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  1. #11
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    I would think about what you want the dr's to do. Do you want them to prescribe some stronger painkillers? I think they probably aren't doing this because it is a bit of a slippery slope of escalating doses and before you know it you are dependant on some very addictive drugs.
    If it is muscular, it's not likely that any sort of surgery would help (correct me if I'm wrong here), but maybe physiotherapy would help.
    I think they probably aren't helping you as there isn't a lot they can do to "cure" your pain, they can treat the symptoms with pain killers, but there are other consequences of going down that route.
    Hugs though, I'm sure I couldn't live with that sort of pain day to day, and I'm sorry that you haven't found a dr that you feel is listening to you.

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  3. #12
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    Default How can i get the doctors to take my pain seriously?

    Have they tested you for autoimmune diseases that can cause neck pain ie. Rheumatoid arthritis, ankylosing spondylitis, lupus etc.

    Normally they start with blood tests for inflammation markers and immune markers. You might need a referral to a rheumatologist if your GP doesn't want to do them. Lots of these things get missed or overlooked when people are young and it's important to investigate it. These conditions don't always show up in scans either as they come and go all the time. And they also often get worse with physio chiro etc.

    Hope this helps!

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  5. #13
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    Sounds like the GP is doing all they can, really.
    All they can do is prescribe painkillers if they cannot find anything wrong.

    They can give you a referral, but you need to ask for it and know what it is you want. E.g. If you want to see a physio, you google physios in your area, pick one and ask your GP for a referral to them.

    As for all the stuff you have tried, with most of those things the pain gets worse before it gets better... I don't know how long you tried them for, so some might be worth trying for 2-3 months before giving up.

  6. #14
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    Quote Originally Posted by heartstringz View Post
    Problem is its not short term use. Nothing seems to make it better so id have to take nurofen daily to the max dosage to get any relief. Which im not keen to do.

    Ive seen numerous physios. None of them could help me. It maybe helped for a day but thats it. Mostly didnt even do that, just gave me an even worse headache.
    I have used physio for back pain (although it isn't chronic). I sometimes find with physio or remedial massage that it can be worse after the first appointment. I generally find that I go a couple of times in the first week, it's usually better by the end of the week. Have you tried regular appointments or are you just doing one off appointments and then stopping because you don't feel better after the first one?

  7. #15
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    OP I have had chronic back pain for years. Valium and norofen plus ( has codeine in it) worked fantastically!Bad combination for long term use and definitely for breastfeeding though!
    I have also tried most of the therapists out there with no real benefit (I saw a musculoskeletal skeletal therapist without a referral btw)
    The only thing which has been of real benefit to me is practising mindfulness. In a nutshell, it is about being continually aware of the full range of our experiences, including our (very real and very strong) pain, and accepting it as part of who we are. Sound wanky? Yep, I thought so too! But it honestly does help. The pain is not gone, but I am now living with it in an accepting manner.
    All I'm going to do is recommend a really good author if you want to explore further. His name is Jon Kabat Zinn .... He's kind of the father of modern mindfulness meditation/practise. It may be something useful for you, it may not. Just another option to consider!

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  9. #16
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    Excited1 no-one has ever tested for anything like that. I didn't know they were possible causes so i will definitely look into that some more.

    I went to physio for months. It didn't help, it was just a waste of money. I went so often that i maxed out my private health & i was having to pay the full cost & still not getting anything out of it.

    Busybee, they gave me various stretches, which i still do, but no-one seems to know what this issue is.

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    My brother is going through the same problem and has been suffering for almost 3 years. He has been to neurologists, had every test done multiple times and still no result. The only thing they can put it down to is nerve damage but can't say 100% if that's actually what it is.

    I really hope you can get some answers as it is the hardest thing watching someone go through this pain and I'm sure it's horrible going through it.

  11. #18
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    Quote Originally Posted by DT75 View Post
    They can give you a referral, but you need to ask for it and know what it is you want. E.g. If you want to see a physio, you google physios in your area, pick one and ask your GP for a referral to
    Ive asked.

    I went to the gp a while back and explicitly asked for a referral to a particular chronic pain specialist that id found on google. The gp's response was 'oh you dont need that, you just have a headache'.

    I just can't get them to listen. I went to a different gp who just said it was my sport causing the problem & that it would get better when i quit my sport. I took a break from my sport for a few months & it made no difference.

    I went to another gp & explained the problem & said explicitly that i was trying to get pregnant (this was before i had ds) so he handed me a script for strong drugs which are contraindicated during pregnancy... so i just kept on suffering through & never picked up that script

    Not to mention the specialist who said 'im not really sure what is wrong, but i can do surgery anyway'

    I dont know why they wont listen
    Last edited by heartstringz; 03-08-2015 at 19:50.

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    Honestly I doubt a GP will be much use and if it were me I'd look into alternative therapies.

    I've mentioned before on here Feldenkratz. It's brilliant. I had a bad car accident when I was in my early 20s and suffered chronic neck pain for years after. No one could help until I saw a Feldenkratz practitioner. A few sessions later and it was gone. Probably saw her between 6 and 8 times total.

    I also second trying mindfulness. It's incredibly effective for overcoming pain.

    Good luck.

  13. #20
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    Is there any chance it could be migraines? I went through so many tests on my neck over the years all showing nothing wrong, physio, chiro ... Only to discover it was migraines!


 

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