We are currently 20 weeks with our first Bub and have found out at morph scan that baby significant heart issues, overriding aorta, ventricular septum deviation and likely hyperplastic left heart. We will he having further tests next week including an echo, amniocentesis and appointments with a paediatric cardiologist.
I was hoping somebody might have some insight into this stuff. @Tamtam am I right in remembering your daughter has cardiac issues?
+ Reply to Thread
Results 1 to 10 of 20
09-01-2016 11:57 #1
Abnormal morph scan.
09-01-2016 12:21 #2Senior Member
- Join Date
- Jan 2012
No experience but sending huge hugs xx
The Following User Says Thank You to Olive Oil For This Useful Post:
09-01-2016 12:59 #3
I have no personal experience but HeartKids runs a helpline that could probably give you information and support or link you with someone who has had a child with similar conditions.
Good luck and hugs x
The Following User Says Thank You to NoteToSelf For This Useful Post:
09-01-2016 14:29 #4
Hi. you remember correctly. My little girl has hypoplastic right heart and a few other bits and bobs.
What an awful shock for you. I remember that morph scan news like it was yesterday. Sending big hugs.
Are you being referred to lady cilento. ...
Feel free to pm me if you want to chat.
How are you holding up over the weekend?
The Following User Says Thank You to Tamtam For This Useful Post:
09-01-2016 15:15 #5Senior Member
- Join Date
- Apr 2012
Hey hon, no experience with heart issues but my darling boy had severe growth and skeletal issues that didn't appear until the morph scan so I know what it feels like to get bad news at the scan where everyone thinks nothing ever goes wrong.
I really feel for you. My only advice is to make sure you're happy with your medical team - both their medical expertise and ability to communicate effectively with you.
09-01-2016 15:35 #6
@Sally1981 thank you, we have a wonderful team and luckily our ob delivers that the mater so we don't need to change. I agree I truly thought we were fine and although a little nervous didn't think we would find anything.
@Tamtam thanks lovely. We have been referred to Dr Alex Gooi and will see him at mater than bub will go to lady cilento after he is born. It sounds like he is the go to guy for these little kids.
The hardest thing is just not knowing how serious things are it sounds like the vsd and overriding aorta can be easily fixed but the hyperplastic stuff sounds pretty grim.
09-01-2016 15:47 #7
We love Dr Gooi.... We had him all throughout our pregnancy through the Mater, and we actually went privately with the birth and Dr Bretz at Arrivals delivered my little girl. He was so good with my heightened anxiety and I would cry nearly every check up as we got closer. We were getting growth scans and heart scans constantly.
Do you mean hypoplastic? Where the left side is undersize and not growing? That's what my daughter has on the right side. I have several friends who have kiddos with hypoplastic left, they are rambunctious thriving kids... There is a lot of hope. My advice? Read and research the internet for stories but remember there are always lots of stories of hope, with many difficult journeys, and that Dr Google is not always the best source of information, BUT is super helpful in learning stuff.
I pretty much read every single blog and page I could find online! My daughter has had the 2 of the 3 surgeries they do for kids with underdeveloped ventricles, but her first was not the norwood, which is the usual course of action with HLHS.
Anyway, don't get too ahead of yourself until you see Alex, if you haven't seen him already, he talks fast! Take a notebook, don't be afraid to stop and ask questions. He'll have his lovely cardiac nurse with him usually - her name is Karen and she is just lovely and very caring and supportive.
Not sure what else to say, I'm here... check in when you need to. IF you want to read about our story please check out my daughter's facebook page (I heart baby love...) or our blog which I can't really link. but it's a wordpress site - all one word ' iheartbabylove'....
You'd have to go back to the start to read from pregnancy! I've been writing it for over 3 years so it's a bit long.
I've rambled long enough.... but please don't hesitate to chat/vent/pm me...ask anything.
09-01-2016 19:46 #8
Yes sorry hypoplastic, my bad. Thanks so much I'll pop over and check out your blog now.
09-01-2016 20:31 #9
13-01-2016 09:38 #10
By Freyamum in forum General depression and bluesReplies: 7Last Post: 02-04-2015, 14:51
By LifeInShadesOfGrey in forum Pregnancy & Birth General ChatReplies: 5Last Post: 26-03-2015, 18:39
By kellijh in forum Pregnancy & Birth General ChatReplies: 8Last Post: 09-01-2015, 13:13
Pea Pods Reusable NappiesPea Pods are the smart choice when it comes to choosing what's best for you, your baby and the environment. Affordable ...
LATESTToilet training: when is the best time to start?Why it is OK for your child to be differentWhat is a blessing way? How is it different to a baby shower?
POPULARWhen can I start giving chores to my children?New baby nursery checklist – a guide to newborn essentialsWhat to pack for labour and hospital – a checklist
FORUMS - chatting now ...
IVF babies due Sep/Oct/Nov 2017pregnancy and babies through IVF
Dr Antony Lighten - Appreciation threadpregnancy and babies through IVF
I am... #20General Chat
ongoing chat threadGeneral Chat
Same sex parents or parents to be chat!Same Sex Parents
Am I the only thread killer??General Chat