ADVERTISEMENT

+ Reply to Thread
Page 1 of 2 12 LastLast
Results 1 to 10 of 17
  1. #1
    Join Date
    Mar 2010
    Posts
    1,745
    Thanks
    628
    Thanked
    1,608
    Reviews
    0
    Achievements:Topaz Star - 500 posts

    Default Autoimmune disease and Recurrent Chemical pregnancies

    Hi everyone, just wondering who has had treatment for recurrent miscarriage/chems potentially due to autoimmune disease?

    I have had eight chems and one take home baby. I bled a lot during my first trimester with DS1 too. Last year I was diagnosed with an extremely rare autoimmune disease which I have probably had for a decade or so.

    I saw a fertility specialist last week who diagnosed me with recurrent miscarriage. He thinks I have progesterone issues/ luteal phase defect as well as I have short cycles and lots of spotting. Next cycle they will monitor and then he talked about clexane, progesterone, ovulation induction injections, asprin. I can't take prednisolone as I have a very severe reaction to it. I am already on high dose folate.

    I have no idea what to expect and would love to hear from other people who have autoimmune disease, or who have taken these medications. Feeling a bit overwhelmed as I will have a high risk pregnancy anyway due to bipolar disorder and concerned about the drugs messing with my mood!

    Thanks in advance

  2. #2
    Join Date
    Apr 2013
    Posts
    3,588
    Thanks
    308
    Thanked
    1,194
    Reviews
    3
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts
    I suggest you to head over to the NK cell thread there. Everyone there is on these drugs including myself.

  3. #3
    Join Date
    Mar 2010
    Posts
    1,745
    Thanks
    628
    Thanked
    1,608
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    Thank you!

  4. #4
    Join Date
    Jun 2006
    Posts
    4,292
    Thanks
    720
    Thanked
    1,335
    Reviews
    0
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts
    I think it can depend on the autoimmune disease - can you share what you have?

  5. #5
    Join Date
    Mar 2010
    Posts
    1,745
    Thanks
    628
    Thanked
    1,608
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    I have Eosinophilic Gastroenteritis. .it's pretty rare unfortunately. Hardly any of my specialists had heard of it :/ so I cant find any information on how it may affect fertility.

  6. #6
    Join Date
    Jun 2006
    Posts
    4,292
    Thanks
    720
    Thanked
    1,335
    Reviews
    0
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts
    Sorry that is a tricky one. I have sarcoidosis and I suffered a missed miscarriage at 10 weeks and 3 chemicals but I can tolerate steroids so when I'm flaring I can get it slightly under control.

    I have an awesome gastroenterologist in Melbourne if you need another opinion. He was happy to work with my ob/gyn when I needed steroids whilst pregnant - I was 20wks and had put on only 2kg due to bowel issues.

  7. #7
    Join Date
    Mar 2010
    Posts
    1,745
    Thanks
    628
    Thanked
    1,608
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    Thank you for your story Icandream..im sorry that you have had such a difficult time!

    The gastro team I saw were hopeless but my immunologist is great. The biggest problem I have is not being able to take steroids (I get severe steroid psychosis)...so I don't really have aby way to control it other than diet.

    Can I ask what other drugs other than steroids you took to get and keep pregnant (if there were any) and how they affected you?

  8. #8
    Join Date
    Jan 2014
    Posts
    1,576
    Thanks
    489
    Thanked
    363
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    Awards:
    100 Posts in a week
    I have an auto immune disease which was diagnosed when I was pregnant with my first son.
    It took me so long to conceive for my second that I saw a FS who recommended IVF. I did fall pregnant after 2.5 years using IVF but sadly that pregnancy ended at 16 and a half weeks when I delivered my baby boy. More tries of IVF, and still nothing then 2 years later, I delivered my beautiful baby boy. A little early but was doing brilliantly.
    All of my specialists believe I had fallen pregnant many times but due to my auto immune disease I had lost these pregnancies.
    I think if you have a great immunologist that is a great start because they have a wealth of knowledge. I was on fragmin (similar to clexane) and aspirin before, during and after my pregnancy. Also steroids when my blood counts drops.
    I wish you luck, it is such a trying time when you have health problems to deal with as well.

  9. #9
    Join Date
    Jul 2010
    Posts
    6,771
    Thanks
    350
    Thanked
    2,359
    Reviews
    0
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 posts
    By any chance do you see a naturopath? It might not be something your interested in.

    I have an autoimmune disease and 2 x pregnancies lost. Then by some miracle I ended up with back to back pregnancies!

    I changed my diet to max. I have IBS too atm it's so bad I'm not tolerating food at all. Just soup fx you get a bfp soon x

  10. #10
    Join Date
    Jun 2006
    Posts
    4,292
    Thanks
    720
    Thanked
    1,335
    Reviews
    0
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts
    I didn't do anything to be honest. When I fell pregnant with DS I'd just finished 8 mths of steroids so was feeling the best I ever had in ages. I had a chemical then fell pregnant. In between him and DD is just over 3yrs as it was then I struggled but as my condition is relatively unknown if you fell out of the normal boundaries of it which I did there wasn't much to offer. They felt ivf was not worth it as my body was rejecting embryos so even if it worked to get pregnant they didn't believe I would hold on to it. As I was on and off steroids already there wasn't any point doing that either. We basically were about to give up when I finally fell pregnant. I have a number of other syndromes so it all got too hard to figure out what might be causing what.


 

Similar Threads

  1. Replies: 12
    Last Post: 11-12-2014, 17:19
  2. TTC with an Autoimmune Disease
    By cheekychook in forum Conception issues & ttc
    Replies: 10
    Last Post: 30-10-2014, 21:26
  3. 6yo DD with recurrent UTI and incontinence
    By bada in forum General Child Health Issues
    Replies: 9
    Last Post: 28-06-2014, 08:41

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts

ADVERTISEMENT

ADVERTISEMENT

FEATURED SUPPORTER
TPS Health Physiotherapy and PilatesTPS Health Physiotherapy and Pilates has three clinics located at Morningside, Redlands and Lutwyche. We offer pre and ...
FORUMS - chatting now ...
REVIEWS
"Made bed time less anxious"
by Meld85
My Little Heart Whisbear - the Humming Bear reviews ›
"Wonderful natural Aussie made product!"
by Mrstwr
Baby U Goat Milk Moisturiser reviews ›
"Replaced good quality with cheap tight nappies"
by Kris
Coles Comfy Bots Nappies reviews ›

ADVERTISEMENT