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  1. #431
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    Quote Originally Posted by monnie24 View Post
    @Ahalfadozen are you okay? I'm just seeing the other thread. Please know your a great mum. If I could be half the mum you are I would be thrilled. U are doing a fantastic job. Ds wears pink clothes every day he is almost three. I don't know if I question now or I go hmm ok he wants to be like his sis. So I'm letting it go for now and not asking questions. Plus I dress him so maybe I damage him in my tight budget.
    Funny enough, that other thread is about my NT 6yo son. I just left it. I hated feeling like I was a bad parent for my decision to try and engage my son rather than tiptoe around him. Turns out my damaging interrogation worked though because he opened up to me, has his own Dora undies now and apparently knows he can come to me with difficult questions because I will always talk to him and ask him how he is feeling and why he does things. He knows I'm interested and take him seriously

    Quote Originally Posted by White Mage View Post
    ENQ - Educational Needs Questionnaire.
    It is a meeting with your school of choice and a member of the education/disability field in the government.
    You rank your child's abilities in all fields. Talking about their worse day. Backed by reports and such from your specialists.
    Your results are then taken to government. They 'discuss' your results and reports and then give you a level of funding which will be given to the school to assist your child in anyway they need it. Mainly an aid or any equipment they need. Level 5 and 6 is generally incredibly hard to get unless your child is wheelchair bound or tube fed. So level 4 generally is the highest a child with asd could hope to get. As a level 4 is enough for a full time aid.
    There is more.. But to qualify for the ENQ, your child needs an IQ below 70 in order to be successful.
    Is that the WPPSI test? My sons psychologist is able to do it she says but I have to talk to the school to see if they have already organised one. The principal is feeling a bit lost with some of it I think. First principal gig and first special needs child so she's not sure what's needed for him at this stage regarding funding etc. The school already has an aid, I think because of the large Aboriginal percentage, we are classed as an Aboriginal school and are entitled to an aid for that. She has said that she will likely get this aid to do some one-on-one with him regardless of funding. My son has already met and likes her.

    Quote Originally Posted by peacefulmamatribe View Post
    hi guys! I have 2 autistic girls- miss Z who is 7 and has asd, adhd and spd and Miss E who is 2 and has global development delay and spd and suspected asd.
    Welcome

    Quote Originally Posted by Mod-Degrassi View Post
    Poor DS fell off his skateboard at the park and grazed his knee - cue huge meltdown

    He really lost the plot. He was clinging to me for dear life and it was near impossible to strap him into the car seat as he didn't want to let go of me.

    I feel bad for dressing him in shorts instead of jeans (which protect his knees a bit more).

    He insisted on having his jeans on as soon as he got home. No way will he let me look at or clean the graze, so I hope it's okay under that denim. *sigh*
    Oh I know that feeling I hope he is feeling better and there is minimal grazing. Don't be so hard on yourself!! If you had have put him in jeans it probably would have been too hot or they would have caught on something. You've been dealt an endless supply of no-win situations. Try to think of the good things.

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  3. #432
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    Mini vent time.

    MIL called my mobile this morning - made some small talk, then I offered for her to speak with DH. She talks to DH for a few minutes then goes.

    DH tells me that MIL told him according to a 'new study', ASD has been linked to maternal allergies. I'm allergic to eggs. So I guess I must have caused DS's Autism, right? FFS.

    Also I had a pretty hard time with DS at a Birthday party today - I could tell he wanted to pee but he refused to go ALL DAY as he didn't want to pull his jeans down (because of his grazed knee). He held it in for hours until we got home. It just kept me on edge and added to the usual difficulties of having an ASD child at a crowded party.

    All in all, a pretty sh!t weekend

  4. #433
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    Wppsi is actually a report used towards an enq. Along with Vineland and a few other stuff.
    Every thing helps. @Ahalfdozen

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    @White Mage
    What's Vineland?

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    Quote Originally Posted by Ahalfdozen View Post
    @White Mage
    What's Vineland?
    It is another type of test that is filled out by their teacher and parent. It's an observation type report.
    Because DS2 couldn't sit the cognitive test with the psychologist, she used the Vineland to help her figure out his IQ.

    http://www.come-over.to/FAS/VinelandTest.htm

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    I'm really struggling mentally at home with kids.

    My dd doesn't want to know me because I'm always doing stuff with DS EG melt downs correcting behaviour Etc yesterday she told me she didn't like me. I was heartbroken. I just don't want to be a mum anymore

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    Quote Originally Posted by monnie24 View Post
    I'm really struggling mentally at home with kids.

    My dd doesn't want to know me because I'm always doing stuff with DS EG melt downs correcting behaviour Etc yesterday she told me she didn't like me. I was heartbroken. I just don't want to be a mum anymore
    Hugs Monnie, it's tough

    I grew up with a brother who has an intellectual disability and my mum was constantly spending time with him attending therapies and appointments - I used to feel jealous of the attention my brother would get. Once I told my poor mum that she must love my brother more than me because she spends so much more time with him I really didn't mean it, but it hurt my poor mum who was just trying to do her best.

    As your DD gets older, she will realise why her brother needs extra help. In the meantime, I guess just try and make sure she gets some individual time with you too. Play a game with her, have a tea party, engage in something she likes. Don't be too hard on yourself, hang in there xxx

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    We saw the paed today and now have the additional diagnosis of ADHD.

    We're not starting on meds yet though. We'll see how he goes in the first two terms of primary school next year. He says it's likely that he WILL end up on Ritalin down the track, but he said it's better to wait until he's a bit older due to possible side effects. There may not be an immediate need for medication because he'll be so well supported at school, but I think we'll know when it's time to start.

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    That's a very great way to approach it Degrassi.

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    Quote Originally Posted by Mod-Degrassi View Post
    Hugs Monnie, it's tough

    I grew up with a brother who has an intellectual disability and my mum was constantly spending time with him attending therapies and appointments - I used to feel jealous of the attention my brother would get. Once I told my poor mum that she must love my brother more than me because she spends so much more time with him I really didn't mean it, but it hurt my poor mum who was just trying to do her best.

    As your DD gets older, she will realise why her brother needs extra help. In the meantime, I guess just try and make sure she gets some individual time with you too. Play a game with her, have a tea party, engage in something she likes. Don't be too hard on yourself, hang in there xxx
    Thanks Degrassi my brother has Down syndrome so I have also been the side kick to a special needs. I just feel like I'm failing that I can't spread myself.

    What are everyone's age gaps? My kids are only ten months. I'm worried how ds will cope when dd goes to school as he only socialises with her.


 

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