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  1. #941
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    Good luck @Amandamoo.
    @Heyside that is greaat news on the flicker of heart beat.

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    Amandamoo  (07-04-2017),Heyside  (07-04-2017)

  3. #942
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    Thanks everyone xx

    Good luck for tomorrows transfer @Amandamoo hope all goes well x

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  5. #943
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    @Heyside that's great news

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    Heyside  (07-04-2017)

  7. #944
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    Quote Originally Posted by Heyside View Post
    I have been trying to put things in place over here today whilst in the UK and things are proving difficult. I saw the GP today and he wont approve my intralipids as he has never heard of them and apparently he signs the script and it comes back on him. He also refered me to midwife care for an early scan so I rang them and apparently they wont scan me unless I register to give birth here. Luckily the midwife was so helpful and gave me the number of a private clinic who saw me tonight at last minute. I am only 6 weeks and 3 days so still early days but through an abdominal scan she could only see a sac and yolk sac and put me over 4 weeks I explained the ivf situation and the fact I know dates exactly. She then did the internal scan and managed to see slightly more and a flicker of a heart beat so said all was good, it was such a relief I broke down into tears. In her notes she decided to not write dhe had seen the flicker of heartbeat which means I can go back for another free scan next week. I am happy and relieved. Now just need to sort intralipids somehow which may be a harder process.
    Heyside that's awesome re heartbeat i would of cried. That's crappy re intralipids hopefully you can find someone who'll be able to do them for you. Honey im so happy tjis is finally your time. Enjoy your holiday honey xx

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    Heyside  (08-04-2017),LittleDove  (08-04-2017)

  9. #945
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    Default intralipids

    Heyside,

    I'm sure you're on to this already, but there are some older threads on fertilityfriends.co.uk re intralipid under immune FAQ; Dr Gorgy is in London apparently btw. Good luck!

    10.2.6 Can I have intralipids administered outside of London?
    If you are having treatment with Dr Gorgy, obviously he prefers you to have drips in his clinic (and drips are usually available to ladies who need them urgently very quickly if you attend the clinic), but if this is impractical for you, he is usually able to provide a prescription for you to arrange for HealthCare at Home (08702400518 – ask for Jade Herrington) to administer. Healthcare at Home have a UK wide team of nurses who will come to your home and administer it to you. A few UK IVF clinics may agree to administer it (but I haven’t heard of this happening very often) and even a few GPs. You may be able to find a local nurse through a nursing agency who can canulate and administer intralipids - see below.

    CMRW in Cardiff apparently are now offering intralipids. http://crmw.co.uk/immunology-testing.php
    How much do intralipids cost?
    The actual cost of the drug and consumables is only about £20, but the cost of nursing care to receive it (a nurse has to give it to you by IV and be on hand in case of any problems) adds a lot to the cost. With Healthcare at Home the total cost of intralipids is currently about £380 by debit card (although there is an extra fee to pay by credit card). With Dr Gorgy intralipids is currently about £350.

    According to their website, CMRW offer intralipids for £250. Midland Fertility Services are another option.

    If you are having IVF abroad, it is worth checking whether its available there because in some countries nursing costs are much cheaper. If you happen to have a nurse or doctor in the family who is prepared to administer it for you, then you may be able to get it for just the cost of the drug and consumables (saline, giving kit, cannula, syringes for mixing etc), but of course you would need someone who is prepared to write the prescription for you and, of course, Dr Gorgy (and Healthcare at Home) are experienced in preparing and giving intralipids, so you may prefer to have your first drip with Dr Gorgy. Some ladies have managed to find a local nurse e.g., through a nursing agency (e.g., Medihome, Allied Nursing, Prestige Nursing, Advantage Healthcare), which has worked out signficantly cheaper than Healthcare at Home but they have had to obtain the intralipids, saline and consumables and have had to satisfy the agency's requirements in terms of written instructions from a (UK) doctor and risk assessment.
    e
    Some ladies have had intralipids with Verona Hall in Dulwich which costs about £100 excluding the intralipids but including saline and consumables.
    http://www.veronahall.co.uk/. In London there is also medihome who charge £195 excluding the intralipids.

    Health Professionals http://www.healthprofessionals.com can apparently give an infusion for about £140 excluding the intralipids and consumables but I don't know if they only cover the London area. The contact name is Michele Jogee and you may have to pay a one off charge for a health and safety assessment. In East london www.theoaksclinic.co.uk do intralipids for £150 including the intralipids and consumables.

    Boundtree medical (www.boundtree.co.uk) has been recommended by at least one lady as being able to supply consumables in small numbers as opposed to other supplies like medisave.co.uk who only supply kits of 50. Intralipids and saline are available from many pharmacies e.g., Rigcharm, Boots, Superdrug, ASDA, but many pharmacies are reluctant to supply single 100ml bags because they can only be ordered from the manufacturer in packs of 10. The alternative is to ask for a prescription for 10 bags of 100ml intralipids so that you buy a whole pack at once and then plan on using the rest for future drips, or ask for a prescription for a 250ml (or even 500ml) bag because those come in singles - although you will have to discard anything unused as it cannot be saved and used for a future drip. 500ml bags of saline are also more commonly supplied than 200ml bags so you may find its easier if you can ask for the prescription to state 200ml, 250ml OR 500ml so you can buy whatever is available. Because of the (very unlikely) chance of a severe allergic reaction, a doctor or nurse giving intralipids will normally carry antihistamines (e.g., piriton tablets) and epinephrine (epi-pen etc).

    If you do arrange an agency nurse, the agency may require you to ensure that that the antihistamines (e.g., 2 ampoules Chlorphenamine/chlorpheniramine (10 mg/mL) 1ml, 2 ampoules of adrenaline 1:1000 (1mg/ml) 0.5ml and 2 ampoules of efcortesol (100mg/ml) 1ml are available, and 6 syringes 1ml & 6 needles, which means asking your doctor for a prescription for these and purchasing them so they are available in case of an emergency.

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    LittleDove  (09-04-2017)

  11. #946
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    Thanks @Beetiesweetie everyone is being so helpful and supporive. My issue is that I cant get the script converted into an English script I have found someone to administer them its so frustrating I am going around in circles 😔

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    Chyna  (11-04-2017)

  13. #947
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    Oh that is so frustrating. So a GP won't do it for you? Or any local fertility clinics? What about private fertility clinics? There is a clinic in Cambridge called 'Bourne' (I think that's how you spell it) maybe google it and give them a call. They were the first place in U.K. to do IVF so they have a long history etc and so I'd say could be potentially quite helpful.

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    No @LittleDove the GP laughed at me and said he cant sign off on domething he has no idea about a lot of fertility specialist clinics are even against it here. I have heard of the 'bourne' clinic but have tried numerous clinics now and most just wont treat non patients and there is a huge wait list to see anyone. I have a hospital who will administer it just no vslid script.

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    Quote Originally Posted by Heyside View Post
    No @LittleDove the GP laughed at me and said he cant sign off on domething he has no idea about a lot of fertility specialist clinics are even against it here. I have heard of the 'bourne' clinic but have tried numerous clinics now and most just wont treat non patients and there is a huge wait list to see anyone. I have a hospital who will administer it just no vslid script.
    That's so frustrating hun. Hooefully someone will woud you a script. How long are you over there for? How are you feeling otherwise ?

  16. #950
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    Have you had any luck yet @Heyside?


 

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