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  1. #81
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    Some good thoughts raised here @Tiny Danza and @lileitak maybe us bubhubbers are not like the general population of ladies going through IVF.

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  3. #82
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    I have found it very interesting this week to see different responses of the show. As I said earlier in the thread Wazza laughed at the show refusing to watch it as he knew what was going to be said, he said it was very one sided. My old clinic has posted a message on fb though saying it was a very good show and then said "we are proud to say we follow evidenced based practice and our results reflect that" so they are using it as an advertising ploy!

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    I was chatting to my mum about the show yesterday. It was interesting talking about it and seeing it from her POV as someone who has not been through IVF herself and who also has a medical background (she's a nurse). She didn't think it was unbalanced, simply that the program was pointing out how unregulated the industry is, and that as a result of there not being stricter guidelines around the use of ART/IVF, dodgy clinics and specialists can exist and flourish and take advantage of vulnerable people who are pinning all their hopes on them and will risk their financial freedom and mental health in hopes of achieving their dream of becoming parents. Whereas I'm looking at it through the lens of someone who has gone down that path and been successful, and lucky enough to not experience (too many) of the negatives so I'm seeing it as them demonising IVF. On reflection, the program didn't say that there weren't good specialists or clinics, or that no one is successful - but because of the lack of proper regulation people need to be careful and that currently there's no real way of knowing if a clinic is reputable due to discrepancies in how they report their success rates etc. And I think I'm more ok with the show now than I was when I first watched it.

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  6. #84
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    Yep, that's what I saw too.
    I think with IVF, the public view is usually a very positive (and misleading) one. It can be a difficult thing to talk about openly, and if you talk about the fears/failures/negatives then you'll inevitable get people trying to 'cheer you up' - saying oh it'll work next time etc. that being the case, the view the general population gets is often either from clinics etc. talking up the treatments, or the view that "oh yeah, those people and that couple and that person he heir kids through IVF". You see the successes; the children born; and that's about it. Now anyone who's been through IVF, or has a realistic view of it knows that isn't the case... But when you're not heavily invested in it, it's easy to only see that side. Unfortunately, most people aren't going to know all the nitty gritty until they're desperately relying on it to fulfill their hopes for parenthood. So whilst couples in the thick of it may have a better understanding, many going into it or thinking that it may be a fallback option in future often don't understand the realities of how difficult the process can be, and that not everyone goes home with a live baby.
    Apart from a few brave people, there isn't really anyone else publicly broadcasting the negatives (and realities) of fertility treatments and fertility clinics to a wide audience. I think it's a very important voice to have out there.

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  8. #85
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    Quote Originally Posted by Tiny Danza View Post
    I think this is a really good point. Bubhubbers doing IVF seem to be a pretty well informed lot - and even newbies who come on asking questions know that there's lots they don't know, and are trying to better educate themselves.

    The Bubhub-population may not necessarily be representative of the general IVF-population though. People have come on here to learn, share and support. Lots of people probably don't do that - and are just guided by what their doctors tell them, and may not know anyone, in real life, or online, who has done IVF too, so have no one to talk to about it, no one to learn from, don't know the questions to ask, etc. Not everyone is a well-informed patient, able to make the best decisions all of the time.
    Great point, I agree we are probably not a good representation of the general IVF population. To start with we are here because we want to learn.

    I was part of a Facebook IVF group and the knowledge and understanding was very different. I left after someone tried to convince me "pregnyl is made from pregnant women's urine".

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  10. #86
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    Default Four Corners tonight - fertility treatments

    Quote Originally Posted by mummymaybe View Post

    I was part of a Facebook IVF group and the knowledge and understanding was very different. I left after someone tried to convince me "pregnyl is made from pregnant women's urine".
    I think you'll find Pregnyl is made using purified compounds derived from urine Last I heard, donated by Dutch women.

    Ovidrel is a recombinant product, so produced in a lab.
    Last edited by clbj; 03-06-2016 at 13:02.

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  12. #87
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    Quote Originally Posted by clbj View Post
    I think you'll find Pregnyl is made using purified compounds derived from urine Last I heard, donated by Dutch women.

    Ovidrel is a recombinant product, so produced in a lab.
    Well there you go! I stand corrected I thought it was made in a lab.

  13. #88
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    Default Four Corners tonight - fertility treatments

    Quote Originally Posted by mummymaybe View Post
    Well there you go! I stand corrected I thought it was made in a lab.
    I only found out because it came up in conversation with a doctor during a Pregnyl shortage a few years ago It was one of those things that was obvious in hindsight, but I kind of wished I didn't know

    There were a few jokes at the time that I was, "taking the p1ss"
    Last edited by clbj; 03-06-2016 at 17:16.

  14. #89
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    Quote Originally Posted by clbj View Post
    I only found out because it came up in conversation with a doctor during a Pregnyl shortage a few years ago It was one of those things that was obvious in hindsight, but I kind of wished I didn't know

    There were a few jokes at the time that I was, "taking the p1ss"
    I'm not sure how I feel knowing that. DH reacted more than I did.


 

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