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  1. #31
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    Quote Originally Posted by Tamtam View Post
    No. No one had any idea. In fact now they are still shocked about her diagnosis and how well she is doing. She's a bit of an anomaly in the Smith-lemli-optiz world. Which I'm very blessed for.
    I'm glad she is doing so well!

    I guess I was thinking she was diagnosed later on - but seeing the heart defect and FTT linked ect may have been picked up sooner? ( that's what j meant and was thinking!)

  2. #32
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    Quote Originally Posted by Littlemisshappy View Post
    I'm glad she is doing so well!

    I guess I was thinking she was diagnosed later on - but seeing the heart defect and FTT linked ect may have been picked up sooner? ( that's what j meant and was thinking!)
    Yeah. I see what you were saying. Smith-lemli-optiz is often misdiagnosed as its rare. .not many Dr's are educated about it especially in is mild form too. I know several families who have kids that weren't diagnosed until 4 years or older.

  3. #33
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    She's gorgeous

  4. #34
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    Quote Originally Posted by Nafsika View Post
    She's gorgeous
    Thanks. I think so.

  5. #35
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    Us too! My son was born on the 25th percentile so not always heavy but he slowly dropped down to the 3rd percentile. Thats around the same as when we found he has food allergies and he was at day care and always getting sick

  6. #36
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    Quote Originally Posted by jcjosi View Post
    Us too! My son was born on the 25th percentile so not always heavy but he slowly dropped down to the 3rd percentile. Thats around the same as when we found he has food allergies and he was at day care and always getting sick
    What food allergies? How did you know it was food allergies?

  7. #37
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    Wheat, egg and peanut. He had reactions when such food were introduced and then we went to see an allergist and did a skin prick test and was confirmed. Does your child have allergies?

  8. #38
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    Are there any other products available or just formula?


 

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