Try saying that 5 times quickly!
I'm looking for mums who have experienced this awful disorder.. specifically mums who have gone on to have a successful, viable pregnancy following a loss due to this disorder.
A little back story.
I have 2 healthy children, from 2 textbook births following 2 uneventful pregnancies. I assumed my body was just made for easy, straightforward procreation.
Enter different daddy (maybe this is a factor.. it's also been 8 years since my youngest living child was born) and I discover that just isn't the case.
Our son was lost last June at 24 weeks to MPFD. If you haven't heard of it, it is a condition where the mother's body lays down fibrin through the placenta, causing blood clots and deposits of thick white fibrin strands. If the condition is severe enough, it causes severe growth restriction, and in many/most cases, fetal death.
It also has a high risk of recurrence in subsequent pregnancies.
So yeah.. all in all its a fairly nasty condition. It's also considered rare, and with no perinatal diagnostic methods or successful treatment plans.
Fast forward 6 months and I'm currently 7w4d pregnant. I'm on daily aspirin (150mg) and we are having a scan every fortnight to measure bub's growth. If growth starts to stall we will be looking at other options (clexane, heparin, lovenox, viagra etc) but I'm hoping the aspirin is enough.
I'd love to know whether other mums have any experience with this condition, and specifically whether anyone has had any success in being treated with aspirin alone..
Please share your story. I know pregnancy loss isn't always easy to talk about, so I absolutely appreciate anything anyone is willing to share x
+ Reply to Thread
Results 1 to 4 of 4
-
30-01-2017 14:01 #1
Massive perivillous fibrin deposition
-
The Following User Says Thank You to MissLeeshy For This Useful Post:
emilylouise (21-12-2017)
-
09-07-2017 20:30 #2
Member
- Join Date
- Jan 2013
- Posts
- 45
- Thanks
- 4
- Thanked
- 5
- Reviews
- 0
Hi, not sure if it's still relevant, but yes I have had this condition and gone in to have a healthy bub with low dose aspirin treatment only. More than happy to give you more info if you like x
-
03-01-2018 14:59 #3
Junior Member
- Join Date
- Oct 2014
- Posts
- 1
- Thanks
- 0
- Thanked
- 0
- Reviews
- 0
I would love to know more about your treatment and outcome. I lost my baby at 40wks during childbirth and was diagnosed with MPFD.
-
15-05-2018 13:48 #4
Junior Member
- Join Date
- May 2018
- Posts
- 1
- Thanks
- 0
- Thanked
- 0
- Reviews
- 0
Hi, sorry this may be a bit late but I have had 2 x successful pregnancies after MPFD.
I had my daughter (live birth) via C Section at 26 weeks in 2010 and her placental pathology came back as MPFD. I was treated for MPFD in 2012 and 2017 and had two successful pregnancies to 37 weeks elective c Sections. I was treated with clexane and IVIG (intravenous immunoglobulin therapy) once a week, which generally took a whole day in hospital. Am happy to be contacted regarding any advice for treatment. I was lucky though, my treatment cost hundreds of thousands of dollars, which I didn’t have to pay for.
ADVERTISEMENT
ADVERTISEMENT
FEATURED SUPPORTER
Prams and StrollersLooking to buy a pram or stroller?
:: Viewer reviews of prams
:: Pram Buyers ...
BLOG POSTS
LATEST
To my gorgeous yummy-mummy gal pals …How to combat Valentine’s Day Blues’ post-separationIs your baby funny? 9 steps to a sense of humourPOPULAR
When can I start giving chores to my children?A guide to Parental Leave Pay in Australia – are you eligible?New baby nursery checklist – a guide to newborn essentials
FORUMS - chatting now ...
Parents of young people with eating disordersBody image and eating disorders
EggDonation Greece #16Egg Donation
Tonight we're smashing into...#4Recipes & Lunchbox Ideas
Multiple chemical pregnanciesConception issues & ttc
Does this look like hand foot and mouth?General Health
Fantastic FebruaryConception & Fertility General Chat
Implantation bleeding, experiences.Conception & Fertility General Chat
What would you do if you were going to TTC in 2019Pregnancy Fitness & Nutrition
REVIEWS
ADVERTISEMENT