+ Reply to Thread
Results 1 to 5 of 5
  1. #1
    Join Date
    Jan 2017
    Posts
    45
    Thanks
    30
    Thanked
    20
    Reviews
    0

    Default Childhood absence epiliepsy.

    DP and I discovered today that DS might have CAE.

    We've been looking for answers for a while in relation to his zoning out and eye twitches, but still, it's a little bit of a shock.

    Sorry for the spelling, damn you mobile device.

  2. #2
    Mod-Nomsie's Avatar
    Mod-Nomsie is offline Administrator
    Winner 2009/10/11/12/13 - Most helpful Moderator
    Winner 2011 - Naughtiest/Cheekiest Mod
    Winner - Quickest 'Thanker' on the Hub
    Join Date
    Oct 2007
    Location
    Vic
    Posts
    23,983
    Thanks
    7,226
    Thanked
    7,370
    Reviews
    3
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 postsEmerald Star - 10,000 postsRuby Star - 15,000 postsDiamond Star - 20,000 posts
    Awards:
    200 Posts in a week100 Posts in a weekBusiest Member of the Week - week ended 15/1/15

    Default Childhood absence epiliepsy.

    How old is your DS?

    I have taught a girl with CAE. She would zone out, eye twitch and get very odd headaches. She went into meds for it and it helped her so, so much. She is now 13/14 and her dr's seem to think she has outgrown it. I think she no longer takes meds, from memory.

    It's a terrible feeling to know your child isn't 100% healthy, as well as super scary. But, hopefully as in the same case as my student, your sons condition can be controlled by meds and he grows out of it early.

  3. The Following User Says Thank You to Mod-Nomsie For This Useful Post:

    I am Brooke  (21-01-2017)

  4. #3
    Join Date
    Dec 2005
    Posts
    11,721
    Thanks
    3,011
    Thanked
    3,284
    Reviews
    14
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 postsEmerald Star - 10,000 posts
    Awards:
    100 Posts in a week
    OP, my brother has this type of epilepsy, has had it since early childhood. He no longer take meds, but he did when he was younger. It's the most misunderstood epilepsy (and scary) as people automatically think that if you're an epileptic you have a physical fit, so turns often get mistaken for being other things.

    My brother didn't often twitch, he would literally stop what he was doing and stare blankly into space and would be severely zoned out and his vision would be impaired to the point of seeing everything upside down. The temporal lobe affects vision etc.

    Lot's of ((hugs)) I can imagine how shocked and scared you are, but rest assured the testing/ECG's etc are amazing these days and if your little one needs meds, they're much better than years gone by. X

  5. The Following User Says Thank You to Mod-Uniquey For This Useful Post:

    I am Brooke  (21-01-2017)

  6. #4
    Join Date
    Jan 2017
    Posts
    45
    Thanks
    30
    Thanked
    20
    Reviews
    0

    Default Childhood absence epiliepsy.

    Thank you for your replies.

    DS is eight and in Grade three.

    We had false starts on diagnosis including dyslexia, autism, and eye sight problems.

    I'm disappointed in the diagnosis delays, but late is better than never. Hopefully now we can support him in catching him up academically to his peers.
    Last edited by I am Brooke; 20-01-2017 at 17:54.

  7. #5
    Join Date
    Jan 2009
    Posts
    615
    Thanks
    95
    Thanked
    76
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    My sister had this growing up, with her first seizure at the age of 4. It was mostly controlled with meds although she still had the odd seizure - the worst I saw was when I was about ten so she must have been 7 and she had 4 in a row and ended up in hospital. I'll always remember it as it was a 46 degree day and they think the heat triggered it. We were sharing a room together and chatting and then all of a sudden she just zoned out and was making this clicking noise with her mouth she used to do.

    Anyway, she had her last seizure at 13 I think and gradually weaned off meds, and now at 33, you would never know.

  8. The Following User Says Thank You to erinn For This Useful Post:

    I am Brooke  (21-01-2017)


 

Similar Threads

  1. Childhood leukaemia
    By alexis243 in forum General Child Health Issues
    Replies: 60
    Last Post: 27-12-2016, 09:54
  2. Favourite books of your childhood
    By MrsMummaButterfly in forum General Parenting Tips, Advice & Chat
    Replies: 23
    Last Post: 20-12-2016, 19:31

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
FEATURED SUPPORTER
ProSwimProSwim runs learn to swim classes for babies, children and adults. Our indoor centre in Plympton Park has lessons all ...
REVIEWS
"Made bed time less anxious"
by Meld85
My Little Heart Whisbear - the Humming Bear reviews ›
"Wonderful natural Aussie made product!"
by Mrstwr
Baby U Goat Milk Moisturiser reviews ›
"Replaced good quality with cheap tight nappies"
by Kris
Coles Comfy Bots Nappies reviews ›