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  1. #31
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    @babybeeno1 Thank you for the reply - I'm leaning more towards the lap (also having bowel issues so getting it done would be beneficial in other areas) I'm just a big sook about having surgery again (last time was so bad!!) - but different doctor this time, so hopefully not too bad - I really wanted to conceive naturally so might look into a good naturopath after the surgery

  2. #32
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    Quote Originally Posted by amyusa View Post
    @babybeeno1 Thank you for the reply - I'm leaning more towards the lap (also having bowel issues so getting it done would be beneficial in other areas) I'm just a big sook about having surgery again (last time was so bad!!) - but different doctor this time, so hopefully not too bad - I really wanted to conceive naturally so might look into a good naturopath after the surgery
    Your welcome Hun. It can happen naturally that's for sure my new FS is also a gyno and OB so have seen them for everything. Get your DP/DH on male menevit aswell it will make his sperm even healthier. Our bundle DS is 10wks tomorrow something we had given up on as I'm also nearly 40 my DP is 33

  3. #33
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    Hi 👋
    Reading your post it felt like I was reading my own story!
    Sorry I'm so new to this and joined to find someone to talk to. Iv been told by our FS that I most likely have endo. We have been ttc for 18 months. We have a 2 yo DD who took 8 months to conceive naturally.
    Iv never been told I might have Endo. My GP knows my symptoms and mentioned nothing!

    I have painful periods. I can't work for the first day to 2 days. Heavy bleeding, painful painful sex (not ideal when your ttc) always changing bowel movements. Each symptom seems so irrelevant until you put all the pieces together.

    Our FS suggested laperoscopy to investigate. He seems to think it is a lengthy wait on the public wait list for a procedure that will only diagnose. I'm confused I don't know what to do.. put our time and effort into AI or IVF and most likely not succeed because there is the chance of Endo or wait for surgery. Ttc is taking its toll emotionally now. Feeling like it's changing how we view having sex. That it's not about us as a couple making love and showing each other our love, but more about us doing it at the right time to increase our chances of a baby. I don't know that probably sounds weird!

    Sorry for the long post!
    So new to this!

    😖😖

  4. The Following User Says Thank You to Ttc2ndlove For This Useful Post:

    GreenFlower  (07-03-2017)

  5. #34
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    I'm so sorry to hear @Ttc2ndlove. What a frustrating situation.

    From what you say it definitely sounds like endo is very likely. And from your symptoms, it's likely you have quite severe endo (bowel, painful sex).

    What I'd suggest, is that you go have a DIE (deep infiltrating endometriosis) ultrasound done by a trained specialist. This is a normal ultrasound done by a skilled professional who is trained specifically to detect severe endo. See www.safe-endo.com.au for specialists near you. I had 4 ultrasounds that picked up nothing before having one of these. Within minutes of inserting the wand, my surgeon could diagnose me with Stage 4. The ultrasound was so helpful because it confirmed something that was just a suspicion, making the decision to have surgery very easy for me. I would suggest getting this done, then getting a referral to an endo excision specialist surgeon who is highly skilled at operating on endo (cutting it out via excision- the gold standard of endo treatment) and does many of these operations every month. And operates on many patients with Stage 4 including those with bowel or bladder involvement. Many gynos/FS will say they can do it, but they are not usually that skilled, especially when it comes to severe cases, and some use ablation (where they burn it off - and it just grows back). Endo appears in many forms and only the really skilled surgeons can detect and excise (cut out) it all. It's considered more complex than cancer surgery. Your first surgery is the most important to get right. A good surgeon will operate to preserve fertility and get you the best outcome. Which state are you based? I can give you some names of recommended excision surgeons.

    PS - my surgeon worked his magic in May on my Stage 4 "mess" restoring my pelvic anatomy as best he could - everything was fused together in one big mass! Now I'm 13 weeks pregnant with #1, natural conception! Well worth the surgery as I could have gone through many rounds of IVF at a huge cost physically & emotionally. That said, I could have also been lucky with IVF, but the surgery also removed my endo which is a real positive. Severe endo can prevent conception by preventing the egg from getting from the ovary to tube, or preventing it from getting down the tube. They also believe the inflammation it causes makes it a very hostile environment in there for egg, sperm and embryo.

  6. #35
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    Thanks for your reply!
    Congratulations! That makes me so happy to hear your good news story! I bet you are over the moon with excitement!
    Thankyou for the advice! I have found a women's imaging service that specialises in Endo so I think I'll have a look into that some more!!

    Thankyou for your help! I feel like I'm not all on my own 💕

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    GreenFlower  (07-03-2017)

  8. #36
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    You're welcome! It's not easy to find the right path to take so hopefully I've been if help! If you need a shortlist of surgeons in your state, let me know, or I can highly recommend joining the Endometriosis Australia Discussion Group on Facebook where you can get lots of info and recommendations. All the best xx

  9. #37
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    Quote Originally Posted by Ttc2ndlove View Post
    Thanks for your reply!
    Congratulations! That makes me so happy to hear your good news story! I bet you are over the moon with excitement!
    Thankyou for the advice! I have found a women's imaging service that specialises in Endo so I think I'll have a look into that some more!!

    Thankyou for your help! I feel like I'm not all on my own
    Also look into an even more accurate ultrasound, even more accurate than the deep filtration u/s, called the sonovaginography. I'm getting this done next week so I'll let you know how I go.

  10. #38
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    Can someone explain how endo can affect egg quality? My androgen levels (esp the testosterone) are quite low, I don't understand how endometrium tissue that grows outside the endometrium can affect egg quality. Does anyone know?

  11. #39
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    Hi @nightowl, these are often the same thing, sonovaginography is when during the u/s they add additional gel into the vagina to get a more accurate view. Make sure it's a DIE ultrasound first and foremost, which they may or may not do with extra gel. Otherwise, if it's not done by a sonographer trained in detecting DIE, it's just a sonovaginagraphy done by a standard sonographer.

  12. #40
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    Hi @nightowl , One of the most common ways endo affects egg reserves /AMH levels (not necessarily quality) is if there is endometrial-like tissue in the ovaries (quite often endometriomas). Or if the ovaries have sustained damage due to endo or surgery. Are you seeing a very skilled endometriosis excision surgeon? If so, they will have a deeper understanding of how the hormones interact. Plus know how to treat your endo effectively.


 

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