Just checking in to see how DD is coping with this round, this round seems to be better than the first nightmare round.
The farm sounds amazing and really really something to look forward to!
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10-09-2015 08:25 #351
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11-09-2015 09:21 #352
She's doing a bit better this time. Her appetite is dropping off, but I suggested at the consultation last week that we have a nasogastric tube put in and they did that on Wednesday when she was under GA getting a lumbar puncture. Last night she refused to eat dinner as well as not eating much for lunch earlier in the day, so we were at least able to give her a high calorie formula feed. I didn't want a repeat of last time when she lost a lot of weight from hardly eating for the best part of two weeks. She dipped below the healthy weight range on the chart and was so skinny.
She gained a little bit of weight back in the week before this round as she got better so hopefully we can maintain that now. I really feel that not eating contributed to her feeling so sick.
Anyway so I feel better about this round but if we end up back in hospital after we go home, like last time, then so be it. At least we're on top of the nutrition side of things.
11-09-2015 09:58 #353
Oh Hollywood I've just caught up, I'm so sorry your DD is going through this, she sounds so brave though! Congrats on the farm, that's so exciting! I really hope each round of chemo gets a little easier.
I can't imagine how you must be feeling watching her go through this but try and look after yourself too. Hugest hugs xx
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16-09-2015 18:49 #354
How are you guys going? x x
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16-09-2015 19:30 #355
The Following 14 Users Say Thank You to Hollywood For This Useful Post:
3bubbys (16-09-2015),Anndrosa (16-09-2015),Californication (02-10-2015),CazHazKidz (16-09-2015),Cue (16-09-2015),HearMeRoar (16-09-2015),Kcspack (17-09-2015),misskittyfantastico (16-09-2015),MissMuppet (01-10-2015),Mokeybear (16-09-2015),PomPoms (17-09-2015),stella marie (17-09-2015),SuperGranny (17-09-2015),Wise Enough (16-09-2015)
17-09-2015 12:31 #356
Gah! I spoke too soon! Her temperature went up to 38° last night so I had to take her to the ED. We will be in for a few days. So disappointed
17-09-2015 13:14 #357Senior Member
- Join Date
- Dec 2005
Oh bum I'm sorry to hear that you're back in hospital. It must be such a rollercoaster for you all.
Sending lots of love to you all and hoping you can bust out of the hospital ASAP xxx
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17-09-2015 13:35 #358
Oh damn. Hope she improves quickly. Xx
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17-09-2015 14:43 #359
I've read this thread a few times, but haven't known what to say. You and your daughter are often in my thoughts, trying to send good vibes your way.
I hope your daughter improves quickly and that you get to take her home again soon. Fingers crossed that future rounds go more smoothly.
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01-10-2015 10:23 #360
I hope things are going ok with your daughter. ?? my prayers are with you, hugs, marie.
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