Hi, I am hoping to get some advice on what tests I should be asking my FS for? I am 35 and have been TTC#1 for 4yrs, 3 x miscarriages, I have Endo, Fibroids, Adenmyosis & Poor Fertilisation. My currents FS has done 4xIVF on level 5000 (producing zero-one embryos) and 1 x FET and a lap which found the above diseases. He completed the initial blood tests but there have been no other tests. I am pragmatic but am starting to lose hope. I am planning to change to Dr Sterling - Brisbane next month and am wondering what tests I could ask for? I feel as though I've just been given the same routine treatment and am not being further investigated to tailor a treatment program. I'm wondering how do I know when to consider exploring options of donor eggs, surrogacy or adoption, but I can't help but think there should be more being done before now. Any assistance would be greatly appreciated. Thanks B
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03-05-2015 19:26 #1
Endo/Fibroids/Adenmyosis/Poor Fertilisation&Miscarriages-What should I do?Pls Help
03-05-2015 19:26 #2
Sorry level 500 (not 5000)
03-05-2015 19:47 #3Senior Member
- Join Date
- Mar 2015
03-05-2015 20:00 #4
@Tahli I've heard he's a pretty good FS. This makes for interesting reading though:
Acutally, It's not really in my neck of the woods as I don't have any personal experience with any of @beej79 issues, I only know what I've read/researched myself. But yes, I will recommend WDA to her
03-05-2015 20:14 #5
Hey Beej. I have endometriosis and adenomyosis. I don't have poor fertilisation rates but likely I have poor egg quality given my age.
Anyway, I had a laparoscopy two years ago and some endo was removed but not all of it. I have just started with a new FS in Sydney who has referred me for a special ultrasound to check if the endo is in the worst place for implantation, that is the part between the vagina and rectum. The test is called a sonovaginogram and not everyone who answers the phone at women's ultrasound clinics has even heard of it (when I rang to book the receptionist did not know what I was talking about and tried to book me in for something else). After this I am seeing a Gyno who specialises in removal of endo and who apparently is an amazing surgeon, again, in Sydney. Maybe you could try and see a Dr in QLD who's special interest is endo. My FS is not convinced that treating the endo will improve my fertility but he thinks it should be done for quality of life reasons.
Also your FSH dose seems very high. You could try someone who uses lower doses.
Best of luck!
03-05-2015 20:27 #6
@beej79 Oh Luv, I'm sorry to read about your TTC journey thus far I'm even sorrier for the MC's you've had Nobody should have to go through such heartache
Firstly, do you have any idea what's caused the MC's in the past?? Was it a chromosomal issue?? My understanding is that the issues that you have can make getting pregnant difficult. I was more under the impression it would hinder implantation of an embryo more than anything else??
I've seen threads here on BH regarding your issues and will shortly go and see if I can dig them up for you. Have you been tested for immune issues such as Natural Killer Cells or raised ANA's etc?? How's your thyroid/vit D level?? The fertilisation issue is either going to be an egg problem/sperm problem or a combination of both.
I see you've had a FET before, so at least one of your embryo's has been of a good enough quality to freeze. What day transfer did you have? Deciding on whether to use donor eggs, surrogacy or adoption will prob depend on what the problem is.
I know you're due to see Dr Sterling next month, I'd also recommend you go and see Dr Warren De Ambrosis who's with QFG in Brisbane (Spring Hill) for a consult. He's the FS that deals with the most difficult or complex cases such as yours as well as being IMO one of the best not only in Brisbane/QLD but in Australia as well which was the reason I ended up transferring to him.
He does have fairly long wait list, but if you ask to go on the "cancellation list", you will in all likelihood get in to see him much sooner sometimes within a couple of weeks.
I can understand why you feel like you are losing hope, but there's still a lot of things you can try r,e drugs/drug protocols, procedures such as Endometrial Biopsy and having your Endo/fibroids treated prior to doing anymore Cycles (if that's possible) first before even thinking about heading down the donor egg/surrogate or adoption path.
