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  1. #1
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    Default Childhood leukaemia

    Hi,

    Can anyone please chat with me about your experiences with childhood leukaemia? My 2yo DD was admitted to Lady Cilento hospital in Brisbane yesterday and diagnosed with leukaemia found via blood tests - her only symptom was that she stopped weight bearing.
    We are currently waiting to find out what type of leukaemia she has.

    Anyone willing to share their story or experiences would be so greatly appreciated.
    I'm not sure what to expect, how processes of treatment works, I don't even know how to coordinate my own life now. We live 5 hours from Brisbane but both DH and myself are here with her. Luckily she is currently an only child so I don't have to juggle other children to look after.


    Thank you x

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    Agree with the above. Also @Hollywood may be able to be of some support. Her DD is in the process of chemo and I'm sure can offer some insight into tips and tricks she has learnt along the way.

    I would also ask to speak to a social worker. They can help you find subsidized accommodation near the hospital so the financial burden isn't as great. On the upside, south bank is only a short walk away so you can take her out for some fresh air and a play if you're allowed to escape the hospital environment. Friends of mine who have had their kids admitted there have only had positive stories. I hope for your and your DDs sake that it isn't a "bad" leukaemia and she doesn't get too sick from all the drugs.

  3. #3
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    I don't have any advice, I just wanted to send you all some big hugs. That is news no parent wants to hear. Will be thinking of you xx

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    No advice just thinking of you x

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    Quote Originally Posted by meredithgrey View Post
    Can I suggest getting in touch with the Leukemia Foundation as well as speaking to your daughters nurses and doctors. They should be able to answer all of your questions about treatments and what to expect etc

    There should also be a social worker available to help you with other thing.

    There's also a Facebook page calling "breaking down barriers for rural patients" - it's a local Brisbane lady that helps out families that are transferred to Brisbane for medical care.

    Have a chat to the other parents in the ward as well
    Yes. Her name is Justine. She'll be very helpful if you need anything at LCCH. I'm there quite a lot with my daughter. If you need anything please don't hesitate to ask.
    Plus ask the nurse about the social worker. They can help you with parking stuff. ..short term accommodation etc. If you have any questions about places to stay please ask. Eg. Reg Leonard house is just behind the Mater. Small (not fancy) self contained units that are subsidized through the Patient travel scheme. They are a good place to be for rest/sleep and day leave etc. (There are other options too).
    I'm so sorry you're daughter has been diagnosed. You are in great hands with the doctors there.

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    I'm so sorry to hear this. I think there's a Ronald McDonald house close to Lady Cilento, perhaps if you contact them they could help with temporary accommodation.

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    No personal experience, but I do know that the leukaemia kids can be in hospital for a month at a time.

    Thinking of you. I hope everything is okay.
    Last edited by SSecret Squirrel; 01-11-2015 at 17:43.

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    Im so sorry to hear this, thinking of you.

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    Thank you so much guys, I just want to let you know that the replies are helping and I will re-read them properly again soon once DD goes to bed and I have some down time.
    And to any future posters, throw that advice my way.

    Xx

  10. The Following User Says Thank You to alexis243 For This Useful Post:

    TheGooch  (01-11-2015)

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    No advice, hugs thinking of you. xx


 

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