I began to become a bit concerned as my son is not crawling at almost 14 months. I know some kids crawl later than others etc etc but he won't even try. He can't sit up from lying down or get on his knees or move at all really. His development otherwise seems ok. He has excellent fine motor skills, is eating well, is interactive and good at problem solving.
Anyway after approaching the doctor about it she was a bit concerned too - so we have been referred to a physiotherapist.
Apparently he is extremely hyper-flexible with low muscle tone. The physio is great and has given us a bunch of exercises to do and things to work on to use and improve his muscles. He is putting more weight on his legs when you hold him. Although he still doesn't really attempt to move. I've been told to expect a large delay in his walking, which is so frustrating for both of us because you can see on his face how much he really wants to be able to move around with the other children and play, and I am getting really tired from having to lift him up and carry him everywhere
Anyway just wondering if your child has this problem and how long it took for them to walk, and if they had any other problems associated with it. My son is also chronically constipated which they say is linked to this.
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07-02-2015 04:38 #1
Hypermobility/hyperflexibility and low muscle tone
07-02-2015 08:38 #2
Well my daughter has a syndrome where this kind of thing is very common.
She has hyptonia/low muscle tone. And yes. ..chronically constipated due to the low muscle tone.
Because we knew she'd been working with a physio since about 6 weeks old.
She commando crawled from about 10 months. .. Finally up on all fours at about 14 months. She walked without help. .. All on her own at about 20 months.
She wears little leg braces to help as the low muscle tone made her feet roll. She walks very well now. .. And once she was up and walking there was no holding her back!
Sounds like the physio you have is really helping. We did weights on her legs too.
07-02-2015 22:51 #3
Thanks tam tam!!
What is the syndrome called? Is it that ED somethingorother??
Yeah he is nowhere near going on all fours yet. Hopefully soon. He does put more weight through his legs when standing now so that's something! Can't step though or hold onto things. One day at a time! Xx
25-02-2015 08:17 #4
My daughter is 13 months and isn't sitting either but she does army crawl and get on hands and knees she started off with fluctuating high muscle tone but since turning one her tone is going more weak
all I can suggest is keep up the pt improvement won't be today but you will see it over time you will find you will find great pleasure in the small achievements
3 months ago I never imagined my daughter pulling to stand let alone getting on all 4 but she did
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25-02-2015 10:31 #5Senior Member
- Join Date
- May 2006
Is he being referred for further testing? My DS 3 is hyper mobile so they referred him to a geneticist, heart specialist etc to rule out vascular EDS, they still aren't sure what is going on so now he has been referred to a paed rheumy.
25-02-2015 10:46 #6Senior Member
- Join Date
- Mar 2009
My DS1 is 5 and has hypermobile joints and low muscle tone. However his is quite mild/ possibly still in the realms of the normal range (per the physio).
He was actually quite an early walker (10 months) but was very clumsy/ fell over all the time. We only realised at about 4 years old that he had problems when he was complaining of leg pains.
He also suffers a bit from constipation.
25-02-2015 21:16 #7
25-02-2015 21:23 #8
My dd has mild hyper mobile joints mainly and low muscle tone in her core. Which wasn't picked up until she was 5. She walked early but with a really weird gait. She did 4 years of physiotherapy along with speech and ot. She has aspergers. She doesn't have a syndrome as such.
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02-03-2015 04:03 #9
02-03-2015 04:06 #10
Does he have any other symptoms?? How is he mobilising at 3??
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