can't believe how much it all costs financially and mentally. I started out thinking really positive and that I should try to enjoy the journey as much as possible but lately I can feel the doubt/concerns creeping in especially after yesterday's results and having no lead follicle even whilst on Letrezole
    How did you find it financially if you don't mind me asking. Myself and my partner don't have a great income and we have a mortgage etc so having to use my super then his super next time if needed 🤞🤞🤞
    I'm wondering what the bulk billed places are like ??? As this might be where we are forced to go say if this takes more than 3-4 tries..... man I'm so over endometriosis. Had 2 lap surgeries in the past and it just comes back
    Wish it would leave me alone so I could at least enjoy trying naturally again.
    Sorry for waffling on a bit, but really appreciated your reply. It gives me hope
    Oh it won’t let me PM you!

    Just wanted to say I’ve also heard positive feedback on the bulk billed clinics? I think there’s one called primary IVF? If that’s one, there’s a forum/discussion on here about it.

  7. #6
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    I'm sorry to hear you're facing this, let me first.
    Then, I've just shared this piece of info on another thread. The clinic we've been successfully with has recently introduced the mitochondrial donation method. Am pasting here:
    ''## Clinic fferspatients who are above 40 and for those, who suffer from low levelsof AMH, an innovative program that makes it possible to get pregnantwith their own eggs. Mitochondriareplacement therapy is aninnovation and a breakthrough in the field of ART and the fertilitytreatment. This program gives women, who underwent numerousunsuccessful IVF cycles, aged 40+, patients with low mitochondrialfunctional activity, an excellent chance to give birth to a child whoshares a genetic relationship with her and her partner. Mitochondrionis one of the most important components of any living cell, includingthe egg. In simple words, mitochondrion is the cell’s energystation. Essentially, its work consists in supplying the cell withvital energy for its normal functioning. Women that went throughmultiple unsuccessful IVF attempts, as well as of older reproductiveage, need to restore oocyte mitochondria in order to successfullybecome pregnant. A woman can become pregnant only if there arefunctionally active mitochondria in her oocytes. Donation ofmitochondria will allow thousands of hopeless women to give birth toa healthy child through IVF using mitochondrial donation. To carryout such a procedure, an egg donor with a high functional activity ofmitochondria, a patient, and sperm for in vitro fertilization arerequired. Healthy functionally active mitochondria are taken from adonor’s oocyte and integrated with the patient’s cells. Next,fertilization with sperm and transfer of a healthy embryo into thepatient’s uterus is performed. Mitochondria donation is a uniqueassistive reproductive technology, which is basically theimplantation of a healthy and functionally active donor mitochondriainto the cells of an infertile patient, that provides the patient’scell with the necessary energy and contributes to successfulpregnancy..''
    In other words, low AMH levels is nothing unless your eggs are genetically sound. And if doc investigate they just need some ''extra energy'' & nutrients - then you could give this method a try?..Never meant to confuse you, just suppose it's worthy to exhaust all the possible options before moving onto donor egg.
    Good luck on your way


 

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