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  1. #41
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    Crashing from the SA thread. For @Sunshine14...the active form of folate.

    http://www.iherb.com/Life-Extension-...gie-Tabs/63828

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  3. #42
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    Do you only take that type if you have those issues? I am just taking the megafol stuff is that ok?

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    @sunshine: In addition to blood thinners during treatment, for MTHFR homozygous, folic acid (5mg), B6 (20-50mg) and B12 (0.05-1mg) are usually prescribed (for MTHFR heterozygous, most ladies take at least 800mcg of folic acid but not necessarily the whole 5mg dose indicated for homozygous MTHFR and not necessarily extra B6 and B12. B6 and B12 absorption can also be impaired with the MTHFR mutation which is why supplementation with B6 and B12 is often suggested as well as folic acid. Bear in mind that B12 deficiency is high among vegetarians and B6 and B12 deficiency are sometimes implicated in luteal phase deficit. MTHFR causes problems in absorbing/using folic acid, so sometimes even a 5mg dose may result in deficient blood levels. Methyl folate (e.g., solgar methylfolate or femibion containing methylfolate) may be much more absorbable but is more expensive.
    Copied from the immunes thread on ff
    Last edited by stacey10; 26-01-2016 at 19:37.

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  6. #44
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    @Tegs if you don't have the mthfr gene normal folic acid and dosage is all you need to take

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  8. #45
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    @Stacey thanks again!!

    I was just wondering when I had my blood tests done with Wazza my TSH came back high so he told me to speak to local gp so I went in they did another test now it's come back within the normal range at 2.5.

    I sent this to Anna and she is still asking if I am going to go see an endocrinologist which will mean a referral to Perth but the gp here that gave me the results said everything is all fine.

    Just wondering should I go back and speak to the gp and get a referral? I am confused and with the distances and specialists only being in Perth I need to do some arranging

    hmmm so much to think about even when you think it is right

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    @sunshine my girls friend has the double mthfr gene mutation and she was on megafol 5 mg @Tegs it's within normal range if your not ttc, but it should be under 2, ideally most ivf doctors like it to be around 1 for conception, at least under 2, mine was at 2.8 and I went on thyroxine and it was around 1 when I went to zlin, do you think your Dr would prescribe it for you or you could put that on your list of meds for wazza!!

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  11. #47
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    Quote Originally Posted by Sunshine14 View Post
    Happy Australia Day!

    Does anyone on here have any experience with MTHFR or Factor 5 mutations? I was just diagnosed having homozygous MTHFR and heterozygous Factor 5. I've been reading all about treatment and precautions and have come across totally contradictory advice. One says stop all folic acid, and the other says increase folic acid. I'm already on high dose clexane and prednisone but just wondering if anyone else has had this and what advice you were provided?

    Tegs, I'm glad to hear your results came back all ok
    I have the MTHFR gene and have been advised to stop folic acid but to take methyl folate if that helps. I have to avoid folic acid in all foods which is hard to do but I am trying.

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  13. #48
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    @Stacey ah ok I didn't realise that I just listened to the gp I will have to speak to the gp and wazza

    Don't think it will be a problem to get that sorted though

  14. #49
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    @sunshine the other stuff is called folinic acid @Tegs maybe you could tell your dr that the clinic would like you on a low dose of thyroxine as they would like to see it down near 1, he might prescribe it for you then
    Last edited by stacey10; 27-01-2016 at 10:36.

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  16. #50
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    Thank you so much everyone for all of your help with my MTHFR question! I really really appreciate all of your help. I am on the 5mg folic acid now and have an appointment to check this is ok with my fertility specialist tomorrow. I'll let you all know. I'll ask about the folonic acid because it sounds that would be better. Thank you all again.

    Tegs, I am on thyroxine. I got my gp to write me a referral to an endocrinologist in Brisbane because my thyroid antibodies were really high (like in the 500's) but tsh, t3 and t4 levels were all ok. After research and confirming with my endocrinologist I saw this can increase miscarriage rates. My endocrinologist has put me on thyroxine 5 times per week as my tsh levels were still ok but it just deminishes that antibody miscarriage risk.
    Last edited by Sunshine14; 27-01-2016 at 17:53.


 

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