To answer your question, yes they will be putting in a central line which will remain there for about 6 months.
She's having a good day today, she's up and about doing laps of the ward in the toy cars and practically running along pushing her drip thingy. They've started her on chemo and steroids which has brought back her appetite, thankfully. She's a bit skinny so I'm hoping she can put a bit of weight on so that she has a buffer for times when she gets sick with treatment.
A social worker talked to me on Friday before the diagnosis and she said she would be back on Monday once we had a clearer idea of what's going on. The path we go down with the social worker is dependent on the diagnosis.
Looks like I may possibly be taking the next 6 months off work. In fairness to my boss and for the wellbeing of DD it's probably the only option. We don't want to risk sending her to daycare on and off.
Thanks again for all the well wishes xx
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Results 251 to 260 of 467
09-08-2015 15:11 #251
09-08-2015 21:07 #252
I'm so sorry you didn't receive better news. Big hugs to you and ur family and ur precious dd. I hope she copes OK with her treatment. Thinking of you 😔
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09-08-2015 21:51 #253
Thinking of you, your dd and your family xx
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09-08-2015 22:28 #254
Thinking of you and your family
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10-08-2015 11:22 #255
just want to add my thoughts and prayers are with you and your darling daughter, I hope the treatment is not too harsh. im sure you are under a good management team. maybe a journal will help you process all the emotions you will be having to deal with. my love and prayers are with you all. marie.
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11-08-2015 11:23 #256
Just checking in to say things are going well with DD. She has just come up from surgery where she had another lumbar puncture today. She has been coping well with the anaesthetics which is good because she's having another procedure tomorrow (PET scan, she's too little to stay still that long) and her central line is being put in on Thursday.
I'm glad she is getting the central line put in because she absolutely loathes all the blood tests and medicine that has to be put in via the canulars.
Thank you all again for the lovely messages xx
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11-08-2015 11:33 #257
What a brave little trooper.
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11-08-2015 11:52 #258Senior Member
- Join Date
- Sep 2009
I'm so glad FOB is coming home early. Has he arrived yet? Hopefully it might mean you can have a bit of a break from the hospital if you want/need it. Good luck with all the scans and the central line - will be nice not to have all the needles.
The Following User Says Thank You to amyd For This Useful Post:
11-08-2015 13:07 #259
Hugs Hollywood. What an awful discovery for you guys, but it sounds like you have a great team looking after you.
Will be thinking of you and your DD xx
The Following User Says Thank You to Californication For This Useful Post:
11-08-2015 13:45 #260
I've only just seen this thread, I'm so sorry you're having to go through all this, but thank goodness you found it early and treatment is underway. Good work mummy!
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