Awesome Mums of autistic kids-how many of us are there (#4) ??????????

[White Mage]

Hello mommies!! anyone had an experience with planning meeting with NDIS? we are going to have our meeting on Friday and I am looking for some advice and insight on what is going to happen. Thank you!

Really think about what you need.
Equipment, therapy, assistance.
Social groups, school holiday programs,
If you have ideas like that already, bring info about those things if you can.

Bring a specialist with you if they can. I had a speech therapist and an o.t present to help contribute.
Even talking to them before hand for some input would help.

Reports.. all the reports. You may not need them. But they like up to date stuff as well as the initial diagnosis report.

You will go over every little thing and talk like it's your kids worst day.

[xanadu29]

Thank you @White Mage I think our planning meeting went well.. it took us 2.5 hours and the planner was really nice (I hope). It was tough talking about all the difficulties my son has and all the bad examples of his behaviors but I conditioned myself that we need to talk about it for a better funding. How long did it take before you had your plan approved after the planning meeting if I may ask? The planner told me it varies so much so she can't give me a definite time frame.

Really think about what you need.
Equipment, therapy, assistance.
Social groups, school holiday programs,
If you have ideas like that already, bring info about those things if you can.

Bring a specialist with you if they can. I had a speech therapist and an o.t present to help contribute.
Even talking to them before hand for some input would help.

Reports.. all the reports. You may not need them. But they like up to date stuff as well as the initial diagnosis report.

You will go over every little thing and talk like it's your kids worst day.

[White Mage]

Thank you @White Mage I think our planning meeting went well.. it took us 2.5 hours and the planner was really nice (I hope). It was tough talking about all the difficulties my son has and all the bad examples of his behaviors but I conditioned myself that we need to talk about it for a better funding. How long did it take before you had your plan approved after the planning meeting if I may ask? The planner told me it varies so much so she can't give me a definite time frame.

Hmmmm the first time it was about 1-2 months. They should be sooner every year after, it just depends on how much back log they have.

[sajimum]

Thank you @White Mage I think our planning meeting went well.. it took us 2.5 hours and the planner was really nice (I hope). It was tough talking about all the difficulties my son has and all the bad examples of his behaviors but I conditioned myself that we need to talk about it for a better funding. How long did it take before you had your plan approved after the planning meeting if I may ask? The planner told me it varies so much so she can't give me a definite time frame.

Glad to hear it went well. Fingers crossed that it isn't too long a wait to find out the result. Good idea to prepare yourself for discussing all the negatives, difficulties and behavioural issues. I found that a really challenging part of the diagnostic process and I assume the NDIS requirements are similarly deficit based.

[Mama of 1]

Sounds like the school is still getting a feel for your DD's behaviours and needs. One positive is that there is an aide in the classroom. My DS has been in mainstream since half way through term 3 last year (previously he was in a support class) and we're still waiting to find out what the school are able to offer in terms of an aide for support (they submitted his application last year but it takes time). Thankfully though, our school is great and I have no doubts that they're managing well with DS. They have assured me that whatever funding the school is given will be used solely to support DS (some schools use the funding as they see fit, not necessarily on your child even though they are the one who needs it).

I would check in with the teacher as to when you'll be having your meeting to discuss her ILP. I would expect this to occur by week 6 at the latest.

Best advice (as a newbie to mainstream) is to keep the communication going and don't be afraid to ask questions of them. If they are having any issues, they need to put strategies in place to try and manage your DD's needs. Our kids have additional needs, that doesn't mean they should be treated as an inconvenience - any school that makes you feel like that is probably not the right school for your DD.

Thanks so much for the reply. I am not sure how to feel? DD loves it but every time she does a runner or doesn’t participate appropriately the teacher comes at me with a “oh I am exhausted face and a speech about how well she handled my child” the preps have Wednesday’s off and I am giving DD tomorrow off as well but the constant chopping and changing of the schedule is not helping. I feel like my kid is a burden to the school to be honest, then my DH tells me it’s early days and I am just protective.

Also DD was playing with phlegm that she coughed up ( has never done this before) something new and apparently a parent complained to the teacher about hygiene. The teacher told me this on Tuesday, I felt sooo embarrassed and told the teacher she might be coming down with something I will give her and extra day off.

What would you do in that situation?

[White Mage]

Thanks so much for the reply. I am not sure how to feel? DD loves it but every time she does a runner or doesn’t participate appropriately the teacher comes at me with a “oh I am exhausted face and a speech about how well she handled my child” the preps have Wednesday’s off and I am giving DD tomorrow off as well but the constant chopping and changing of the schedule is not helping. I feel like my kid is a burden to the school to be honest, then my DH tells me it’s early days and I am just protective.

Also DD was playing with phlegm that she coughed up ( has never done this before) something new and apparently a parent complained to the teacher about hygiene. The teacher told me this on Tuesday, I felt sooo embarrassed and told the teacher she might be coming down with something I will give her and extra day off.

What would you do in that situation?

The first year is always the hardest for parents because it's the first time our kids are starting to learn to be independent.
My eldest was a lot of hard work in his first year. Could be disruptive. It took 3/4s of the year before he finally got it.
However teachers should not be putting a show about how tiring your kid is. They should be telling you how they are dealing with the behavior and working with you to find a strategy that will make things easier for everyone.
I found it a lot more of relief having them tell me how they were doing to help him. Rather then me having to hold the teacher or staff members hand on how to do things. It shows a lack of education or a lack of patience.

I was very lucky to have a great prep teacher our first year. It was so weird having her tell me 'your son did this today, but we did this and this and this and he responded well to it and we will have a better approach for it in the future ' and I didn't have to explain why he did stuff cause they got why.

It is the 1st year. Give it some more time yes. But don't let them make you feel bad. And don't be embarrassed.
My eldest announced that he went to the toilet with his pants around his ankles and another student saw his bottom at lineup in front of the teachers, other kids and parents. Everyone laughed. I laughed too. Parents are assholes. Kids are assholes they are going to say things that suck. You ignore it and concentrate on yourself. Very easy to get caught up in school drama. VERY easy.
Are there any other special needs families in the school?

[Mod-Degrassi]

Also DD was playing with phlegm that she coughed up ( has never done this before) something new and apparently a parent complained to the teacher about hygiene. The teacher told me this on Tuesday, I felt sooo embarrassed and told the teacher she might be coming down with something I will give her and extra day off.

What would you do in that situation?

I would probably handle it the same as you. I'd be a little embarrassed, however I would try not to take it personally. She's just a little kid - young kids, spectrum or not, have much to learn and do gross things from time to time. I think it was a bit over the top for the parent to complain to the teacher.