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  1. #251
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    Hi. Yes I've contact my FS Assistant and explained to her and have written up an email and sent it through

  2. #252
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    Quote Originally Posted by Muchulu1 View Post
    Good luck! I hope they both get the all clear!

    On another note...I noticed on one of your previous posts you mentioned your going to try an immune protocol for NK cells. Did you have a NK cell test? Biopsy? Did your FS order the investigations or have you had a diff specialist look into it?
    I'm wondering if I've got an immunological thing going on. I'm 5 cycles in & still 'unexplained'. Have had a bunch on tests done & everything suggests we should be able to get pregnant naturally. Anyway, we've been at it for years & no luck. My FS says its just a numbers game & says the best thing for us to do is keep doing ET & wait for a sticky one. I mentioned immunological infertility to him & he kinda shrugged it off. I didn't ask anymore questions at the time but I haven't stopped thinking about it. Sorry for the long post! I suppose I'd just like to know if your FS initiated the immunological investigations & what symptoms/ tests did you have?
    I'm wondering if my FS is just super conservative & maybe I should get a second opinion?

    If I were you I'd get a NK test. Luckily my FS had a degree also in immunology and infertility so he is very open to it. (Many don't believe its effects). He is even going to do intralipids for me (rather than go to Dr M in Sydney for the treatment). You have to be pushy in this game or I would say assertive and always get what you want. If you're not feeling like your FS is going to explore other things then maybe change? I would anyway if it were me. There are many things that effect fertility. Here are some tests you could look at if you haven't already.

    Obviously when you start IVF you have sperm and egg reserves checked. There are a number of other issues that stop IVF working also so if you have had repeatedly had trouble with the embryos not sticking I would make sure you do these tests:

    Embryo genetics test - PNG

    Hysteroscopy- a camera to check lining (can be done while getting eggs collected)

    Dye test to test if tubes blocked and if they are open you can do a Lipiodol flush (I'm going to do next month) Many women fall pregnant after this flush as it clears any inflammation or infections. My FS even said many women go on to conceive naturally after the Lipiodol flush!!!!!

    Blood test for Natural Killer Cells

    And then there are a tonne more that you can do Which I'll post below:

    Ok here is another list of ALL THE TESTS a friend has done over the years:

    AMH
    Semen Analysis (male)
    MTHFR gene mutation
    ANA (anti nuclear antibodies)
    Full Blood Count (haematology)
    Serum Folate
    C-Reactive Protein (good/increased protein levels can assist when trying to conceive)
    Anticardiolipin antibodies
    Lymphocyte Surface Markers (NKC are made up in this, which I understand to be CD56 – blood)
    NKC uterine biopsy to test for CD57 (uterus)
    Factor V Leiden mutation
    Karyotype (male and female)
    IgG, IgA, IgM
    HLA-DQ Alpha 1 (DQA) and DQ Beta 1 (DQB) (this should get tested with male and female to query any mismatch of chromosomes)
    CD21 progesterone (confirms ovulation having taken place – or not)
    Rubella
    Lupus Anticoagulant
    Thyroid Antibodies
    Thyroid Stimulating Hormone (TSH over 2.5 cease taking l-Cartinine)
    Pelvic Ultrasound (pre-IVF check)

  3. The Following 4 Users Say Thank You to Apples1234 For This Useful Post:

    hopefull29  (19-05-2016),lotsathoughts  (20-05-2016),Muchulu1  (19-05-2016),sumteng  (20-05-2016)

  4. #253
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    Quote Originally Posted by Apples1234 View Post
    If I were you I'd get a NK test. Luckily my FS had a degree also in immunology and infertility so he is very open to it. (Many don't believe its effects). He is even going to do intralipids for me (rather than go to Dr M in Sydney for the treatment). You have to be pushy in this game or I would say assertive and always get what you want. If you're not feeling like your FS is going to explore other things then maybe change? I would anyway if it were me. There are many things that effect fertility. Here are some tests you could look at if you haven't already.

