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  1. #1
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    Default Weaning 2yr old with asd and failure to thrive help me get some sleep.

    Hi I know it's a long shot but I really need some help.
    Ds2 has never been a good sleeper due to hunger. But I can't co-sleep any more and breastfeeding is not helping.
    He does not have any other way to get comfort and is not talking yet.
    I have a good bed time routine that works but the breastfeeding him until he is almost asleep has to stop.
    He won't take a dummy or bottle.
    He hates toys in bed even a teddy or his favourite plane has to go before he will relax.
    I can't do cc. He does not have the ability to work with it.

    Please help me sleep!

    Edit: there is no sleep school.
    He is in a bed.
    Last edited by Sookie Stackedhouse; 10-04-2015 at 15:44.

  2. #2
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    He is on a high calorie formula. Last time he was on it he was sleeping 3 hours at a time but still needed boob to re-settle over night.
    That must have been so hard for you! I don't think I could do that or dh let me. I have a huge problem with ds2 crying.

  3. #3
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    Weighted blanket. = sleep saver.
    Lots of people with asd find them help with sleep and even to calm when melting down.

    They expensive to but fairly cheap to make. You Google the weight ratio.

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    GemimaPuddleduck  (11-04-2015)

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    He has one but not for sleep. He won't have any thing on him but pjs. Has to be a tight fit suit.
    But no blankets.

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    My mental health is already an issue which is why I can't do cc.
    I'm hoping that the pead can help or his speech therapist but I don't see them for another week or two.

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    HappyBovinexx  (10-04-2015)

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    Hi. I feel your pain for so many same reasons. I'm actually sitting in chemist right now waiting for DD's sleep meds.
    Will pop back in later and share some of what this sleep and respiratory doctor/specialist told us at the children's hospital.

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    Sookie Stackedhouse  (10-04-2015)

  10. #7
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    I'm not sure where you are located but I would be asking your paed to refer you to sleep specialist. Also do you work with an OT? They could possibly help setting up patterns that could support developing sleep pattern.
    Some things the sleep Dr told us were to find something that might eventually self soothe DD.
    A vibrating toy. Or light projector. White noise. Or even a water bed type pillow or feather pillow. Often those type of pillows bring soothing feelings for kids who have issues with calming down for sleep.
    Looking at the amount of hours of sleep too. And daily patterns of activity.
    If you are looking at medication melatonin is regularly used for children with sleep disorders with mixed success.
    DD was on melatonin from 12 months old until she was 2. I found it helped at the beginning of the night.
    Now I give her vallergan forte, a type of antihistamine that aids sleep. Shuts only 2and half. But it very helpful.
    I couldn't continue the way we were. 2 years of barely 2 hours sleep a night with interludes of screaming like a possessed banshee. DD also doesn't eat much and I suspect that's part of the issue for her too. Short of getting a tube for feeds to supplement her I couldn't get more calories in to her to fill her up.

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    We have tried an anti histamine before as a sedative but it didn't work. He does have a light projector. It is stars. But he only has it on at the start of bed time. With 10min of lullaby type music. But I'm not sure if those are helping or just a habit at bedtime.
    He does sleep enough hours I make sure of that but it's killing me. I don't know how much longer I can keep up with all the wake ups.
    Will see how he goes tonight. He had his first bottle of peadiasure in a sippy cup tonight but refused dinner so I'm not sure.

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    How much did he drink?
    Some kids don't react will to antihistamine. They get hyper.
    We found vallergan forte was recommended to us by paed and sleep Dr over phenergan. It's stronger.
    Our sleep Dr also told us that whatever we do at the start of the night to promote sleep need to be continuous all night. So if it's music. . All night! White noise. .. All night! !! So if DD wakes up the same conditions to promote sleep are there.

    I honestly wholeheartedly feel your pain. I have people in my life who think they 'know' what bad sleeping is like. .. But unless you have it with a child who has a medical condition and sleep is not their 'thing' they have no idea.
    Hugs. I'm actually sitting in my room right now having a 10 minute time out before we attempt bedtime... Because dinner was so appalling and I couldn't handle it a minute longer! xx

  13. #10
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    It didn't make him hyper thankfully but he was very groggy and it made him very hard to deal with for a week.
    I used to play music all night for him but I can't sleep with it so had to stop when I was in there all night.
    He drank the whole bottle. I think it's 200ml?
    I know what you mean about needing a break before the next battle. I wish I had the support to do that. I have dinner a miss tonight after he tipped the bowl when I put him up to the table.


 

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