DD is home today with a 'sore knee'. She struggles to explain pain (where it is/what kind of pain) so I am not sure what happened. All I know is that she was awake for hours in pain last night despite regular panadol/neurofen, and is barely weight baring on it this morning. She is actually pointing to her thigh rather than her knee, so I don't think it's a joint issue. Anyone else's kids struggle to explain why they are in pain?
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15-02-2016 09:24 #91
15-02-2016 10:51 #92
A similar thing happened with DS last year - he came limping out of his bedroom in the morning and had tears in his eyes. We had to take him to get an x-ray just to be on the safe side because we had no clue what he actually did (we can only assume he got out of bed awkwardly and hurt himself). There was no visible damage and he was walking normally again after about a week.
DS came home from preschool with a graze about the size of a 5 cent piece on his elbow last week. He couldn't tell me what happened but I asked him if he fell and he said 'yes'. No other details!
I hope your DD's pain eases soon.
15-02-2016 11:06 #93
I have both boys home sick and Mr 8 is horrible at what hurts.
It has taken the doctor a whole week of tests to find out. But we have to. He can't tell us.
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15-02-2016 11:19 #94
15-02-2016 11:23 #95
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Sookie Stackedhouse (15-02-2016)
20-02-2016 03:11 #96
I have been staring at this screen for the last hour and a half. I don't even know where to start or what I really want to say. I'm just not in a good place right now. I don't know if I can do this. DS has had so many meltdowns or tantrums lately I just feel like I can't even cope. He just screams and throws things and pushing things over, he doesn't play with any purpose it's like it's just to make a mess. I can't even do activities with him at the moment because he just makes a big mess of it for his brothers as well and ruins what they are doing. He won't listen to me, he doesn't stop. I don't even know what to do anymore. My head is just so clouded that I can't even think straight. I am forgetting simple things, i am leaving keys in the car, I am forgetting appointments, I just feel like I'm drowning, I told someone the other day that I cry every day... Their response was "no you don't"... Well I do but ok if you say I don't I must not. No one cares that I am not coping, I told my mother that I am at breaking point, I can't cope and she just told
Me I'm a good mother... Not really what I need to hear coz I don't feel like I am, I asked DH to stay home from work on Monday because I didn't think I was coping and he couldn't, wouldn't, I don't know which but either way I felt like I wasn't supported. I am so tired but I can't sleep. I just lay there with my eyes closed and nothing. I feel like I can't breath sometimes. The only peace I get is when he is asleep and that is only ever a few hours at a time. And this week he has been waking crying for 30minutes to an hour. I don't even know what's going on with him. This is the worst he has ever been and I can't work out why. He has been going to kinder and he hasn't even been crying when I leave. He just happily lets me go. Not that that is a bad thing. They say he mostly has a good day but then at home he is harder than normal. Maybe it's just me, maybe he hates me. No one is happy here and I feel broken.
Sorry I don't know where else to go no one wants to hear about it and I just need to vent.
20-02-2016 07:18 #97
You need to get yourself sorted then you might find your boy gets a bit better. Mr 3 is my warning light. If he starts getting like you have said then I know I'm missing something. It's usually that I am stressed out and need a break. But last time it was that I felt like no one had my back. I forgot to demand respect from my dh and he forgot that I am a person not a machine.
Talk to your specialist and see if it's something that they can help with other than that hit your dh up for a date. A day off. A spa visit. You time.
I did get very broken last time. It can get better but you have to put your for down.
Good luck and we are always here.
20-02-2016 15:37 #98Senior Member
- Join Date
- Nov 2014
Hi everyone I probably should have joined this thread before but only just noticed it today.
My DS has Aspergers, as dose DH and I suspect my oldest and middle daughter if not on the spectrum defiantly have many traits.
Life is very hard for us ATM and I to feel like I am drowning and cry everyday too.
it seems we all have issues. Normally I can hold it all together and we muddle threw things however I have been battling with postnatal depression and it seems the wheels have fallen off big time.
i just don't know how much more I can take.
DD1 has been suffering majorly with Social anxiety and an eating disorder. She has only just gone back to school on Thursday just gone after missing the last 6 weeks of school last year.
My DH has major issues ATM with his loss of vision and the world not making any sence to him anymore, displaying dementure like symptoms, but this is a whole other story.
I thought DS was chugging along ok but been back at school has caused him major issues. As combined with All the stress we have at home already he is not coping. DS works really hard at functioning in the school community and wishes for it not to be known amoungsts the students about his Aspergers. The teachers oftern fall in to the trap of forgetting his condition And I swear if one more teacher tells me he is perfectly normal when he has had been diagnosed by multiple profesionals after extensive testing I am going to snap lol. Like I said he works hard to appear functional. (I have chosen to take the word normal out of my vocabulary as really what is normal I prefer to use functional instead) but looses it when he gets home.
Anyway we met with his new teacher and acting pricipal on Wednesday because he is not sleeping and having episodes kinda like melt down but different (that he can't remember) in the middle of the night and says school is too much, life is too much, he has no friends ect.
The meeting went ok they always do but it seems that we meet with them they talk the talk than they don't really implement what was discussed. Some cognitive training with the school phycologist was offered (why after 6 years in the school system we are been offered this for the first time is beyond me). We have done lot with him privately.
Anyway he had his first session on Thursday and the school phycologist rang me because she was very concerned for him and so am I. What was ment to be cognitive training session turned into a lot more. He really opened up to her (he normally doesn't talk to anyone professional about things so this is good). Basically the phycologist told me he is suicidal and he has a plan that he would not say so she advised me to hide all the knives and sharp items and that he needs to see someone (doctor/psychiatrist) urgently.
Well I started to unload a bit to her about everything is happening in our lives right now and my DS had told her all the same things. I knew my DS was having a tough time that is why we went to the school asking for extra help and support for him and We had already initiated a referral to a physiatrist. As bad as things are for DS this is the first time anyone from the school has ever rung me of their own accord to talk about my son and the challenges he faces daily.
I felt like giving her a big kiss omg finally just having it validated from someone at the school that my son is facing real challenges each day, instead of been told he is normal all the time, it feels like such a relief to finally be taken seriously. My family all live interstate but I don't get any support from them my step father and mother even blame my DH.
Last edited by Skye Baby; 20-02-2016 at 18:35.
22-02-2016 10:57 #99
Has your DS just started kinder this year? I know that they can seem like they are coping well (separating easily, having fun, behaving at kinder) but holding it together there is so effortful that it all falls apart at home. DD LOVED kinder last year and there were no issues at all while at kinder, but she had a serious, long bout of anxiety when she started there which made home life really challenging. It's actually what prompted us to get a diagnosis for her. Your DS' behaviour definitely seems like an indication that something is going on - now to try and figure out what! Are you linked in with therapists (OT/speech/psych) that could help you try and figure out what's impacting him?
22-02-2016 11:03 #100
Welcome @Skye Baby
I am sorry to hear things are difficult at your place too at the moment. It sounds like you have LOTS to try and cope with, which must be so draining and challenging. Especially while trying to deal with a PND diagnosis yourself.
How old are your kids? I have a 5 year old DD (higher functioning ASD) and a NT 3 year old.
It's a great sign that your DS opened up to the school psych (though must be really scary and hard for you to hear that he has been having suicidal thoughts) - hopefully it will be the start of some extra understanding and support from the school. It makes me so frustrated and angry to hear so many horror stories about lack of support at schools for kids with ASD. How soon can you get him in to see a psychiatrist?
How is your DD1 going now she has returned to school?
The symptoms your DH is having sound scary - has he seen a neurologist?
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