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  1. #1
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    Default TTC with Endometriosis

    Hey ladies,
    Just wanting to see if there is anyone else in the same predicament as myself.
    I live near Newcastle in NSW and was diagnosed with a septate uterus and stage 3 endometriosis almost 6 years ago. I’ve had 90% of my septum removed and had a few little cysts and all endometriosis removed whilst they did my laparoscopy. Fast forward to December 2017 and I went for an ultrasound due to a little pain on my left hand side, which came back as a possible 2cm endometrioma. I got a referral to see a specialist which was today. Between December and now my DH and I have been trying to conceive, but alas nothing as yet, I was a day late (due 4/4) and so the specialist i saw today sent me off for a blood test (af came afterwards) and will email me a quote in the morning on laparoscopy costs as she only performs in private hospitals and i am public patient, she also said that going to emergency and pretty much refusing to leave until they did something was my other only option. I feel as thought i am back to where i started with no real plan, and pretty much paid $220 for a blood test and 10 pain pills. Does anyone know of a specialist that has affiliations with public hospitals ect? My pain is almost unbearable and I’m finding it super hard to walk/ sit.

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    Gemma8 (06-04-2018)

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    I am in the same boat as you. I am 37 year old and ttc from 1 year. My GP recommended me to infertility specialist and I found out that I have severe endometriosis, endometrioma on both ovaries. My AMH is very low. I am so confused now as Fertility specialist recommended that she will not touch my endometriosis while performing laparoscopy. She suggest IUI or Ivf is only approach but cannot guarantee anything.
    I am feeling so low and helpless as I never had symptom of endometriosis and now my pelvic is mess.

    Anyone with same condition who had success in conceiving and what line of treatment have you followed.

    I am Melbourne can anyone suggest good doctor with lot of success.

  4. #3
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    Hi i have endometriosis and have successfully concieved. I saw dr.scott giltrap in albury at reproductive medicine who is a specialist in endometriosis and a fertility specialist. He works with albury day surgery which is a private hospital though. But he was very good with helping me. Maybe you could see him just for an initial appountment to see if he can help find you some options in the public system?

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    With low AMH I wouldn’t risk surgery on the ovaries so would leave the endometrioma. But would get the rest of your endometriosis removed.

    I just told the surgeon not to touch the ovaries under any circumstances.

    OP, if you want to go public you normally can’t choose your surgeon. Maybe speak to your GP to get a referral into the public system?

    R

  6. #5
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    Default TTC with Endometriosis

    Quote Originally Posted by Godgift View Post
    I am in the same boat as you. I am 37 year old and ttc from 1 year. My GP recommended me to infertility specialist and I found out that I have severe endometriosis, endometrioma on both ovaries. My AMH is very low. I am so confused now as Fertility specialist recommended that she will not touch my endometriosis while performing laparoscopy. She suggest IUI or Ivf is only approach but cannot guarantee anything.
    I am feeling so low and helpless as I never had symptom of endometriosis and now my pelvic is mess.

    Anyone with same condition who had success in conceiving and what line of treatment have you followed.

    I am Melbourne can anyone suggest good doctor with lot of success.
    Hi I have endometriosis and also have chocolate cysts on my left ovary and low AMH. I went through a stim round of ivf back in March 2018 and froze my embryos from the cycle . In June I had a laparoscopy and the doctor cleaned up my endometriosis and drained my cysts. My doctor suggested not getting them removed until I’m done having children. In October I had a successful frozen transfer and am currently 26 weeks pregnant I’m in Sydney though so I don’t have any suggestions on doctors for you.

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    Risa78 (06-04-2019)

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    I had low amh. I switched fs 4 years ago after years of failure. My new fs is also a gyno/OB they actually listened to me. He suggested a lap. 6 weeks later stage 4 endo as he described was like cutting through rocks with a blunt knife. 90% removed. Covered my bowel, uterus and inside my right tube. Did a frozen transfer 4 months later that failed day day then by miracle Ds2 was conceived naturally off that cycle. I never had any symptoms at all but suspected I had it

    Had another lap march 2017 more endo removed them dd conceived in November she is 8 months old now

    I’m in SA and fully private my gap for surgery was $500 each time and & zero for hospital stay

    Cost wise for the actual surgery going on my medical records was around $3500 this does not include the hospital stay and theatre cost.

    I have seen prices in Sydney being up around $5000 a surgeons gaps are way over the threshold compared to here in SA

    If i where you I’d also look into private health just for yourself and seek out wait times

    I know of people that have waited nearly 12 months for their laps and where stage 3-4

    Good luck


 

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