+ Reply to Thread
Results 1 to 10 of 10
  1. #1
    Join Date
    Apr 2018
    Posts
    44
    Thanks
    55
    Thanked
    21
    Reviews
    0

    Default 5th miscarriage- where to now?

    Hi everyone
    I have been reading Bubhub material for a few years now but this is my first time posting.

    I am 37 and DH is 33. We just found out at a scan today (9 weeks) that we are having another miscarriage. This one is particularly tough as we had seen the heartbeat twice at 6w2d and 7w4d.

    Our history is 6 pregnancies and of those one has resulted in our son who will be 2 in October.
    4 missed miscarriages and 1 natural miscarriage. They have all stopped growing between 6 and 8 weeks. I have had 3 D&Cs and had genetic material tested once which came back chromosomally normal. I will likely have another d&c next week in the interests of testing.

    I had a hysteroscopy 3 months ago and there was no evidence of scar tissue, fibroids or anything so i don't feel too concerned with another d&c.

    DH and i have had karotype testing and all is normal. My AMH is 19. FSH, thyroid function are normal.

    For this most recent pregnancy i have been taking low dose aspirin and 300mg / day progesterone pessaries. Also 5mg folic acid and extra iodine.
    I have also been doing acupuncture since May.

    I take co-enzyme q10 and melatonin for egg health and am generally healthy.

    I am based in NZ as of the last 6 months but prior to that was in sydney's for many years. Our only other real option from the FS here is IVF with PGS.
    He seems to think its possible i have a much higher number of abnormal eggs than would be "normal " for my age. I don't know whether to go straight to this or try again on our own. The process is exhausting emotionally and physically especially when it feels like miscarriage is inevitable.

    What else can I do?? They don't do NKC testing here but it is something I could look at doing on a trip back to Sydney as we go back a couple of times a year.

    We are lucky enough to fall pregnant as soon as we try but it doesn't feel so lucky when more often than not they end in complete heartbreak.

    We are beyond devastated and at the moment i am in shock that this is happening again. I think now its finally dawned on me that we might not get there.
    I am grateful beyond measure for my beautiful boy but I still absolutely yearn for a sibling for him. Life is so hard, i just want to hide from just about everyone and everything. It all comes back to this.

    Any suggestions or ideas of what we could try or look into would be amazing! But otherwise it was good to get all this off my chest.

  2. #2
    Join Date
    May 2018
    Posts
    89
    Thanks
    72
    Thanked
    39
    Reviews
    0
    Firstly a big hug to you at this extremely challenging time!

    Now for taking low dose aspirin and increased folic acid supplement, do you have a tested blood clotting condition or is this for a MTHFR condition. If MTHFR related, specifically C677T, then activated folate (not folic acid) is required.

    I wish you baby dust and hope you get your long wished for 2nd bub at some stage.

  3. The Following User Says Thank You to Happymumlgm For This Useful Post:

    Michy1980 (04-08-2018)

  4. #3
    Join Date
    Apr 2018
    Posts
    44
    Thanks
    55
    Thanked
    21
    Reviews
    0
    Thank you so much for replying.

    I haven't been tested for MTHFR yet but it's on my list to do next. Folate instead of folic acid could be an easy switch to make for next time.

    Re the aspirin, the FS just said it wouldn't hurt even though I have no identified clotting issue.

    Thanks again

  5. The Following User Says Thank You to Michy1980 For This Useful Post:

    Happymumlgm (04-08-2018)

  6. #4
    Join Date
    Jan 2016
    Posts
    3,015
    Thanks
    4,600
    Thanked
    7,175
    Reviews
    0
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts
    The best dr i have heard of for repeat moscarriage is dr matthias, although he is in sydney. Sounds like you have immune issues if you are falling pregnant easily and the tests on your angel babies are coming back normal. Its definitely not normal to have so many repeated miscarriages with otherwise healthy babies. Im so sorry you have had to go through this. I can only imagine how devastating it must be. There is a thread on here called "reproductive immunology" and im sure the ladies on there could give you more information about what to test for and who you could see. You may need steriods or intrallipids, dex, progesterone support or some other medications to try to prevent miscarriage. Id definitely keep searching for a reproductive immunologist rather than a FS. I will try to post a link to the thread im talking about. xx
    Last edited by gorgeousgeorge; 02-01-2019 at 11:01.

  7. #5
    Join Date
    Jan 2016
    Posts
    3,015
    Thanks
    4,600
    Thanked
    7,175
    Reviews
    0
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts

  8. #6
    Join Date
    Apr 2018
    Posts
    44
    Thanks
    55
    Thanked
    21
    Reviews
    0
    Quote Originally Posted by gorgeousgeorge View Post
    The best dr i have heard of for repeat moscarriage is dr matthias, although he is in sydney. Sounds like you have immune issues if you are falling pregnant easily and the tests on your angel babies are coming back normal. Its definitely not normal to have so many repeated miscarriages with otherwise healthy babies. Im so sorry you have had to go through this. I can only imagine how devastating it must be. There is a thread on here called "reproductive immunology" and im sure the ladies on there could give you more information about what to test for and who you could see. You may need steriods or intrallipids, dex, progesterone support or some other medications to try to prevent miscarriage. Id definitely keep searching for a reproductive immunologist rather than a FS. I will try to post a link to the thread im talking about. xx
    Hi gorgeousgeorge, thanks so much for replying, it really means a lot.

