@cheifsgirl ouwch!! it looks like you've been bitten by a giant redback
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23-06-2015 12:01 #221
23-06-2015 12:05 #222
I know! But it's 4 injections of dh's blood! Well the white blood cells anyway! Better blo$dy work too $1100 a pop and none of it covered by Medicare or phi.
It's to get my body used to my dh's DNa so when the embryo gets put in my body won't go on the offensive and kill it!
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23-06-2015 12:19 #223
23-06-2015 12:36 #224
Jesus chiefs girl!maybe get onto the melatonin to help with sleep, I'm the same before a Donor cycle, up til all hours worrying and stressing - I got a script from my gp and its not compound only anymore so you can get it at the chemist (still about $40 though) you can take it up to bfp. X
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23-06-2015 12:54 #225Senior Member
- Join Date
- Sep 2013
Grr bubhub annoys me who I get logged out while I am typing messages and lose them all the time!!!
Thanks everyone for your thoughts it brings me to tears
It has been quite an ordeal but really uneventful? as nothing can be concluded from scan excep confusion...I think its just the lead up..and the feeling as we were driving down the highway that I was driving to some kind of doom that has made me so tired
Get this...Nuchal was 2mm, nasal bone seen!!! no abnormalities found on the Nuchal scan...all very average...aged risk is 1:38...but look at this
ADJUSTED RISK IN STANDARD SCREENING...THAT IS PAPP-A + HCG + AGE + Nuchal Scan is 1:675 what the hell do you make of that...they said their cutoff is 1:300 there are so many people who decide not to do invasive testing based on this standard screening...yeh I know always got to be someone who is 1...i well know that experience...but still...something is OFFF...contradictory..I wonder what the cutoff is for the NIPS for Anueploidy Detected
Dr Carmody was referring to a new study and paper released that he is doing a talk on soon about the NIPS tests and the "false positives" the study was of 18000+ women who have had the tests and seemingly the false positives even for T21 are much higher than .3%. He gave me a copy of the paper as I am not convinced and so far what I read was...average age of women in study was 31...so it means more of the women were under 35 than above..and they kept referring to that magic number 35 all the time so they need to do research on just those above as I have read plenty of places where it says these tests are best for high risk women anyway for a number of reasons...I am going to remain negative..I have to for protection and I know that the Nuchal scans are limited in their ability to detect and such...
FISH results due for CVS at earliest after lunch tomorrow but probably hopefully late in the afternoon...I hope I dont need to wait till next day.
As for the CVS dont know if you guys have had one but I definately felt him digging around in there and it wasnt pleasant...but I didnt cry...having said that I have been through 5 EPU without general aneasthetic including one 2 months after ectopic rupture so not sure I am a weakling either...I would say...very uncomfortable to the point of pain and I wasnt even looking. Straight after felt strong period like pains all over including strong in my back (placenta is posterior which might explain that) the odd stabbing pain...they told me that was completely normal
The scan...was wonderful? bittersweet? DH said he was not going to look, and I was thinking that but I had to I did not want to regret not seeing him...not sure if we were worried he would have a missing head or worried he would not have anything wrong and it would make everything so much more difficult....once I said he has a head and I could see both hemispheres of his brain all in tact DH was able to look, we saw everything...2 legs, 2 arms, bladder, brain, heart, umbilical cord all appear perfect, we saw a little 3D image of him face planted into the placenta and she had to wiggle the wand thing around on my tummy to get him to turn his head so we could see nasal bone. I could not get over how much he was moving...like constant dog paddling and flailing...was expecting for him to be floating like a seahorse/spaceman ...he was 5.8cm Crown to Rump so not including legs...how can that be in there flailing and me not feel it? Yeh its small but still not small in the scheme of foreign objects in your body
Anyway dont know what to make of it all...there is nothing much more to be said except it might be interest to someone who reads this to see what Aneuploidy Detected on NIPS vs 1:670 on standard screening turns out to be...
Dr Carmody says twighlight sedation...and if you google D & C there is a lot of info on local aneasthetic however I have not done much reading just the few I did read...from what I can gather it depends on the policy of hte place you are at personal feelings and how "motivated" you are...read...hysterical I guess
Last edited by mrsmac123; 23-06-2015 at 13:20.
23-06-2015 13:16 #226
@mrsmac123 oh my god, wow. I really don't know what to say as it seems positive but I don't know anything about this stuff. Ignoring the NIPS results for a second, are there many cases where people have your odds from the nuchal scan and then end up having a downs baby? I always thought (but again know next to nothing about these things) that it was only touch and go if you had the markers for it and then a high risk result?
Did the Dr make any assumptions from this or is he waiting for the results? Does the CVS give you a definite answer?
How wonderful to see your baby, I so so so hope this has all been a massive mistake!!!!!
