He just woke so I fed him again. He's had 7 feeds today, I don't let him go longer than 3hrs between feeds unless he's sleeping. I won't wake him for feeds at this point as his sleep is also important.
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26-03-2015 21:31 #11
The Following User Says Thank You to Cue For This Useful Post:
26-03-2015 21:34 #12
Glad they are doing more tests for you. Hopefully they'll be able to sort it out and put your mind at ease. Take care x.
26-03-2015 21:34 #13
26-03-2015 22:11 #14
Thanks, feels like I'm doing it all wrong sometimes!!
26-03-2015 22:39 #15
27-03-2015 05:15 #16
The paed & nurse told me food first, milk after. It's silly how we get different info.
27-03-2015 05:52 #17
27-03-2015 06:37 #18
@Cue with all my dd's medical conditions she never really ate solids until after 14 months. .. And even then it's touch and go.
We fortified formula (allerpro) for a long time. At 12 months we tried pediasure and she tolerated it. Without it she would have most certainly been tube fed and I hospital.
She still drinks minimal amounts. At 8 months I would have been happy to get 500mls of formula into her overt a 24 hour period.
It was just enough since we added extra calories to it.
You are doing all you can. Don't blame yourself. Hugs.
I hope the paed is helpful today.
27-03-2015 12:30 #19
It's reassuring to hear you were able to manage with 500ml. DS is on AllerPro too and had just over 900 yesterday and the paed told me this morning that as long as we're keeping it above 800ml per day we can continue at home. It was really good to see the paed today, he doesn't usually see patients on Fridays but made the time to see us which was great. He even got the ENT on conference call while I was there so we could talk through everything. Everyone is kind of hanging out for the results of the barium swallow on Monday.
The good news is that DS put on a little weight - enjoying small victories!
27-03-2015 16:24 #20
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