I need some advice. Gosh it feels like I'm alone on this journey and I don't know where to turn..
My hubby and I have been TTC for almost one year. I was initially told by my Dr that I had PCOS and was referred to a fertility specialist. After more tests he says that I am ovulating (I get my period every month but it is a long varied cycle). Then hubby had a poor semen analysis but after two more tests they have put that down to just being a one off. Therefore still don't really know what the issue is.
I decided to do a couple of cycles of clomid as a simple measure, I'm currently in my first cycle. The specialist believes that I could have Endo, even though I don't really have any symptoms (period not that painful, no family history etc). He is suggesting I should have the surgery.
Has anyone else had the surgery without really thinking they have endo? It seems drastic but I also feel like anything is worth a try at this point. I just want to know what's wrong so we can work on overcoming it
Thanks for reading.
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31-07-2014 12:32 #1
Should I have the surgery?
31-07-2014 13:00 #2
Yes I hardly had any symptoms and had stage 2 endo after my first surgery and trying to fall pregnant for over 18 months...fell pregnant 4 months after the surgery.
After trying to conceive my second child for 8 months I had surgery again this time I had stage 3 endo, still hardly any typical endo symptoms...I fell pregnant the second cycle after my surgery.
I will be honest I found the surgery horrible. I have had c-sections for both births and I found the recovery from the c-sections a lot easier.
Where are you located I can recommend an amazing surgeon?
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31-07-2014 13:07 #3Senior Member
- Join Date
- Mar 2014
sorry you feel alone but hopefully you will get lots of advice to make you feel a bit more positive
My DF and I ended up having IVF, they couldn't find anything wrong with either of us so I guess we had a diagnosis of unexplained infertility and we just wanted to get on with it. I mentioned to our FS about endo, not that I really had any symptoms but I was curious as to why I couldn't get pregnant if there was nothing wrong.
I asked him about doing a laparoscopy first and he said he would prefer to try a couple of cycles first and it that didn't work then possibly do that to look at the possibility of me having endo. His reasoning was it was worth a go with IVF first rather than having surgery for something that I may not have, as with any surgery there are risks. I know some people don't get many symptoms and can have endo but I think they are not the norm....I may be wrong but that is what I have heard. If you don't get heavy long cycles, pain before your period, after sex, etc, then I would be wary of just having the op without trying something else first. It just seems a bit extreme to me. I am assuming when you say op you mean a laparoscopy?
I would go with the clomid first and see how you go with that, and maybe ask him why he thinks you may have endo when you are exhibiting no symptoms?
And the IVF worked for us and Im currently 23 weeks pregnant
Good luck with whatever you decide to do. I know what you mean about wanting to try anything for it to work and I think sometimes its more frustrating when they don't find anything wrong as you don't end up with a clear plan!
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31-07-2014 13:28 #4
yes I would have it.
I had a lap as they couldnt really find anything wrong with me (trying for 3 yrs before i had the surgery).
They did find lots of endo ... and scarring, blocked tubes. Said I would never conceive naturally.
But there is a window of increased natural fertility for 3 - 6 months after the surgery .. and I fell pregnant naturally 3 months after.
I did have a second lap hoping to conceive a second child - with no success. And I will agree - the lap surgery was awful (1st one was worse, 2nd one was actually pretty good so they are different depending on your reactions, what they do etc)
but it was worth it
31-07-2014 15:56 #5
Thank you so much for the reply @kiwimum890. It's very interesting to hear from someone in a similar situation. Also thanks for being honest about the surgery even if it does freak me out a bit! I'm glad that you had such great results though
I am on the Gold Coast and currently through Dr Kee Ong.
31-07-2014 16:03 #6
Thanks @Molros yes I'm feeling very alone at the moment as I don't know anyone who has or is going through fertility issues and two of my sister-in-laws and best friend are recently pregnant which is making it difficult (even though I'm so happy for them!)
Thanks for sharing your experience. I'm wondering if we should go straight to IVF or not but then I wonder if I do have endo IVF will be less likely to be effective? I get some pain before my period but in my mind it's mild and normal but who knows. And yes I do mean laparoscopy. His reasoning for suggesting the surgery is because he said he does so many laparoscopies each week and that the majority of those people have endo. I guess he's just coming at it from a purely statistical angle given his experience with infertility.
I'm so glad you had success with IVF and congrats on your little one on the way Your reply was very much appreciated.
31-07-2014 16:05 #7
Thank you @BH-KatiesMum. It's so interesting to hear your story! I'm so glad the surgery was helpful for you and that you became pregnant. I really wanted to hear from people who had it done without really knowing if they had endo, so that helps me a lot.
22-08-2014 07:26 #8Senior Member
- Join Date
- Jun 2011
Thought id write a few lines.
Two days ago i went for lap, ovarian drilling, dye study etc as i have pcos and have been trying t o fall pregnant for 5years. Whilst they were performing the lap they also found that i had endo, which got removed.
I never had any symptoms of endo n never thought i would have endo. Been diagnosed with pcos back in 2004.
Over the years had tried lots of fertility treatments, from two cycles on clomid, to approx 20 cycles of ovulation induction.
My recovery is not too bad. Not much pain, more like period pain, which can be controlled with panadol.
Im also hoping that next few months i can concieve naturally.
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22-08-2014 07:36 #9
Hi @Willow13 I had a lap in Feb. My FS had a long list of questions and was reasonably sure I had endo due mostly to an endometrioma that had formed but I've never had the quintessential 'bad period pain' instead it's been years of bad gut pain (mimicking IBS). Anyway turned out I had severe endo which was removed.
There are some good books you can read about endometriosis to help you learn more but it is very common to have it and not know.
22-08-2014 07:38 #10
Ps I'd have the lap - if they get in there and find nothing but clear tubes and a great uterus then great - they're not going to laser you for the heck of it. But at least then you'll know one way or the other.
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