My dh is not willing to look at Ds1 or Ds2 being asd either. It takes men a bit longer to settle in to the rules for a special needs child. Ds2 is almost 3. Non verbal and sensory. I'm happy to chat though I'm in NZ so can't really help with the funding or support as ours is different.
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11-11-2015 18:36 #11
11-11-2015 19:19 #12Junior Member
- Join Date
- Oct 2015
12-11-2015 14:29 #13
Welcome Leettie. Always nice to meet new mums.
Husbands seem to take it so much more personally and well sometimes it takes longer to accept.
Well I do have a bit going on here at the moment and once everything has been settled I will share more.
17-11-2015 13:17 #14
@Leettieb Welcome. I hope your DH starts to acknowledge and come to terms with the diagnosis soon. We also had our DD's diagnosis this year and although it wasn't a shock, it has certainly taken a while to start processing it (especially emotionally). How are you coping?
17-11-2015 13:24 #15
We had our genetics appt last week where it was confirmed that DD has over 40 genes missing from one of her chromosomes. It's a big enough deletion that it's likely it is the underlying reason for her ASD symptoms, though a majority of the missing genes have an unknown function. DH and I aren't carriers so the likelihood of it happening again is very small. However, DD has a 50% chance of passing it on to any kids she has so obviously we will need to discuss this with her when she is older. I am so glad we went ahead with the testing, because it obviously has potential to impact DD's family planning in the future.
27-11-2015 09:14 #16
How is everyone going?
Last night we had DS's preschool Xmas party/disco for preschool and it was a bit of a reality check seeing how different DS is to his peers
He's starting primary school in 2017 and I just don't know if he'll be capable of being in a main****** class, even with an aid. It's quite daunting.
We'll have to start looking into schools come the start of next year. I've just sent a request to join a local facebook ASD parents support group - hopefully it'll be a good resource. I feel like we need to get to know some other ASD parents IRL who we can exchange knowledge and common ground with.
27-11-2015 14:03 #17
Hi all, I am still waiting for the official diagnoses (needs to be signed off by paed), but the clinical psych seems to think my son (6yrs) has ASD. High functioning.
He has been diagnosed with ADHD by 2 paeds that said 'No' to Autism. He has receptive language delay and often doesn't know what to do in class. He is at the standard for reading, maths and writing (however he writing needs improving).
He has very limited imaginative play, poor problem solving skills and doesn't engage in conversion very well. This makes it difficult for him to make friends and often he plays along side his peers rather than with them. He loves to be social, doesn't know how though.
He is medicated with a low dose of Ritalin at school to help with his impulsivity.
Last edited by 2BlueBirds; 27-11-2015 at 14:06.
27-11-2015 15:44 #18
Degrassi - 1yr is 1yr of great improvement, between now and when your DS starts school he maybe a very different kid, and you will still feel a little nervous, but he may surprise you and be totally fine!
2BB's - Sounds very much like my DS1 but around the other way, Autism first, ADHD second. Things will improve now that you have that diagnosis. It will.
Life has been a little crazy recently.
DS1 has 1 more day of Orientation next week after 7 days of transition and orientation. The frequency of our visits to the school has helped heaps.
AS Ds1 is entering a main****** school next year, I am nervous. BUT now that I know who his teacher is, I am pretty positive next year could be a great year. She is a very good fit for him I think. The class is pretty small too at 18 children.
We are still waiting to hear from the Department of Education about the ENQ results. We were told 9th of Dec so fingers still firmly crossed for that.
DS1's preschool christmas concert is in 2 more weeks. Followed by a special dress breakup party, then they finish on the 18th. I can't believe how quickly that has just flown honestly.
DS2 well, been a little bit more complicated as of late. We have been searching and discussing intensive therapy options to no avail, money (24k!) and accessibility has been an issue, and for the longest time I felt we totally failed him.. honestly. But my keyworker at my ECIS had a chat with one of the Special Developmental schools about their ECIS program and they have a spot for DS2 if I want it, and it means they will provide transportation for him to come and go there. Fits in between his preschool days. It will be a long week for him. BUT he will get a lot out of it. I am hoping anyway.
The school will be sending out their enrollment forms and my keyworker will be working on the transfer between ECIS programs. I am very relieved, and this will be the best and only option for him.
I also will be taking DS2 into preschool next week for his own little orientation for an hour. It will be good for him.
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30-11-2015 19:25 #19Junior Member
- Join Date
- Oct 2015
Anyone got any tips for toilet training? My 2.9 year old is possibly going to be held back at daycare because they don't have nappy change in the next room.
He isn't interested in toilet. If we leave his nappy off he cries and asks for 'nappy on!!'
30-11-2015 19:30 #20
If they are not willing to find a way that works so he can bum change maybe time for a different day care..
Saying that my almost 4yr old is still in the little toddler room. He was meant to be in the 3yr old pre-kinder group. But he has more then just toilet issues..
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