23-06-2015 13:22 #227
@mrsmac123 OMFG!!! Based on everything you've posted, there's a very good chance that the CVS FISH results will come back that everything is ok and it'll be Negative for chromosomal abnormalities!!!
The fact that a nasal bone can be seen and obviously the nuchal thickness is ok plus the lack of any kind of soft markers, Pappa-A etc are all pointing in the right direction Luv!!
I'm not trying to get your hopes up unnecessarily, only saying that you're still in with a very good chance that things are going to turn out ok. More prayers being sent to the Universe for you all!!!
Yes, in regards to the NIPT testing and how they decide on their cut off levels for low or high risk depends entirely on the lab doing the testing. My research told me that what will be considered "low risk" in one lab will be considered "high risk" in another, it all depends on what they consider the cut off to be.
The cramping is normal Luv, you're just going to have to take it really easy for the next few days allright?? And when I say easy, I mean easy!! Park your butt on the lounge/in bed and do not get up except for toilet/shower breaks and to get something to eat/drink if DH will be at work and that's it!!
The pain I felt was when the needle went through the uterine wall but for me it was only a momentary pain and that was all (mind you, I had taken a couple of valium prior to having the procedure as per my FS recommendations so maybe that helped??). The spot on my stomach where the needle was inserted was also sore and tender for days afterwards.
I'll be stalking for your update, hoping and praying that everything's going to be ok:
Last edited by BlondeinBrisvegas; 23-06-2015 at 13:26.
23-06-2015 13:28 #228
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23-06-2015 13:34 #229
Thanks @emski72 I am currently taking 5mg melatonin that I get from the U.S. I've been on it for months though so reckon it might not be working so fine now. I don't seem to have a problem going to sleep, I just wake up after a few hrs and then can't get back to sleep.
@mrsmac123 I don't know anything at all about those tests, but it sounds to me you have every reason to have hope. I know it's easier to close yourself off and think the worst, so we will have the hope for you! We'll be praying for you and your do that you come through tomorrow with the all clear! Xxx🙏🙏
23-06-2015 13:45 #230Senior Member
- Join Date
- Sep 2013
tuxcat I haven't read a lot further than getting the NIPS done ..enough to convince me that the NIPS seemed more reliable in its..I dunno these days...assumptions? based on what it finds and algorithms..you would think if it saw a bloody extra chromosome it saw an extra chromosome!!!!!...but it mustnt actually SEE It I havent gotten into the real scientific stuff and maybe I fell for the sales pitches..we shall see.....more the case for me was that if it tested negative...I would be more believing it than I would a scan telling me...nup...everything "looks fine" and some protein in my blood...LOOKS FINE...but they often want to do NIPS with Nuchal scan anyway. YOu always read that the Nuchal scan on its own is no good...there are plenty with no markers that make it through i am not sure how many but up to 20% maybe? that kind of number...even the blood test that goes with it only measures your levels compared to everyone else I believe in the small amount of reading I have done ie a lower than normal/average hcg CAN indicate T? vs a higher than normal CAN indicate T?? put all these factors into a computer and it works it all out ...and I guess in the end its partly a comparison to OTHERS vs what physical characteristics your baby MAY or may not show + ageEG age straight away at 42 is 1:38 and thats probably a true statistic ...but add with it the fact that the Nuchal was only 2mm which is pretty normal...would lift that ratio up to better than 1:38... then add that my HCG was ok and PAPP ok...raises it even moreThe doctor really didnt say but he was not really thinking the NIPS are as good as they say...even for T21 even for 42 year olds...but still more so than standard screening....I actually funnily enough did not ask him outright...duhh...its just more speculation I guess. HE also was a little bit up in the air as to whether the chances of the frozen embryo had a higher chance now of being T21....he was more indicative that it was still roulette plenty of young women have them...it has just as much chance as this one...AGE risk basically...Geez im no expert either..at the mercy of everything....this is all just part of the joy of parenthood isnt it?? DILEMMA...ANGUISH...UNCERTAINTY hehMy concern is that the way they say ANUEPLOIDY DETECTED is VERY questionable.....ok so its pushed me into having the CVS thats a good thing I guess??? or i would have waited to 15 weeks for amnio,if my chances of miscarriage are in fact lower than chances of Downs which I am making an assumption its pretty right based on their low...I thought.. false positives....it might be nice to know your actual risk factor or what their cutoff is so you can make a more informed decision though...having said that...what good is a risk factor if it really doesnt indicate anything...if 1:675 is normal/ok and 1:300 is high risk...so many people do not do invasive testing based on this...it is everyones choice and I still would test as to me i would need a 1 in 100000 heheh but still they are/were trying to boast the NIPS was so accurate you could terminate based on an ANUEPLOIDY DETECTED result without CVS or Amnio and DR today was concerned about that...I dont think it would happen to easily in Australia??? dunno
Last edited by mrsmac123; 23-06-2015 at 14:06.
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