Wow what a shock you have all had! But your instincts in taking her to the hospital and the reaction of the medical staff, amazing!
I hope your ride is as smooth as possible and your DD continues to respond so well to the treatment. Look after yourself too as much as possible I can't imagine how surreal this must all be
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15-08-2015 09:29 #301
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18-08-2015 22:02 #302
Just checking in, how's it all going, how is DD and just as importantly you?
18-08-2015 22:24 #303
She is doing pretty well. Today was day two of her first round of chemo, each round being five days in a row. Her issues at the moment are that she's a bit up and down with her food intake and she just isn't eating enough in my opinion. The trouble is you just can't make a three year old eat something they don't want to.
Plus she has diarrhoea so the poor thing is probably not getting all the goodness of what she is eating. Hydration isn't an issue as they've got her on continuous IV fluids.
I'm coping ok, but seriously this is going to be a long, exhausting 6+ months. DD has such a strong spirit though, she manages to pick herself back up each time she gets knocked about a bit. She had a rough day with chemo yesterday but was bright as a button later in the evening and due to sleeping through a lot of the chemo (5.5 hours of it yesterday), she was still up at midnight!
I've lost a bit of weight in the last two weeks....a few people have commented now. I guess we all react differently to stress, my thing is that I don't eat properly and the stress itself seems to chew up energy. On that note I think I'll go make myself a hot chocolate
18-08-2015 22:54 #304
She sounds like she is coping so well, it's so good to hear it. When you think about how quickly her life has changed, it's truly amazing.
How is your son, lots of changes for him too.
A close friend went through cancer treatment with her son, he was a little bit younger than your DD when he was diagnosed, it's gruelling and life changing, make sure you are taking care of your basic needs, sleeping and eating. It's so draining.
You guys are always in my thoughts
18-08-2015 23:09 #305
Thank you xx
DS is doing ok, he's very sweet with DD, strokes her on the forehead randomly and gives her cuddles (he's 8). He is naturally worried, but I think that seeing us be so positive about her outcome helps put his mind at ease.
19-08-2015 09:37 #306
I am glad to hear your updates. this will be such a life changing time for all your family. I will continue to pray for you all, sending you much love. marie.
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21-08-2015 21:05 #307
Had a chat with my boss today, and we both agreed that under the circumstances it's best if I resign. That way there's no pressure for me to go back after a particular timeframe and he can find a permanent replacement. However he said to call if I'm still living in the area when the time comes to go back to work as he will see if there's a position he can put me in, even if my rental reception role isn't vacant at the time. Apparently they all really miss me there and didn't realise what a good job I did until a temp tried to step in and couldn't handle it.
I have offered to help train a new person if they need help, as I could get my mum to look after DD for a day here and there in between treatments. My boss is very happy with that idea.
DD has officially finished her first week of full on chemo. We hopefully go home tomorrow. Then, all going well it will be two weeks until it all starts again. DD is doing ok, was a bit flat this afternoon but I think it might have been due to the anaesthetic for the lumbar puncture she had this morning. She had a big long nap so she's up watching a DVD now. So far no major physical issues other than decreased appetite. She's up and down with energy levels. We both can't wait to go home.
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21-08-2015 21:16 #308
It's sad about your job Hollywood, it always seemed like you liked it and we're happy to be working, I know things have changed and it's just another change for you that I am sorry for.
Congrats that your little girl has finished her first round, bet you are just so pleased to be going home !!
22-08-2015 05:38 #309
One round done. How many more to go? We will count them down with you xx
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22-08-2015 07:26 #310
Sorry to hear about your job but at least it's one less thing to worry about.
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