Dd is 3.5 years old, she has had a rough time with asthma this year.
We ended up in hospital for it twice before starting her on flixotide jr, she also takes prednisone (Redipred) when her symptoms get worse.
The flixotide jr has been excellent for her asthma, but gives her big night terrors, which can trigger a mild attack if she gets really worked up.
This weekend we ended up in hospital with her after a big asthma attack, it was a silent one, she was fine one second and the next she just wasn't breathing and not responsive, no signs or anything of asthma coming on at all.
At the hospital they did tests as she also had a fever which was causing convulsions and she was diagnosed with bacterial pneumonia.
Her asthma is (understandably) worse due to the infection, but the Redipred and flixotide jr is keeping it at bay.
But night terrors with pneumonia aren't going well with her asthma, and an hour of inconsolable screaming at night is triggering attacks, vomiting and great discomfort for her when we have no choice but to wake her up to sit her upright and give her reliever puffer (I'm aware you shouldn't wake them during a terror but it's hard once asthma gets triggered)
We just came back from an asthma review and they want to put her on a new preventative called 'Alvesco'
They told us all the long term side effects etc which scared me a little, but I've noticed on the product leaflet the dr gave me says it's not to be used in children under 12 years.
I've looked at the asthma foundation web site and it says use in children is not recommended due to growth delays, among other things.
We called our dr back and he spoke to a senior dr who said it "should" be fine.
I'm just not 100% comfortable I suppose, one of the side effects is difficulty breathing, which I just don't want to risk that right now.
So, do I stay on flixotide jr whilst she is this sick and just deal with night terrors?
Or change to the new one and risk all the side effects to stop night terrors?
I really don't know what to do, I feel I've talked to the dr and senior dr about the concerns I have but the words they used like "should" be "ok" and they "think" it's safe just makes me uneasy.
Has anyone used alvesco in children?
Is there any other preventatives I can ask our dr about that are a bit safer for kids that might limit night terrors?
I'm stressed beyond belief and the fact I can't get reassurance that other children have taken this and been fine isn't giving me confidence.
Just feeling a bit lost with how to tackle her asthma after what happened the other day, I'm feeling so incompetent as a mother right now, I just want to do what's best for her but I'm torn as to what that is.
Thanks in advance.
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30-06-2014 13:27 #1
Advise on asthma preventatives please.
11-07-2014 15:17 #2
11-07-2014 15:30 #3
I don't know what to tell you. I have asthma (adult onset) and I was prescribed Alvesco about 3 years ago. For me, it has been brilliant at managing my asthma symptoms. I was freaking out when I first found out I was pregnant because of course the leaflet says that you shouldn't use it when pregnant.
I raised this with my asthma doctor but he explained that with these newer drugs there hasn't really been enough research done to be conclusive one way or the other. So, yes, while there is lots of scary stuff written on the leaflet, that is absolute worst case scenario - drug companies covering themselves. At my doctor's direction, I have not changed medications since becoming pregnant and he is keeping a very close eye on me. From our scans there are no adverse effects so far on our baby either.
If you're really not comfortable could you seek a second opinion from another specialist?
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12-07-2014 09:58 #4
Thank you cat74
We headed back to the dr last night as dd is sick.... Again!
It was a new doctor who seems to think it's the ventolin right before bed is causing the night terrors (we had been giving a puff of ventolin before the preventative as we were told it helps open up the airways for the preventative to work better)
He suggested we try to just give the preventative (flixotide jr) without the puff of ventolin to see if that helped.
Last night was our first night in weeks without night terrors, so hopefully that issue is solved
For the past week she has had to have the ventolin about 2-3 times a day, and that's with the Redipred and preventative.... So he suggested we try the drug singulair in conjunction with everything else we are doing.
She is on a new round of antibiotics as this pneumonia is still hanging around so he wants us to start the singulair tomorrow as he didn't want to start her on 2 new lots of drugs at once (incase of reactions)
I've looked up about singular and feel pretty comfortable with it.
It seems it's a better option for us and the leaflet sounds like it's just right for the way dd's asthma is.
