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  1. #11
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    Hmm i think I got mine burnt away...

  2. #12
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    You definitely need a specialist who does excision not burning it away. Check out ecca.com.au. The names listed there for vic are the common ones I hear great things about.
    The fb group is called endometriosis Australia discussion group. Even if you don't ask questions on there, you'll still find heaps of great info.

  3. The Following User Says Thank You to bluehawaii For This Useful Post:

    Skyler  (14-07-2015)

  4. #13
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    Quote Originally Posted by muzzy View Post
    Hi everyone, so I have endometriosis and have been lucky enough to have 3 surgeries because of it! My past surgery was a year an half ago and last few months i have been having pain during my period, as in sharp stabbing pains so i went back to my gp and she is referring me back to my fertility specialist, and looks like more surgery :-(
    We have been ttc for 5 years and its very depressing, i am just wondering if there are any other endo "warriors" that have been through a few surgeries and have successfully fallen pregnant? I am wondering if i want to go through the surgery again as im worried if i am making it worse??
    Hope there is others out there that can help!
    :-)
    Hi Muzzy

    I guess I am a success story (of sorts)
    I had two endo surgeries (resect). I did 6 IVF cycles during that time without success. I changed FS who then recommended any further resect surgery be done by a specialist who deals with uterine cancer surgeries because they have a 'finer more precise technique that causes less damage).
    During the process we found however that my eggs were no longer viable (all the years of endo -over 20 - had ruined them). We moved to Donor egg and on our 2nd cycle got our BFP. We are now 25 weeks with twins 😊

  5. #14
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    Hi Muzzy, can I suggest seeing specialist who also looks into immune issues? I can recommend an excellent one in VIC if you want to PM me. Significant number of endo patients will also have inflammation & activated NK cells that will need suppression via steroids, aspirin, intralipids, clexane. In meantime, high dose fish oil (at least 720mg EPA) & 1000mg Vitamin E helps inflammation & 600mg CQ10 helps egg quality. There is also a secret FB group (won't show on your profile at all) with a plethora of helpful & knowledgable members I can recommend. All the best!

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    Blinky76  (14-07-2015)

  7. #15
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    Quote Originally Posted by Riaki View Post
    Hi Muzzy, can I suggest seeing specialist who also looks into immune issues? I can recommend an excellent one in VIC if you want to PM me. Significant number of endo patients will also have inflammation & activated NK cells that will need suppression via steroids, aspirin, intralipids, clexane. In meantime, high dose fish oil (at least 720mg EPA) & 1000mg Vitamin E helps inflammation & 600mg CQ10 helps egg quality. There is also a secret FB group (won't show on your profile at all) with a plethora of helpful & knowledgable members I can recommend. All the best!
    I'd second this suggestion. I completely believe that the immune protocol was what helped us get our BFP. If it wasn't for our second opinion doctor we would have never known about it all

  8. #16
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    Default Gusman

    Hi, just wondering who your second opinion dr was?

  9. #17
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    Quote Originally Posted by Gusman View Post
    Hi, just wondering who your second opinion dr was?
    The infamous 'Wazza' here in Brisvegas.
    (Dr Warren De Ambrosis)
    He has a very long waiting list but if you put your name on his cancellation list you will get in to see him much sooner.
    Of late he has also been working with Dr Charlotte Mooring (I think he is mentoring her).
    If you get in to see her it will happen much quicker and if needed she consults with Wazza for her harder cases anyway.

  10. #18
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    Hi

    I'm on this journey also. I have been through three endo surgeries over the last few years.... I'm booked into see Warren this week! We have been trying to fall pregnant for the past year and have suffered 4 miscarriages - not sure if it's to do with my endo history or not but just trying to get some answers!!

  11. #19
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    Hi Blinky76,
    Just out of curiosity who did your last endo surgery?

  12. #20
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    A friend of mine had very severe endo, she had lots of trouble conceiving with a few failed IVF attempts. She went to Genea and went on a course of medication (I think it was over 3 months) which is supposed to suppress the endo. She then fell pregnant naturally. It might be worth contacting Genea and getting more info. I don't have all the details sorry.

    I had mild endo and fell pregnant after surgery.


 

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