    Obviously when you start IVF you have sperm and egg reserves checked. There are a number of other issues that stop IVF working also so if you have had repeatedly had trouble with the embryos not sticking I would make sure you do these tests:

    Embryo genetics test - PNG

    Hysteroscopy- a camera to check lining (can be done while getting eggs collected)

    Dye test to test if tubes blocked and if they are open you can do a Lipiodol flush (I'm going to do next month) Many women fall pregnant after this flush as it clears any inflammation or infections. My FS even said many women go on to conceive naturally after the Lipiodol flush!!!!!

    Blood test for Natural Killer Cells

    And then there are a tonne more that you can do Which I'll post below:

    Ok here is another list of ALL THE TESTS a friend has done over the years:

    AMH
    Semen Analysis (male)
    MTHFR gene mutation
    ANA (anti nuclear antibodies)
    Full Blood Count (haematology)
    Serum Folate
    C-Reactive Protein (good/increased protein levels can assist when trying to conceive)
    Anticardiolipin antibodies
    Lymphocyte Surface Markers (NKC are made up in this, which I understand to be CD56 – blood)
    NKC uterine biopsy to test for CD57 (uterus)
    Factor V Leiden mutation
    Karyotype (male and female)
    IgG, IgA, IgM
    HLA-DQ Alpha 1 (DQA) and DQ Beta 1 (DQB) (this should get tested with male and female to query any mismatch of chromosomes)
    CD21 progesterone (confirms ovulation having taken place – or not)
    Rubella
    Lupus Anticoagulant
    Thyroid Antibodies
    Thyroid Stimulating Hormone (TSH over 2.5 cease taking l-Cartinine)
    Pelvic Ultrasound (pre-IVF check)
    Thanks @Apples1234 so good to know what tests are available. Have done a few on that list but there is clearly lots more that can be done. If I were to change FS i'm not really sure who I'd change to. Im in Perth & all the FS seem pretty conservative :/ I think at this stage i'm best served just being really assertive with my current FS.
    Anyway I'm PUPO atm so I should be taking it easy & thinking positive. Haha easier said than done...the mind does wander.
    Had ET yesterday. Got a pic of our blasty & can't stop looking at it. I think they are so amazing. I still can't believe those little frosties grow into babies.

  5. The Following User Says Thank You to Muchulu1 For This Useful Post:

    lotsathoughts  (20-05-2016)

  6. #254
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    Quote Originally Posted by Muchulu1 View Post
    Thanks @Apples1234 so good to know what tests are available. Have done a few on that list but there is clearly lots more that can be done. If I were to change FS i'm not really sure who I'd change to. Im in Perth & all the FS seem pretty conservative :/ I think at this stage i'm best served just being really assertive with my current FS.
    Anyway I'm PUPO atm so I should be taking it easy & thinking positive. Haha easier said than done...the mind does wander.
    Had ET yesterday. Got a pic of our blasty & can't stop looking at it. I think they are so amazing. I still can't believe those little frosties grow into babies.
    Yep just be insistent then. You're paying. It's your body. But yes relax for now.

    Keep the list in case you need it and to take to your FS. But hopefully you won't. I had a transfer yesterday also! Let's keep in touch. Xx

    ImageUploadedByThe Bub Hub1463661144.281219.jpg

  7. #255
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    Quote Originally Posted by Apples1234 View Post
    Yep just be insistent then. You're paying. It's your body. But yes relax for now.

    Keep the list in case you need it and to take to your FS. But hopefully you won't. I had a transfer yesterday also! Let's keep in touch. Xx

    Attachment 81339
    @Apples1234 thanks again! I'm well armed should we need it next month 👍 Best of luck with your 2WW. Miracles do happen. Will keep you all posted xx

  8. #256
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    Quote Originally Posted by Muchulu1 View Post
    @Apples1234 thanks again! I'm well armed should we need it next month 👍 Best of luck with your 2WW. Miracles do happen. Will keep you all posted xx
    I'll post this better quality, hope u can read. ImageUploadedByThe Bub Hub1463661681.556989.jpg

  9. #257
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    Quote Originally Posted by Apples1234 View Post
    I'll post this better quality, hope u can read. Attachment 81340
    @Apples1234 lipiodol flush looks promising. Just been trawling the Internet to see if Hollywood offer it. Can't see anything online. Will ask the nurse tomorrow when they call with my P4 E2 BT results.