I really liked this new dr, he also suggested we start looking at seeing a specialist (this was never suggested to us before) so I think we will be sticking with this doctor
I'm defiantly going to keep the Alvesco in mind for when she is a bit older, from what I've read it's smaller particles so less chance of side effects and other things like sore throat and oral thrush.
I'm currently on pulmicort as a preventative for my asthma so I might even give the Alvesco a try as I'm forever getting oral thrush.
This is the first winter she has been this sick, she is picking up everything.
We were told to start on a pro biotic by the chemist from all the meds she has been taking, I'm hoping it boosts her immunity too as it's been nearly 6 weeks of her having all different infections
12-07-2014 10:06 #5Member
- Join Date
- Jan 2012
Just wanted to say I sympathize, my DD is 18 months & on the flixotide jr & has also be hospitalized twice with pneumonia this year, it's so stressful, I feel your pain. My daughter is a terrible sleeper & wakes multiple times a night often screaming, I'm now wondering if she is having night terrors?
I wish you a happy & healthy remainder of winter!!!
12-07-2014 10:06 #6
Singulair has worked so incredibly well for us. My DD is 2.5 and was born 3 months early. She has chronic lung disease and they are querying severe asthma also but she is too young to blow into a peak flow for an accurate diagnosis.
Anyway before we started the singulair she was having ventolin up to 4 times a day- the whole 6 puffs... The doctors weren't happy. This was when she was on flixotide jr. Have you thought about using a different preventer? Flixotide was causing multiple issues including thrush in my DDs mouth no matter how well we rinsed her out after doses...
At the moment DD is back on flixotide, has a daily dose of singulair and ventolin maybe once a day if she's running around lots. When she's sick we use redipred, and if bad enough she needs a single dose of dexamethasone.
I'd be seeing a second respiratory specialist. One that doesn't prescribe drugs that aren't appropriate for age.
12-07-2014 10:39 #7
That's really interesting about night terrors and Ventolin. I take it only when I'm really struggling to breathe and I find I can't sleep if I take from afternoon onwards. It makes me really jumpy. Not a fan of it at all.
The Alvesco has been great for me. My lung capacity has dramatically improved on it. I've also never had oral thrush from it but you are recommended to gargle and rinse your mouth after each dose and then have a few sips of water as well to get rid of any excess. I routinely take a probiotic as well.
Good luck with it all. I hope your little girl is feeling much better soon!
14-07-2014 17:53 #8
Well we haven't had any night terrors since stopping the ventolin before giving the preventative.
We go back to the dr tomorrow for her review to see how the singulair is going, so far we are still using the ventolin quite often, but she is still pretty sick and we have to give it time to work I suppose.
But no allergies yet, dd has quite a few and reacts easily to new things so that's a relief.
She had eczema from birth, then anaphylaxis with egg and mild allergies to a list of other things and now this.
Out of all of it though this asthma seems to be the scariest! I could remove eggs and try my best with that, eczema was horrible and I'm so glad she has grown out if it, but asthma is just so scary as attacks come out of no where, you just never know when she will stop breathing
I'm really hoping once the weather gets warmer and all this sickness passes it will be a lot more manageable.
14-07-2014 18:04 #9
It's not nice having to see their little bodies struggle
She could be having night terrors, it's a side effect of asthma medication so it might be good to bring it up with her dr.
For my daughter she would wake up and just scream murder, we would try to settle her down but it was like we weren't even in the room.
Nothing would stop the screaming, and it would go for a good 45 mins.
Sometimes it was once a night, other times it was up to 3 times.
It would trigger an attack for her and we would have to wet our finger tips with cool water and flick it on her face to wake her up so she would sit up right and stop trashing around.
It would make her so distraught and confused but it was easier to hold her body down and give ventolin when she was having an attack if we woke her up.
Dd has still been on the flixotide jr and has had no more night wakings but it's only been since we stopped giving the ventolin puff right before her flixotide jr.
I hope they don't come back as they were horrible.
to you and you dd.
15-07-2014 10:09 #10
Hope your daughter is better today liddybugs
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