    You are actually right on the money as since my last post I have been to see Dr Matthias and been diagnosed with high natural killer cells and a partial gene match with my husband.

    The plan is for clexane, progesterone pessaries and injections, intralipids and steroids for my next pregnancy. I have also just done LIT with Dr M last week. He said it's not strictly necessary as we only have a partial match but I am pretty keen to through everything at this and give ourselves the best chance of avoiding another miscarriage.

    I'm due to ovulate next week so we'll be trying then. Am pretty daunted about the treatment plan and terrified of another loss but excited to be getting back on the horse again too.

    Thanks again for your message, I truly appreciate it xx

  9. The Following User Says Thank You to Michy1980 For This Useful Post:

    gorgeousgeorge (06-01-2019)

  10. #7
    Join Date
    Apr 2018
    Posts
    44
    Thanks
    55
    Thanked
    21
    Reviews
    0
    Quote Originally Posted by Michy1980 View Post
    Hi gorgeousgeorge, thanks so much for replying, it really means a lot.

    You are actually right on the money as since my last post I have been to see Dr Matthias and been diagnosed with high natural killer cells and a partial gene match with my husband.

    The plan is for clexane, progesterone pessaries and injections, intralipids and steroids for my next pregnancy. I have also just done LIT with Dr M last week. He said it's not strictly necessary as we only have a partial match but I am pretty keen to through everything at this and give ourselves the best chance of avoiding another miscarriage.

    I'm due to ovulate next week so we'll be trying then. Am pretty daunted about the treatment plan and terrified of another loss but excited to be getting back on the horse again too.

    Thanks again for your message, I truly appreciate it xx
    PS I also meant to say, I have seen your story on the Greece thread. Congrats and wishing you and your family all the very best x

  11. The Following User Says Thank You to Michy1980 For This Useful Post:

    gorgeousgeorge (06-01-2019)

  12. #8
    Join Date
    Jan 2016
    Posts
    3,015
    Thanks
    4,600
    Thanked
    7,175
    Reviews
    0
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts
    Quote Originally Posted by Michy1980 View Post
    PS I also meant to say, I have seen your story on the Greece thread. Congrats and wishing you and your family all the very best x
    Oh you a very welcome, so many ladies on here have helped me and i wouldnt have stayed sane or had a bubba without them so its nice to be able to pay it forward. Im so glad you've been to see Dr.M and have a plan in place. I can imagine it would be very scary but you are actively doing the best you can to make changes. I do hope you get your take home baby and I very much admire your determination and ability to persevere despite your fears xx

  13. The Following User Says Thank You to gorgeousgeorge For This Useful Post:

    Michy1980 (06-01-2019)

  14. #9
    Join Date
    Apr 2018
    Posts
    44
    Thanks
    55
    Thanked
    21
    Reviews
    0
    I just wanted to provide an update to this thread in case anyone is looking for info in future.

    I welcomed my second son at the end of August after my first cycle following Dr M's protocol (i conceive naturally). He was born 6 weeks early in a big rush and spent his first 4 weeks in hospital, was tiny and is currently struggling to gain weight but he is HERE! And i still can't believe it.

    My diagnosis from Dr M was high natural killer cells and a partial gene match with my husband. Treatment was LIT for partial gene match, prednisone for most of the pregnancy, clexane for the whole pregnancy, progesterone pessaries and injections, intralipids until about 20 weeks. I also switched to folate and took vitamin D, E, calcium, zinc.

    It has been a rollercoaster and my head still hasn't caught up with what the last year has brought to us but I wanted to update here in case others find themselves in the same position. Am always happy to answer questions etc.
    Thanks to everyone who helped me when I posted this thread and wishing everyone luck on their journeys.

  15. The Following User Says Thank You to Michy1980 For This Useful Post:

    a million dreams (26-01-2020)

  16. #10
    Join Date
    Nov 2019
    Posts
    24
    Thanks
    4
    Thanked
    0
    Reviews
    0
    You need a reproductive immunologist and the only one in Australia is Dr. Matthias. The rest don’t know what they’re doing. This is coming from an American who’s Reproductive immunologist is the partner of the doctor who invented the field of medicine. In Australia I see Matthias.


 

Similar Threads

  1. 5th miscarriage... do i keep TTC?
    By MrsHunidue in forum Pregnancy Loss Support
    Replies: 6
    Last Post: 10-07-2011, 21:42
  2. 2/5th engaged how long now?
    By ReneeRitaConnor in forum Pregnancy & Birth General Chat
    Replies: 3
    Last Post: 09-07-2009, 20:44
  3. Where to now...
    By springbride in forum Conception issues & ttc
    Replies: 4
    Last Post: 17-07-2008, 20:44
  4. I had a miscarriage in Jan - now pregant again but ....
    By Evee in forum Pregnancy Loss Support
    Replies: 6
    Last Post: 21-05-2008, 19:54
  5. Where to now?
    By Jem in forum Family & Friends
    Replies: 19
    Last Post: 26-04-2006, 19:04

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts

ADVERTISEMENT

ADVERTISEMENT

FEATURED SUPPORTER
TPS Health PhysiotherapyTPS Health has four clinics located at Morningside, Cleveland, Victoria Point and Lutwyche. We offer pre/post natal ...