@freakedout44 I am sort of in the same boat as you. Been trying for 3 and a half years for baby number one. It took 4 natural losses for me to finally go and see a reproductive immunologist about my immune issues. He found the same thing - dq alpha match, high nk cells. Also decided to start ivf, even though I can get pregnant without it, so I could time all my immune meds properly. A very expensive venture, especially when it fails. I got my embryos cgh tested to avoid any chromosomal issues. My first fet on the immune protocol a few weeks ago was negative and will be trying again in about a week, so not too long after you. Fingers crossed for both of us. We will get there eventually!
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28-06-2015 21:13 #21
28-06-2015 21:49 #22
Anyone still trying for Bub number one after multiple failed cycles
@Caesardust - I'd love the info too if possible
@DJ Nette - wow 8 years... I'm so glad you stuck it out and got your beautiful baby in the end. I look forward to reading your blog - thanks for sharing. Obviously the desire to be a mum kept you going, but how did you push through when you felt like giving up?
@BB77 - sorry to hear of your losses. All the best for your transfer, fingers and toes crossed for a BFP for each of us.
28-06-2015 22:01 #23
@DJ Nette - I just read your amazing story! (And I'm bawling!)
What an incredible story - a real miracle little girl you have!!!
You and your husband are so courageous, to get yourself through such a roller coaster journey. You should be super proud of the family you've created.
29-06-2015 18:20 #24
We havent really got much reason yet as to why we dont have a baby... All testing has lead to nothing, just a lot of bad luck. Even had biopsy this year and negative for NKC... the only thing close to an answer is Lyn B our new FS did the MTHFR test and i have a mutation...
We've had over 6months off trying to recoup from last year and the anxiety of finding out we'd been "had" by someone we trusted whom we thought was an expert in this field.... (court case... i'm not really ready to talk about it too open yet)
So was really hoping this last frosty transfer would be successful, but nope... more bad luck. Going back to Lyn B next month to discuss a new stim cycle, i've only ever done one.
29-06-2015 18:23 #25
29-06-2015 18:29 #26
My husband is my rock, and he keeps telling me we are going to win..
Most days I believe it.
29-06-2015 19:26 #27
I've heard great things about Lyn, and Monash seem to really be up there with their facilities (we did our last and are doing our current cycle with them).
Hopefully the new diagnosis' and change of clinic/specialist will be the key to success for you really soon.
I'm not familiar with the MTHFR test (though, who knows with all the tests I've had I may have been in there somewhere!) - what does it involve (sorry for all the questions, please don't feel like you have to answer, I just try to arm myself with as much info as I can, in case it's something that could help us and also so I can have a better understanding about what other ladies are going through).
I'm really sorry about your court case. I hope you can put that behind you soon and move on to getting your healthy BFP! As if this process isn't stressful enough without having to contend with that extra stress.
29-06-2015 19:37 #28
I've had the mthfr test too and I have 2 mutations. My naturopath swears that knowing this means she can counterbalance issues with specific vitamins. This is because if you have the mutation your body can process folic acid. You need a different type of folate. When I mentioned it to the fs he said he didn't really believe in it but agreed that he would put my on baby aspirin during the next cycle to avoid clotting which is what the mutation can cause. So I don't know if it has helped knowing yet but I know when I found out and started googling I started freaking out! Read about it with caution. The fs said if you tested every gene you would always find things wrong but they don't work in isolation so it's hard to give symptoms to just one if that makes sense.
29-06-2015 20:27 #29
29-06-2015 20:38 #30
Yep @Caesardust is right... very simply put its to do with how you absorb folic acid, vitamin b vitamins... I had never heard of it either @freakedout44 after all this time, its frustrating to learn new things!
Anyway after Lyn found out i had a mutation i went to a naturopath to have her explain it more, Lyn is quite progressive obviously testing for it but from what i had read just upping folic acid was not the answer. Basically means if you have the mutation you cant absorb folic acid ( i had no idea it was a synthetic vitamin?!) ... so Ive been on a special pre natal vitamin that has proper folate, thats activated and absorbed better, and extra folate. Having the MTHFR mutations is linked to mutliple miscarriage, DVT (thickerblood), depression, anxiety, ALL of these things i've had/have.
So after all this time, could it be down to bloody vitamins?!?! who knows... but happy to finally have an answer if it is...
This most recent FET i was on clexane, aspirin, steroids as well as all the new vitamins aswell.. another reason my hopes were so high, but maybe i just havent been on them long enough.
Please dont worry about asking questions, ask away!! the more we can learn and share the better...
By Kit84 in forum IVFReplies: 9Last Post: 02-03-2015, 16:19
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