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  1. #11
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    Waiting sucks
    No point in telling you not to stress though.
    In fact in one my daughter's heart surgeries they actually created a murmur!! It was so loud you could feel it when you put your hand on her chest!
    Anyway.... keep us posted. Hopefully the cardiologist finds it to be innocent.

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    bpac  (26-07-2016)

  3. #12
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    DD was diagnosed at 2 with a innocent murmur that disappeared but at 6 it returned and we had the ultrasound done and it still looked fine but because it was a recurring one we had to see a specialist and he explained that although DDs is a innocent ones that the fact hers disappears and returns means there is a chance of it reoccurring so she gets ultrasounds done every 18mnths now and it's always been a innocent murmur. If the Dr thought it wasn't a innocent murmur I would assume he would through the refferal so as hard as it is just try and think it's all innocent until it's shown not if that makes sense.

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    bpac  (02-03-2016)

  5. #13
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    Quote Originally Posted by Tamtam View Post
    Waiting sucks
    No point in telling you not to stress though.
    In fact in one my daughter's heart surgeries they actually created a murmur!! It was so loud you could feel it when you put your hand on her chest!
    Anyway.... keep us posted. Hopefully the cardiologist finds it to be innocent.
    Created one! Crap I am so sorry thanks for your reply I will keep you posted.

  6. #14
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    Is the check up or ultra sound or whatever they do scary?

    It's funny but DD is asleep next to me right now and I can't sleep I keep putting my hand on her chest to check her... Gotta stop doing it

  7. #15
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    To check for the murmur was an ultrasound, not scary at all, DS laughed said it tickled, then they turned the screen around for him to watch, he thought it was very interesting.

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    bpac  (03-03-2016)

  9. #16
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    My daughter didn't get an ultrasound for her murmur. They put special wires on her and monitored it for a while.

    I had an ultrasound type thing for my own heart murmur.

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    bpac  (03-03-2016)

  11. #17
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    My daughter has regular cardiac checkups. They usually do
    Ecg - stickies with wires to measure rhythym. Not scary.
    Echo - ultrasound of the heart. Not scary.
    SATS - probe on finger or toe to measure oxygen. Not scary.
    Blood pressure - actually DD hates this with a passion! Lol
    I don't know if they'll do all those things. .. also listen with a stethoscope.
    Take an iPad / dvd to watch. Though some kids hospitals have ABC4KIDS on monitors for a distractions. If your daughter isn't used to doctors a bit of role play to help before will likely make it better.
    Ps. Wear shorts/top or skirt and top..not dress! Otherwise she'll have to take her whole dress off!

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  13. #18
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    DD loves the ultrasounds she gets because she finds the part where they turn it to all different colours fascinating plus she says its tickles

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    bpac  (03-03-2016),Tamtam  (03-03-2016)

  15. #19
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    The only downside with the ultrasound is they have to lay very still while it's done.

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    bpac  (03-03-2016)

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    The testing isn't invasive and the cardiologists are pretty good with keeping kids happy and comfortable

    Heart murmurs can be pretty easy to miss, so it wouldn't be uncommon to not have it picked up sooner, especially if your dd hasn't really needed close monitoring or anything. My dd was being checked several times a day and hers wasn't picked up for over a week. It was actually the third paed to check her during one round that picked it up.

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    bpac  (03-03-2016)


 

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