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  1. #11
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    That sounds pretty scary. If you are worried (which you are) then put your determined mumma hat on and don't stop til you get the help you need.
    If you go during the day to paed ED they may have allied health staff like OT, speech path and dietitians on hand that can see him too on the spot.
    I just had a look at the growth chart and he looks like he'd be around 3rd centile at 9kg at 9 months. So at the bottom end of the scale but that can be ok if he's healthy and developmentally progressing well. But he sounds like he's struggling so some urgent intervention is probably warranted.
    Hope you get some answers soon.

  2. #12
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    My vote would be going to the hospital if you cannot get to the GP/dietician etc soon.

    I will also add that he may have had a growth spurt in height so maybe looks skinnier due to that.

  3. #13
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    Quote Originally Posted by Jennaisme View Post
    At this point in time I'm thinking it's going to be quicker to take him to the kids ED at the hospital.
    Last time I tried the GPs, I went to three different ones and the child health nurse. And then two different paediatricians at the hospital before someone paid attention. By the time anyone actually listened he was dehydrated enough I could fit three fingers in that bit on his head.
    When we finally got admitted he even lost weight overnight and that was with me not being allowed to feed him. Only the nurses were allowed to.
    His teeth are going clear as well.

    Also, woohoo. Went and weighed him. Almost 9kg. Yay.
    Maybe I am missing something however I don't get how one can be so worried about a child (thinking of bypassing GP's going straight to ED) yet have only just weighed said child?

    Any chance you are stressed and worrying about something that doesn't need to be worried about? Or has there been previous incidents that led to a distrust of doctors and social services?

    Please take your bubba to see a doctor ASAP.

  4. #14
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    My 2 year old is just over 9kgs... food allergies and reflux are all at the root cause of slow weight gain for us. I definitely agree with going to the ED. My 2nd child I tried to get help repeatedly with various health professionals, before she became very ill and very weak. Looking back now, I wish I took her to an ED and demanded help. I would ask for a paediatric allergist, and maybe a gastroenterologist. Good luck.

  5. #15
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    Just adding... what formula is he on? My Dd was on Neocate, which as you would know, tastes awful - the paed allergist told me to put a teaspoon of sugar in it to get her to drink it & thrn slowly reduce the sugar.

  6. #16
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    Quote Originally Posted by VicPark View Post
    Maybe I am missing something however I don't get how one can be so worried about a child (thinking of bypassing GP's going straight to ED) yet have only just weighed said child?

    Any chance you are stressed and worrying about something that doesn't need to be worried about? Or has there been previous incidents that led to a distrust of doctors and social services?

    Please take your bubba to see a doctor ASAP.
    His weight fluctuates so often that often it's a case of he'll look fine one day (if a bit on the skinny side) then skin and bones the next. I don't know why. He's always been this way.

    The distrust comes from spending weeks when he was 6 months old and screaming for 16 hours straight a day and not a single GP, paediatrician or child health nurse listening.
    One told me I just needed sleep.
    One told me he's fine.
    One told me I needed to feed him more while I was sitting in her office and begging for help because he just would. Not. Eat.
    One kept making me try different formulas because he just "didn't like that one so he wouldn't eat it".
    One sent me home from the ED. Twice. By this time he was so dehydrated the bit on his head that indicates dehydration was sunken enough that I could fit 3-4 fingers in it flat.
    The last one who finally paid attention thought I was starving him myself and only believed I wasn't after he lost 20gms overnight with the nursing staff feeding him and me not being allowed to.
    I originally took him off the specialised formula because despite being on it, he started losing weight because he wouldn't eat anything other than the bottle and he'd only have one of those three times a day, despite how often I'd try to give him one if he refused food.

    I'm concerned and confused because regardless of what he eats/doesn't eat, he's insanely active. He's not lethargic, his eyes arent sunken, he drinks a heap of water so I'm not concerned about dehydration regarding him.
    But you can see every one of his ribs, every vertebrae in his spine, his hip bones. Not so much his legs anymore because they're mainly muscle. His arms look like twigs. You can see his shoulder blades and he's starting to bruise. I only picked him up from his Dads tonight, so I hadn't had a chance to weigh him when I started the thread. Apparently he's in the "normal" weight range for his age but for the life of me I can't begin to figure out where.

  7. #17
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    @Jennaisme that must have been so traumatic for you. It's so tough when the professionals you turn to for help don't do anything. My 2nd DD sounds really similar to yours - she screamed all day long, vomited all day long, pooed all day long (I'm talking 20-30 poos and pooing for hours at a time like a running tap). Not suprisingly, she was dangerously underweight and extremely weak. It was the worst months of my life, ever, until she was diagnosed with multiple food allergies & reflux & was mediated/ put on formula. I cry whenever I think about how awful it was. I get it & I'm sorry you went through a hard time too. I would personally stick with the formula if you can - at least you know it has the nutrition needed as opposed to rice milk. Can your ds have polyjoule (carbohydrate powder?) it has no taste, no proteins so is easily tolerated by allergy kids, & just adds pure calories to fatten kids up when they are getting too thin. My paed put my DD on it & wejust added it to her milk. Obviously check medical advice though. Good luck and keep carrying on.

