Can anyone please chat with me about your experiences with childhood leukaemia? My 2yo DD was admitted to Lady Cilento hospital in Brisbane yesterday and diagnosed with leukaemia found via blood tests - her only symptom was that she stopped weight bearing.
We are currently waiting to find out what type of leukaemia she has.
Anyone willing to share their story or experiences would be so greatly appreciated.
I'm not sure what to expect, how processes of treatment works, I don't even know how to coordinate my own life now. We live 5 hours from Brisbane but both DH and myself are here with her. Luckily she is currently an only child so I don't have to juggle other children to look after.
Thank you x
+ Reply to Thread
Results 1 to 10 of 61
01-11-2015 13:57 #1
01-11-2015 14:18 #2
Agree with the above. Also @Hollywood may be able to be of some support. Her DD is in the process of chemo and I'm sure can offer some insight into tips and tricks she has learnt along the way.
I would also ask to speak to a social worker. They can help you find subsidized accommodation near the hospital so the financial burden isn't as great. On the upside, south bank is only a short walk away so you can take her out for some fresh air and a play if you're allowed to escape the hospital environment. Friends of mine who have had their kids admitted there have only had positive stories. I hope for your and your DDs sake that it isn't a "bad" leukaemia and she doesn't get too sick from all the drugs.
01-11-2015 14:34 #3
I don't have any advice, I just wanted to send you all some big hugs. That is news no parent wants to hear. Will be thinking of you xx
01-11-2015 14:40 #4
No advice just thinking of you x
01-11-2015 15:11 #5
Plus ask the nurse about the social worker. They can help you with parking stuff. ..short term accommodation etc. If you have any questions about places to stay please ask. Eg. Reg Leonard house is just behind the Mater. Small (not fancy) self contained units that are subsidized through the Patient travel scheme. They are a good place to be for rest/sleep and day leave etc. (There are other options too).
I'm so sorry you're daughter has been diagnosed. You are in great hands with the doctors there.
01-11-2015 15:16 #6Senior Member
- Join Date
- Aug 2012
I'm so sorry to hear this. I think there's a Ronald McDonald house close to Lady Cilento, perhaps if you contact them they could help with temporary accommodation.
01-11-2015 16:05 #7
No personal experience, but I do know that the leukaemia kids can be in hospital for a month at a time.
Thinking of you. I hope everything is okay.
Last edited by SSecret Squirrel; 01-11-2015 at 16:43.
01-11-2015 16:38 #8Senior Member
- Join Date
- Feb 2012
- Brisbane North
Im so sorry to hear this, thinking of you.
01-11-2015 16:43 #9
Thank you so much guys, I just want to let you know that the replies are helping and I will re-read them properly again soon once DD goes to bed and I have some down time.
And to any future posters, throw that advice my way.
The Following User Says Thank You to alexis243 For This Useful Post:
01-11-2015 17:33 #10
No advice, hugs thinking of you. xx
By deku in forum Movies / Music / Books / TV ChatReplies: 40Last Post: 05-05-2015, 12:46
By Tamtam in forum General Child Health IssuesReplies: 7Last Post: 01-02-2015, 19:58
By LotusMum in forum Dry Skin and EczemaReplies: 8Last Post: 10-11-2014, 16:43
GymbaROOGymbaROO offers activities for babies & toddlers in a fun learning centre, focussing on developmental education. ...
LATESTToilet training: when is the best time to start?Why it is OK for your child to be differentWhat is a blessing way? How is it different to a baby shower?
POPULARWhen can I start giving chores to my children?New baby nursery checklist – a guide to newborn essentialsWhat to pack for labour and hospital – a checklist
FORUMS - chatting now ...
Situations - ok or not ok?General Parenting Tips, Advice & Chat
Maternity Leave- HELP ME UNDERSTAND!General Chat
IVF babies due Sep/Oct/Nov 2017pregnancy and babies through IVF
2.5yo hitting/pushing (possible ASD)Discipline & behaviour
The Not So Serious Vent Thread #7General Chat
Am I the only thread killer??General Chat
Horrible Baby Names #2Choosing Baby Names
any one else get a bfp after laparoscopy?Endometriosis Chat