Just wondering if anyone out there is trying to have a baby while trying to manage an autoimmune disease. Would love to chat and give support, advice and chat with you.
I'll tell more of my story if there are others out there!!!
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05-07-2014 20:58 #1
TTC with an Autoimmune Disease
06-07-2014 08:41 #2
I also have an autoimmune condition, not TTC but would love to follow!
06-07-2014 11:12 #3
06-07-2014 11:48 #4
Haha me too! I've just come off my carbimazole and propranolol after 12 months on them. I need to check my thyroid levels but hate going out! Haha.
26yo single mummy of a beautiful 4yo daughter, Autumn Lucy 💕
06-07-2014 11:52 #5
I was on PTU. Off them now, thank goodness, I didn't like them. I see an endocrinologist every couple of months to get all my levels checked. He thinks I'm one of those that can swing from under active to over active and back to under. Because I want another bub, he watches my levels closely.
Do you see an endocrinologist or GP?
06-07-2014 12:11 #6
I have Hashimotos, but am not TTC.
I think you'll just need to be monitored closely for your first trimester then monitored after that as well. I saw an endocrinologist a couple of months ago and he mentioned this would need to happen if we ever want another baby.
I'm finding it really hard to find the right thyroxine dose I've changed my diet so that I don't eat gluten or sugar and citing it sugar seems to have made a huge difference which is good!
06-07-2014 12:24 #7
I have Hashimotos I have had 9 pregnancies with 6 bubs over 20 years. I wasnt ttcing that whole time.
If there is anything I can help with let me know.
Sent from my SM-N9005 using The Bub Hub mobile app
06-07-2014 12:36 #8
You're right. My endocrinologist wants to see me as soon as I get a BFP. He's told me it'll probably be a high risk pregnancy. Scares me a little. As much as I've been told PTU is safe during pregnancy, I don't want to go on it.
I really think diet helps. When the graves was really active, I went ate all fresh foods. Cut out processed foods, foods with iodine and sugar. I think it helped. I'm slacker now, but think I need to get strict again.
At my last check up in may my iodine, iron and vitamin d were all really low. Working on fixing that at the moment, once they are all at an appropriate level we'll start ttc conceive again.
06-07-2014 12:42 #9
I then fell pregnant with my son. Perfect pregnancy, thyroid was fine for the whole pregnancy. However, the pregnancy triggered the Graves' disease, I was diagnosed when my son was 8 months old. I then had a chemical pregnancy earlier this year. I'm really nervous about more miscarriages. There's a high chance there's no connection but it all scares me.
02-10-2014 09:19 #10
@cheekychook how are you going with your Graves disease and falling pregnant?
I've recently been diagnosed with Graves, currently 5w and started taking PTU yesterday. Bit nervous! would be great to chat to others that are in the same boat.
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