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  1. #601
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    Quote Originally Posted by Justme007 View Post
    Hi ladies,

    A bit of an update.
    I had two crappy declining hCG blood results so all over already.
    I know it’s NKC related and I should have been on more meds.

    Our trip to Greece was too last minute and I don’t think my FS here is up to speed enough on this stuff and perhaps I expected more at the other end too.

    One intralipid pre transfer, some Clexane, progesterone, oestrogen, and no other NKC meds is not enough IMHO for my issues and I blame myself for being too busy with work and Christmas crap to interrogate my FS although I’m not sure why in IVF world the patient has to take such a lead role in developing a treatment protocol... so over Monash IVF and my FS (not Dr NL)!

    I’ve emailed Dr Matthias in NSW as some of you have suggested for a phone consult in two weeks time.
    Dr NL in Vic has next available appointment in May. How can ladies wait so long?

    We have two more frozen tested embryos so I plan to head back to Athens once I’m properly medicated ASAP.

    Sending lots of better luck to you all.
    And do your research more than I did please!
    So sorry for your loss. Looks like you are on top of it all now and unfortunately we do have to take the lead. If I hadn't have found this forum I would never be 12 weeks pregnant now. That is a fact! Just a heads up you are probably better off calling Dr Matthias as they're not really good with email responses from my experience. I'd get into it straight away as he's pretty busy! He will definitely sort you out before your next transfer. It will all be worth it. Best of luck to you and just try to concerntrate on your next transfer, that's how I always got through.

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  3. #602
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    12 week scan today and all is well.
    Can't wait for my Doppler to arrive so I can keep track of this little one. He was having a nap today during scan so we had to wake him up, so cute he had a big stretch and rolled over. 1 step forward!

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  5. #603
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    Ohh justme007, im so sorry to hear this news i was so hoping one of us would of succeed in our time over in Greece. Everything you have just mentioned is exactly what our next steps are . Were you aware you had nkc before this trip ? Sending you a huge hug x

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  7. #604
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    Default Egg Donation Greece #9

    @Justme007 I’m so so sorry to hear your news. It’s heart breaking hearing your HCG was declining.

    I know what you mean when you feel like you have to take the lead of your own fertility. I rationalised it to needing a team of specialists to complete the puzzle.

    I took advice from the girls in the over 40s thread to get on to Dr M
    as my FS wasn’t specialised in that field - although she checked for NKC and I was on 5mg pred - clearly not enough! Getting on to Dr M was the best advice ever!

    So the team was...Dr M for NKC, Dr LB for hysteroscopy, scratch, Dr N for eggs. I needed a second go too as Dr M tweaked my meds (dex instead of pred) and I reckon the scratch helped too.

    Sending you all the best -
    You *will* be ready next time

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  9. #605
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    Quote Originally Posted by Moc24 View Post
    12 week scan today and all is well.
    Can't wait for my Doppler to arrive so I can keep track of this little one. He was having a nap today during scan so we had to wake him up, so cute he had a big stretch and rolled over. 1 step forward!
    Congratulations on your 12 week scan Moc24,another milestone to tick off the list xx
    Quote Originally Posted by Moc24 View Post
    There is a blood test for NKC however if it comes back negative it is still inconclusive as you can have nk cells in you uterus that don't show In your blood.

    I would have thought you should be on prednisolone if you have nkc??
    Intralipids are usually before transfer then as soon as you get a BFP then 2 weeks later then maybe another??? Mine were every 2 weeks up to 10 weeks then monthly up to 20 weeks but my dr is over cautious as I have had so many miscarriages. @Phia may be able to help more?

  10. #606
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    Quote Originally Posted by Ebby28 View Post
    Ohh justme007, im so sorry to hear this news i was so hoping one of us would of succeed in our time over in Greece. Everything you have just mentioned is exactly what our next steps are . Were you aware you had nkc before this trip ? Sending you a huge hug x
    Thanks @Ebby28 I did know and that’s why I asked for intralipid but no one told me to take anything more. I feel a bit stupid but I feel things fell between the cracks as the trip was rushed and my FS seemed to say I was now Dr Nikos patient and he would tell me what to do.

    I’d be keen to know from anyone how soon you should start the NKC protocol so I can ask my FS for the prescriptions when I see her tomorrow.

  11. #607
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    @Moc24 How amazing! What a great milestone-makes it so real because you can tell people outside your circle and work.
    So happy for you lady!

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  13. #608
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    Quote Originally Posted by Phia View Post
    @Justme007 I’m so so sorry to hear your news. It’s heart breaking hearing your HCG was declining.

    I know what you mean when you feel like you have to take the lead of your own fertility. I rationalised it to needing a team of specialists to complete the puzzle.

    I took advice from the girls in the over 40s thread to get on to Dr M
    as my FS wasn’t specialised in that field - although she checked for NKC and I was on 5mg pred - clearly not enough! Getting on to Dr M was the best advice ever!

    So the team was...Dr M for NKC, Dr LB for hysteroscopy, scratch, Dr N for eggs. I needed a second go too as Dr M tweaked my meds (dex instead of pred) and I reckon the scratch helped too.

    Sending you all the best -
    You *will* be ready next time
    Thanks so much @Phia, we have the same team of specialists now I have a phone consult booked with Dr M in two weeks.

    I’m feeling positive as I know so many of you brave ladies have fought on and succeeded!

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  15. #609
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    Quote Originally Posted by Justme007 View Post
    Thanks @Ebby28 I did know and that’s why I asked for intralipid but no one told me to take anything more. I feel a bit stupid but I feel things fell between the cracks as the trip was rushed and my FS seemed to say I was now Dr Nikos patient and he would tell me what to do.

    I’d be keen to know from anyone how soon you should start the NKC protocol so I can ask my FS for the prescriptions when I see her tomorrow.
    Don't feel stupid, you shouldn't have to know these things your drs should be telling you not the other way around. Unfortunately not all drs know what to do or how to proceed so we have to find out ourselves. My fs prescribes 20 to 25mg for NKC daily. You start 12 days before transfer and continue until you start to wean around 12 weeks.

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  17. #610
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    Quote Originally Posted by Justme007 View Post
    Thanks so much @Phia, we have the same team of specialists now I have a phone consult booked with Dr M in two weeks.

    I’m feeling positive as I know so many of you brave ladies have fought on and succeeded!
    You can fall pregnant so that is one box ticked.
    You are doing everything right so you will get there. If I can do it anyone can. I honestly believe you will be fine, just have to get meds sorted then get that next BFP. Once I was on my current protocol it took me 2 goes to get a positive, that I guess is just luck of the draw.

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