Has anyone's DS had to have surgery for u descended testes?
Ds2 is 18 months and his haven't come down, when he's warm and in the bath, they come down, but 90% of the time they are up.
We had an ultrasound yesterday which confirmed this, and today the paediatrician has rung me saying he will most likely need surgery.
Has anyone else's DS had the surgery and what does it entail? Is it necessary and what's the recovery etc like?
I'm a bit stressed about it, after all he's already been through 😢
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24-07-2015 14:38 #1
Surgery for testes which haven't descended.
24-07-2015 15:02 #2
Yes, we've been through it, and at around the same age.
I was terrified and anxious at the thought of surgery, but it was so much easier than I'd anticipated. DS was booked in for surgery mid morning and he had to fast from about midnight (I think, it was a long time ago now). They had a great play room set up at the hospital so once we were there it was fairly easy to distract him with toys while we waited. When they called us in, the dr and the anaesthetist came and had a chat with us. DH took DS in (as I just couldn't) and was there while they put him under. They used a mask at first to put him to sleep. He was distressed for a mere moment and then he was asleep. Then we waited in a special waiting room and after a while, not long at all, the nurse collected us and took us to him in recovery.
He was very distressed waking up due as a side effect of the anaesthetic, and that was difficult. But it passed quickly and then he slept for about 4 hours in my arms. Once he woke up he was happy, they fed him, and then we got to go home.
Recovery was fine, no issues. He was in pain the first couple of nights but panadol was all that was needed.
It was not fun, of course, and its not something I'd want to go through again, but it was also a lot less scary and challenging than I'd expected and if we must endure something like that again I know that we could cope just fine. In terms of surgery for children its a fairly quick, straightforward one and low risk.
As for is it necessary? We were told that if we didn't surgically correct it then it can cause infertility and hormone problems. Not doing it was pretty much not an option.
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24-07-2015 17:21 #3Senior Member
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- Mar 2009
My DS1 has this problem at that age, the paediatrician said to come back when he was 6 if it was still happening. He is 6 now and they seem to be down all the time, so we don't need surgery now.
24-07-2015 17:41 #4
DS2 (7 in Oct) will be getting his done in the next couple of weeks. Just waiting on word from the hosp. One thing I am worried about is that the surgeon when describing the procedure to me said 'local anesthetic' not general. DS2 doesn't do blood (faints) and the mere thought of having this procedure is freaking him out. Hopefully she just said the wrong thing..
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24-07-2015 18:43 #5
Gah, typed out a long response & now it seems to have been lost ill start again...
Ds had surgery last month at 8.5mths old. Different scenario for us as his left side was not palpable at all so early intervention is necessary
We were first up on the list so I only had to fast him from 5am. I was extremely anxious about it as I have bad reactions to GA's but he faired much better than I expected. They gave him the gas to put him to sleep then I quickly passed him over to the doctors and they took it from there with drips/catheters/spinal. He thrashed around right as he was about to drop off to sleep which I wasn't expecting so ill warn you of that just in case
He was under for an hour and was quite disoriented when he came out of the ga. He settled quickly with a bf though but remained quite groggy for the remainder of the day. We were discharged 4hrs after he woke up
Pain wise they ensured he was topped up with panadol/nurofen before the spinal block they gave him wore off so he didn't have a lapse of pain relief. I dosed him on schedule with panadol/nurofen for a few days since he couldn't tell me how he was feeling but had him off everything completely by the Sunday (surgery was a Thursday). He seemed to bounce back to his usual self quickly though
There needs to be no pressure on the area for at least 2wks so no hip carrying/using carrier/riding bikes etc. This was a struggle for me as I baby wear a lot and being so young he is carried everywhere
PP mentioned issues with hormones/infertility it they remain undescended - our specialist also mentioned an increased risk of testicular cancer in later life
Thankfully we had a better than expected outcome so he shouldn't require a 2nd surgery which we were expecting for his situation
good luck with it
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24-07-2015 20:29 #6Senior Member
- Join Date
- Apr 2013
Hi, ladies, sorry not much help in term of the surgery. All I want to say is to get your son the surgery as early as possible if they have undescended/retractile testes. I know it is a horrible and painful thing to let them go through the surgery at such a young age but it is for their future.
My DH was born with retractile testes. The Dr said that they would descend by themselves. Unfortunately, it didn't at the age of 3. MIL trusted the Dr and waited for the surgery until he was old enough. He had them operated at the age of 7. DH is now infertile. He is diagnosed with azoospermia -- zero sperm count. He went through the ordeal of having another surgery in the hope of finding sperms in his testes so we can have a biological baby. Unfortunately, we have to go down the donor path after the hope and heartache.
I don't want to scare you all off. I just want to put it out there. Hopefully, whoever comes across this thread would do something about it with their son diagnosis as soon as possible. Research suggests the ideal time to have the surgery in hope of preserving fertility is before the age of 2.
Edit: I read some men with his condition and fixed later in life only have low count. We are just extremely unlucky.
Last edited by bbhope; 24-07-2015 at 20:33.
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25-07-2015 06:20 #7
Thanks for all the replies everyone.
Is the surgery like keyhole surgery or is it a bigger cut?
Also DS has gone under anaesthetic already, a few week ago actually he was really sick and in hospital for 4 nights and they didn't know what was wrong with him so he had to have an MRI and lumbar puncture, so I have experience with him being under. It was pretty **** I'd prefer he didn't have to have this done, but then I also don't want him to suffer later in life.
They are ringing me on Monday about it.
25-07-2015 07:12 #8
Both my boys had this surgery last year. DS1 was not quite 3 & DS2 was 1 and a bit. We had them both done on the same day.
It was a day procedure. We were booked in first up in the morning so had to be at the hospital early (I think they try and do this with kids as they have to fast so makes it easier if most of their fasting time is while they are still asleep).
It was a general anaesthetic so they were asleep for the whole thing. We got to go in and hold them while they put the gas mask on and they fell asleep (I went with DS2 and hubby went with DS1). Then once they were asleep we went back to the waiting room and were called into recovery as they were waking up.
dS2 fought the mask a little and both myself and our doctor had to hold him while the anaesthetist did his thing. I was warned that kids sometimes do this so had prepared myself. Hubby says DS1 was a lot better. We bought him a book about going to hospital and having surgery so he had a better understanding (DS2 wasn't really old enough to grasp it) which really helped.
DS2 woke up quite delirious after the surgery and was extremely upset and aggressive. He was screaming so much and thrashing around so this was really the awful part for me. I was sitting on the bed trying to hold him, but one of the nurses had to keep taking him from me as it was exhausting. They weren't sure if he was in pain or not, so gave him some morphine and he did start to calm down enough that I could hold him and rock him. He then fell back asleep and when he woke again he was much happier.
DS1 woke just a little upset and asking for us. Hubby had him on his lap and he went back to sleep for quite a while.
Once they were both awake we did have to stay another hour or 2 so the nurses could monitor them. Lots of water and icy poles in recovery.
We were home around lunch time and just had a quiet afternoon. The incisions were quite small and had dissolvable stitches. We were just told to give Panadol as required.
To be honest it didn't seem to bother either of them. They were back rough housing and running around the next day. I was amazed! Kids are so resilient!!!
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25-07-2015 07:13 #9
Feel free to pm me if you have more questions. Happy to answer if I can help x
25-07-2015 07:57 #10
It was a laparoscopic procedureso Ds has 2 small incisions which were stitched with dissolving stitches. One right on his groin line where they found his testi sitting and the other on his scrotum. Doesn't sound pleasant and dh did a lot of wincing seeing it but they are both only tiny. The one in his groin I have to really look to see already
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