Hopefully some of the other lovely Ladies here on BH that have experience in these same issues as you will post some advice for you as well. I'll go have a look for those threads for you now
ETA- Thank-you @Skyler for helping outxoxo
Last edited by BlondeinBrisvegas; 03-05-2015 at 20:30.
03-05-2015 20:50 #7Senior Member
- Join Date
- May 2012
Beej79, sorry to hear you've had such a hard time and are facing these issues. In my time on BubHub I've seen so many women do cycle after cycle with FS's that don't proactively do in depth investigations and just try the same thing over and over. My advice to you would be to go and see one of the top FS's and really get your money's worth. (Everyone raves about Warren DeAmbrosis).
As for donor eggs, our FS said he'd tell us when he thought it was time to give up on our own eggs. I think if you put it out there that you are considering that then your FS shouldn't be nervous to tell you when it's time. I think some are hesitant if they think it will be really upsetting for you to hear it.
Best wishes. I hope you have some luck come your way soon. X
03-05-2015 20:54 #8
Hi @Skyler & @BlondeinBrisvegas - wow, thank you so much. My FS has done none of those tests. I do know my Vit D is very low and my thyroids are not great. My MC Test results just indicated that they were not going to ever be a viable baby. It sounds like I need to get more information on that and I definitely want to get those tests. I have heard A LOT about Doc DeAmbrosis. I think I will definitely sign up with him also. I think he has a year waiting list so I try Sterling whilst I am waiting. Wow, you have shredded so much light already that I hadn't known about. That kinda annoys me. I am also keen to see if Sterling knows about that new endo surgery you've referred to. Out of curiosity, I have been recommended to go on a pre-menopausal program for 6mths to dry up all disease in my body. I didn't want to lose 6mths of potential trying but perhaps I may need to go down that path. Has anyone heard much about it. Hank you so so much, I cannot tell you how much it means to have such quick replies with wonderful support and great information. Thanks again Bel
04-05-2015 13:59 #9
@beej79 You're welcome Luv Just make sure when you make the appointment with Wazza that you definitely ask to go on the cancellation list and either fax over a copy of your file or take one in with you when you have your appointment.
I don't know too much about the pre-menopausal program that you've been referred to. I think I have read about it. Are they wanting you to go on medication to put your body into a temporary menopause to try to help with the Endometriosis?? I believe the Endo relies on estrogen to grow, so I think if they suppress it in your body, it may help matters when it comes time for you to do a Cycle and have an embryo transferred.
Hopefully one of the Girls who reads your post and has taken this medication will let you know I don't know if you're taking a Vit D supplement at the moment, but if not, then start taking one. If there are problems with your thyroids, they need to be sorted out too if you haven't already done that. I think problems with the thyroid could indicate possible immune issues too, but one of the Immune Girls would have to confirm that... @MGC Bertie @Miss Sagi @bbhope or any other Immune Girls following along...is that right do any of you know??
Am still trying to find those threads for you but not having much luck. Will keep on looking and see how I go. Hopefully Dr Sterling is on top of everything and will do whatever tests/procedures need to be done to find out what the issue is and/or treat your endo/fibroids etc if they can be.
@MrsErinR Thanks for coming in and helping out too Luv
Last edited by BlondeinBrisvegas; 04-05-2015 at 14:05.
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05-05-2015 20:19 #10Senior Member
- Join Date
- Apr 2010
Hi Beej, sorry you are on this roller coaster. I have adeno, fibroids, low egg numbers and poor fertilisation rates. I was on zoladex for 5 months (usual course in 3) which put me into a menopausal state making the adeno inactive and hopefully helping implantation. I wasn't thrilled about waiting those months but I I fell pg first cycle after the zoladex with a fairly fragmented and very average embryo who has just turned 1! I'd had numerous failed cycles. Zoladex worked a miracle for me. Good luck!
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