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  1. #11
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    Quote Originally Posted by Sookie Stackedhouse View Post
    We are discussing this to at the moment. Another stint with an ng tube and I think the choice will be out of our hands. He is just about to go back on peadiasure again but if he won't take it I have no other options left. He is on a puree only diet already.
    How old is your little one?
    There's a lot of research and anecdotal evidence that ng insertions really interfere with sensory aversions. I don't know if that's why your little one has issues.
    I have told DD's doctors that I would go ahead with a button over an ng again.
    Sorry. .. I'm probably not being helpful but I know that ng tubes can be problematic with eating/drinking.
    We've always had trouble with DD when she's had ng tube feeds.

  2. #12
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    Yes some of the problem is sensory but he just can't eat most food. His tummy doesn't break it down or absorb it properly.

  3. #13
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    Quote Originally Posted by Sookie Stackedhouse View Post
    Yes some of the problem is sensory but he just can't eat most food. His tummy doesn't break it down or absorb it properly.
    So hard.
    DD lives on pediasure. Pretty much.
    She's not good with chewing due to low muscle tone. And has sensory aversions.
    When are you starting pediasure? Has he had it before?

  4. #14
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    We start tomorrow. He was on it before but they moved him into fortini. Now his tummy can't Handle it. So we are hoping the peadiasure is not as heavy.

  5. #15
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    I hope so too. That's not nice and very stressful.
    There's also a Nestlé one called nutren jnr.
    I've been trying to see if it is supplied in Australia as it has less sugar.
    Is there any chance you could use a different type of formula with added calories that's better on the tummy.
    DD used to have allerpro for about 15 months made up at 1 and half strength for extra calories.

  6. #16
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    I'm not sure if those are an option for us. We are in NZ. I'll ask though. The dietitian had not mentioned any other options. We are waiting to see the pead again after his last stint with the ng tube. She wanted to wait a month to start testing again.

  7. #17
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    Quote Originally Posted by Sookie Stackedhouse View Post
    I'm not sure if those are an option for us. We are in NZ. I'll ask though. The dietitian had not mentioned any other options. We are waiting to see the pead again after his last stint with the ng tube. She wanted to wait a month to start testing again.
    Oh. Okay.
    Yeah. I've just been researching different options and not finding a whole heap! !

  8. #18
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    Yes. I just hate the food strikes and worry over failure to thrive. The thought of a tube fixes most of our issues. Plus he doesn't chew food so that doesn't help.

  9. #19
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    Quote Originally Posted by Sookie Stackedhouse View Post
    Yes. I just hate the food strikes and worry over failure to thrive. The thought of a tube fixes most of our issues. Plus he doesn't chew food so that doesn't help.
    Have you heard of SOS therapy?
    Sequential oral sensory it is.
    Basically it goes through the steps of developing chewing and tongue movement etc etc.

  10. #20
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    No I have not. I'll look into that. Maybe our speech therapist knows.


 

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