  8. #18
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    Quote Originally Posted by cheeeeesecake View Post
    @Jennaisme that must have been so traumatic for you. It's so tough when the professionals you turn to for help don't do anything. My 2nd DD sounds really similar to yours - she screamed all day long, vomited all day long, pooed all day long (I'm talking 20-30 poos and pooing for hours at a time like a running tap). Not suprisingly, she was dangerously underweight and extremely weak. It was the worst months of my life, ever, until she was diagnosed with multiple food allergies & reflux & was mediated/ put on formula. I cry whenever I think about how awful it was. I get it & I'm sorry you went through a hard time too. I would personally stick with the formula if you can - at least you know it has the nutrition needed as opposed to rice milk. Can your ds have polyjoule (carbohydrate powder?) it has no taste, no proteins so is easily tolerated by allergy kids, & just adds pure calories to fatten kids up when they are getting too thin. My paed put my DD on it & wejust added it to her milk. Obviously check medical advice though. Good luck and keep carrying on.
    He won't have the formula anymore. I really can't blame him. It smells and tastes like raw liquid potatoes. I'll see about getting that other stuff and adding it to the food I can get into him. I spoke to his Dad and his Dad has suggested we need to try the GP first. He's the normal, hyperactive little kid he usually is so he doesn't think the ED will take it seriously just yet. If he was lethargic/tired then it'd be different. I've spoken to my staff to cover me for tomorrow so I can take him in and we'll see how it goes.

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  10. #19
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    Quote Originally Posted by gingermillie View Post
    That sounds pretty scary. If you are worried (which you are) then put your determined mumma hat on and don't stop til you get the help you need.
    If you go during the day to paed ED they may have allied health staff like OT, speech path and dietitians on hand that can see him too on the spot.
    I just had a look at the growth chart and he looks like he'd be around 3rd centile at 9kg at 9 months. So at the bottom end of the scale but that can be ok if he's healthy and developmentally progressing well. But he sounds like he's struggling so some urgent intervention is probably warranted.
    Hope you get some answers soon.
    Sorry. I just noticed there's a heap of posts that my phone didn't give me notification for. I don't really understand the growth chart thing. Is 9kg is on the low end of the scale at 9 months does that mean he isn't the normal weight range for 18 months or do I just not understand what you've said?

  11. #20
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    Quote Originally Posted by Jennaisme View Post
    His weight fluctuates so often that often it's a case of he'll look fine one day (if a bit on the skinny side) then skin and bones the next. I don't know why. He's always been this way.

    The distrust comes from spending weeks when he was 6 months old and screaming for 16 hours straight a day and not a single GP, paediatrician or child health nurse listening.
    One told me I just needed sleep.
    One told me he's fine.
    One told me I needed to feed him more while I was sitting in her office and begging for help because he just would. Not. Eat.
    One kept making me try different formulas because he just "didn't like that one so he wouldn't eat it".
    One sent me home from the ED. Twice. By this time he was so dehydrated the bit on his head that indicates dehydration was sunken enough that I could fit 3-4 fingers in it flat.
    The last one who finally paid attention thought I was starving him myself and only believed I wasn't after he lost 20gms overnight with the nursing staff feeding him and me not being allowed to.
    I originally took him off the specialised formula because despite being on it, he started losing weight because he wouldn't eat anything other than the bottle and he'd only have one of those three times a day, despite how often I'd try to give him one if he refused food.

    I'm concerned and confused because regardless of what he eats/doesn't eat, he's insanely active. He's not lethargic, his eyes arent sunken, he drinks a heap of water so I'm not concerned about dehydration regarding him.
    But you can see every one of his ribs, every vertebrae in his spine, his hip bones. Not so much his legs anymore because they're mainly muscle. His arms look like twigs. You can see his shoulder blades and he's starting to bruise. I only picked him up from his Dads tonight, so I hadn't had a chance to weigh him when I started the thread. Apparently he's in the "normal" weight range for his age but for the life of me I can't begin to figure out where.
    Thankyou for clarifying. I am still concerned - I just can't understand how the current situation can be so dire yet until this evening you had no idea if your child weighed 5kg or 9kg?

    I get that the experience when your child was 6 months was very difficult - however if your child is suffering so to the point where they are skin and bones and their teeth are discolored I just don't get how it can get to that point. My child poops funny I take him to the GP. Don't get an answer I like or understand - go to a different GP. Please don't let a bad experience 1 year ago delay treatment any longer for your child.


 

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