  10. #258
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    Quote Originally Posted by Muchulu1 View Post
    @Apples1234 lipiodol flush looks promising. Just been trawling the Internet to see if Hollywood offer it. Can't see anything online. Will ask the nurse tomorrow when they call with my P4 E2 BT results.
    Yes I'm excited about it and will do it if this cycle doesn't work. But my FS just wrote a referral and I have to go to a radiologist to do it. It's done under xray

  11. #259
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    @hopefull29 - Thanks for the welcome hun, I hope you get a success with your first IVF cycle, have been trying naturally before now or done procedures such as IUI?
    @Evelynmoo - What is your story hun (sorry catching up), how many cycles have you done and what surgeries have you had to have? It sounds like you need a break for a short time to get your head around where you are up to, IVF can be all consuming at times too and sometimes we need to get our head around how we are feeling about everything. Definately go to speak to Warren and see what he's opinion is.
    @Muchulu1 - No hun when I look back we have been through a lot but I think the way we deal with it is just putting our head down and getting on with it, so sad we are in some ways not emotionally linked to this any more as a way of protecting ourselves 😳. We are going to throw everything at this next cycle as we may be drawing near to an end, we are even going to ask about growth hormone which costs a fortune.

    We had done 5 single transfers before moving onto double transfers 3 of which were FET's. My fs, puts everyone on prednisone and clexane as standard treatment (he covers all bases). He has upped my doses of clexane and prednisone this cycle as a way of addressing the nk cells. We had 5 frozen embies from our last fresh cycle with Warren (most we have had) after doing the double transfer back in March with no success he suggested thawing out the remaining 3 to pgd test them but unfortunately one didn't survive thaw and one was under developed to test, so we just tested the one, luckily it came back normal. It has been through a lot though so is at risk of not surviving the second thaw, thats why we are doing a fresh cycle to have a back up plan.

    Some of the procedures @Apples1234 mentioned Warren offers you before you start IVF with him. I had an hystroscopy, lipodal flush and biopsy (scratch) before my cycle in October and I did fall pregnant unfortunately that was my blighted ovum (embryo issue). I had the same procedures repeated last week as he advises they be tedone after 6 months.

    I think you are right to push for more tests if you think you need it, hopefully not though and this cycle will be your success. Congratulations on being PUPO hun hope the tww crazies don't set on.
    @Apples1234 - Hope you get some answers from your email hun it all needs explaining. Your FS sounds very good with his experience in immunological issues too. Congratulations on being PUPO hun hope this is the cycle for you x

    AFM - I can't wait until Monday I finally stop my provera and wait for af and get going again. It's been a long time since cycling for me after waiting for pgd test results and Warren has also been away.

  12. #260
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    @Heyside i had a break while being pregnant from february till april and then i had a month break while i healed from my supposed successful d&c after getting a great AF the best ive had in 2 years i was ready and willing to get back onto the IVF but this is just another kick in the guts. Every time i am finally happy again and ready to move forward i get knocked down again. So im just not going to keep going so that i dont get knocked down again.
    Whatever negative happens to us it seems to double and happen twice for me. Like this d&c was by the best surgeon in australia under ultrasound guidance and so its not his fault the product (lets hope it is even product coz they said it might be a polyp) decided to migrate and relodge somewhere else that the baby hadnt even implanted because my body refused to drain everything. I have a bad heart a bad back a bad digestive system its just culminated into just not having the mental strength to keep going with it all.
    Last edited by Evelynmoo; 20-05-2016 at 09:38.


 

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