Please move if needed
I have just got the diagnosis of Polosistic Ovary Syndrome.
I don't have any excess body hair or high androgen levels. The fertility specialist said one of my ovaries is high in volume but I don't have any cysts yet. My other stimulated cycles has produced a lot of follicles yet my AMH levels are average, the doctor said that with someone who produces so many eggs should have a higher level. It also take me a long time to grow my follicles to a average growth.
I just want to know how has polosistic ovary syndrome effected your fertility and life in general? Does it get worse as you get older? Will it be harder to get pregnant if we wait?
I'm really upset over this diagnosis. This doctor is a renowned doctor too so I shouldn't second guess him.
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17-02-2015 15:54 #1Senior Member
- Join Date
- Oct 2006
Polosistic ovary Syndrome
Last edited by bells_sister; 28-09-2015 at 20:58.
17-02-2015 16:10 #2
My response might not be relevant to you exactly but I will anyways. I have all the side effects of the syndrome. Excess Hair, overweight, insulin Resistance. Multiple cysts on my ovaries, hair loss, you name it I've got it. It has affected my life so much and caused me great anxiety and depression. The excess hair leaves me nearly having a panic attack because of how obvious it is. I sometimes don't leave the house from it. Even though I remove it after a few days the growth starts again. My fertility is affected greatly. I have no normality with my cycles at the moment at all. Don't know when I ovulate ever even with symptoms. I can get what looks like cervical fertile mucous more than once in my cycle!
Anyways I got pregnant naturally after being off pill for 3.5 years. I've never bern on contraception properly since my son was born. He's now 4yrs and 2 months old. No pregnancy yet.
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17-02-2015 16:27 #3
Polosistic ovary Syndrome
Do you have irregular cycles? With no cysts and no increased androgen it's unusual for a doctor to diagnose PCOS. You must have at least 2 out of 3 (irregular or no ovulation / high androgens / cysts) for a PCOS diagnosis. In fact most doctors will not diagnose PCOS without raised androgen levels. Just because he's highly regarded doesn't mean you shouldn't question the diagnosis.
Anyway, in answer to your other questions, yes it affects your fertility (due to irregular ovulation and an incorrect balance in the ratio of certain hormones), no it doesn't get worse as you get older - recent studies have shown many women with PCOS get slightly more fertile (and their symptoms lessen) as they get older due to changing levels of hormones.
There are few treatments for PCOS and no real cure. I have slight insulin resistance, very high AMH, acne, some excess hair growth, high androgens and irregular cycles but I am very thin. I have been seeing a naturopath and have made progress with my symptoms. Recently I began taking Metformin as well and between those two treatments I ovulated almost right on time this cycle for the first time ever.
Edited to add: I had a lap procedure done when I was 19. They do it under general anesthetic and I had little to no pain afterwards.
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17-02-2015 16:29 #4Senior Member
- Join Date
- May 2013
Hi yes I have it. I dont have the excess hair either I only have the hair loss and ovary issues. I have been put on clomid to help me ovulate as I dont seem to on my own.
I had a lap done and after that got my first bfp. It was fine I was put to sleep for it.was painful for a few days to walk straight but thats it.
If im not ttc I have to be on the pill to control the symptoms of hair loss..
17-02-2015 17:56 #5Senior Member
- Join Date
- Sep 2014
I have PCOS and have most symptoms - it has affected my life since I was 12 which is when I was diagnosed. I gained weight during my teens regardless of being an active person and excess hair growth was and still is a nightmare. I'm pretty sure if I let my facial hair grow I could compete with my husbands beard effort.
PCOS also greatly affected my fertility and I wasn't able to conceive naturally or with help from Clomid. I'm currently pregnant thanks to IVF.
Honestly for me it feels like it gets worse as I get older - the excess hair growth the most - I've noticed it has become worse in the last 10 years (and in new places!). Apparently it doesn't though so maybe it's just me.
I'm surprised your doctor had diagnosed you with PCOS already based on the one symptom you mentioned - as PP have said it might be worthwhile having more tests / getting a second opinion just incase.
Either way, in saying all that above.. It really isn't the end of the world. Once I came to terms with the fact that I had it and there's no cure I learnt to just live with it. The bonus? Irregular periods - 6 months without is awesome! Although it can be a gamble - I've also had a couple weeks in a row to make up for it haha
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17-02-2015 18:16 #6
I'd perhaps get a second opinion, seeing as you don't have all that many symptoms.
I have pcos, I have high androgen levels, excess hair growth, that absolutely drives me insane, however last time I had my check up I had no cysts. I have had regular-ish periods. After 2yrs of trying for my second I got pregnant while waiting to see a fs.
17-02-2015 22:45 #7
I think PCOS affects different people differently. My experience has been fine so far (I'm 32) and started out a bit like yours. I was diagnosed with PCOS but do not have some of the classic symptoms (eg excess hair or weight issues) and was told by the doctor that it would be difficult to fall pregnant naturally. I was sent for a bunch of other tests but was pregnant before the results came back! I think this was particularly good luck but does show that PCOS doesn't necessarily mean that a pregnancy won't happen naturally. I have had a cyst burst before, which was quite painful, however, having PCOS hasn't really affected my life.
I hope this helps, it's not necessary all bad
17-02-2015 23:30 #8
In very broad strokes, the major features of PCOS include menstrual dysfunction, anovulation, and signs of hyperandrogenism. You appear to have the first 2.
The Rotterdam criteria for diagnosing PCOS - presence of 2 of the following: androgen excess, ovulatory dysfunction, or polycystic ovaries.
A woman is diagnosed with polycystic ovaries (as opposed to PCOS) if she has 12 or more follicles in at least 1 ovary. So you can have polycystic (in your case large volume ovaries) without actually having the full syndrome.
But rather than categorising the disorder by strict criteria, PCOS is now being thought of as more of a spectrum, similar to autism. Clinical signs of hyperandrogenism are ill defined and somewhat subjective in women with PCOS.
Within this spectrum, there are thought to be multiple separate phenotypes, but this spectrum is somewhat undefined.
how old are you?
In adolescents with PCOS, hyperandrogenism is central to the presentation.
Postmenopausal women do not have a consistent PCOS phenotype.
Laparoscopies have a short recovery time, I suspect you would fly through it.
Looking to the future the mainstays of health are prevention, controlling weight, blood pressure, blood glucose levels, lipids etc.
good luck x
18-02-2015 08:11 #9
Polycystic ovary syndrome is different for everyone. That's why it is labelled as a syndrome.
At last check my bloods were borderline but I have many symptoms such as lack of ovulation, only get af maybe 5 times a year (or less), I've had depression, cysts on my ovaries, excess hair and I'm overweight. It took me 16 months to ovulate and I was very lucky to get pregnant in that cycle.
18-02-2015 14:59 #10
Hello ladies, as having PCOS, in my teens I can also add, my period were irregular, and my hair fined a lot (on head) I've been trying to find a cure for the past 15 years, tried whatever I can think of. Any suggestions there?
I only took the pill for a few months and stopped it on my own.
I conceived naturally twice.
I'm happy to answer anyone's questions, I just don't want you ladies to lose faith, as I was told I was infertile because of my severe case and to have a hysterectomy, glad I didn't listen. Drs can be wrong and I've proved 3 wrong so far.
Good luck to all
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