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  1. #701
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    Nightchild have you cut gluten out of your diet re the psoriasis? I found my dandruff issue of years vanished when I did this... It may not cure but could help a lot? Are you doing a cycle soon?

  2. #702
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    @PreciousHeart: No, I haven't explored anything dietary yet as I literally only found out I had psoriasis when I was weaning off the prednisone from the last cycle last month and my face, scalp, elbows and genitals burst out into lesions. Prior to that, I never had psoriasis lesions... just dry skin in winter. I'm now on CD3, so my 3rd day on a 10mg prednisone dose. If this cycle fails, I think I'll have to seriously consider taking a 6 month break from all the drugs and concentrate on dealing with the psoriasis outbreak that'll probably happen again when I have to wean off the steroid.

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  4. #703
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    Hi ladies - I am just wondering if I could join in please..... I got my nk cells results today.......
    My story: I was diagnosed with pcos in 2011... I lost 15kg and fell pregnant accidentally with my now 2yr old daughter. We have been ttc for the past year and have had 3 miscarriages including the last miscarriage was pgd tested 2 embryos!! I did all the tests and I got my test results today and I have very high nk cells!!! They told me normal is under 12% high is 18% and my levels are 20% I am freaking out!!!!!!!!

    I am am due to start next cycle first week of August and ivfa are putting me on the "bondi" protocol....

    Has anyone had very high levels and been able to have a baby???

  5. #704
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    Hoperfullyanotherbaby..... I haven't even come close to any implantation, though I have some recommendations for you - I'm with IVFA and they won't do everything you need - you should make an appointment to see Dr M who specialises with NKCs. You will need as a minimum aspirin and clexane (both of which IVFA will give you), but will also need prednisolone (which some FSs at IVFA are doing, but not mine) and intrallipids/IVIG (of which IVFA doesn't do). What is your FS including in the "bondi" protocol, as I've read people before doing a "named" protocol, and then the actual medication turns out different?

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  7. #705
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    Quote Originally Posted by MGC Bertie View Post
    Hoperfullyanotherbaby..... I haven't even come close to any implantation, though I have some recommendations for you - I'm with IVFA and they won't do everything you need - you should make an appointment to see Dr M who specialises with NKCs. You will need as a minimum aspirin and clexane (both of which IVFA will give you), but will also need prednisolone (which some FSs at IVFA are doing, but not mine) and intrallipids/IVIG (of which IVFA doesn't do). What is your FS including in the "bondi" protocol, as I've read people before doing a "named" protocol, and then the actual medication turns out different?
    Thanks for replying... They said for me to take a high does of progesterone, clexane (which I thought he said was blooding thinning) injections and also on steroids... He didn't mention the name of the steroids so I will start on that next cycle and see what happens I guess.... The issue I have is I can implant but it doesn't implant properly or once implant I can't hold it as my 3 miscarriages have all been before 6 weeks!!!!! After having my daughter accidentally I had no idea I would have issues but this last year and particularly last 6 months I have have 2 miscarriages and have learnt I have these issues it's tough. I am also going to genea for a 2nd opinion however it will be interesting as they dr I'm seeing doesn't believe in the protocol can help nk cells!!!!

  8. #706
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    Hopefullyanotherbaby... Please see Dr M before you do another cycle. My NK CD57 cells in uterus are at 30per mm2 which I think is what you mean by %, I am in the top percentile but not the highest, I know someone with 60per mm2. SO Dr M told me for these high NK in uterus "prednisolone is like water"... I am on dexamethasone with him... Genea will prescribe pred as well... I am with them... You really should book to see Dr M even though it means waiting.. I'm sure others will back me up on this... The more misses you have the stronger these cells get.. You need to consult with him. All the best xx

  9. #707
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    If the doc at genea doesn't believe in NK cells I wouldn't bother seeing them, you will suffer more heartache...read back on the previous threads and you'll see why I say this, take care

  10. #708
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    Bondi protocol lists out the meds, dosage and when to take them according to what cycle you are doing. I am sure that the steroid is prednisolone. Clexane, prednisolone and pessaries are pretty standard for DrM protocol as well. The only different is that IVFA doesn't do intralipid and DrM does. In fact, my FS has no problem for me to do it. Keep in mind that there is no scientific proof that it helps. I know some of you are proof for it but until someone like DrM publishes a paper to show the data, it will always be a debate in the ivf community. Another reason why medicare refused to pay for it. Heck, the FS who did endo scratch for me here thinks NK cell stuff is rubbish. You know why I only let him did my scratch and I did the biopsy in the east. On the other hand, ivig has more studies......intralipid is a mixed of soy product so i dont see the harm of doing it as a trial. No harm in getting second opinion if you wish.

  11. #709
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    hi hopefullyanotherbaby, i totally agree with preciousheart on this one. you definitely should not invest physically, emotionally and financially in another cycle without first having a consultation with dr matthias. it may be that the bondi protocol will not be strong enough for you. there is another more aggressive protocol which dr m uses which includes stronger immune medications including dexamethasone instead of prednisolone and ivig and/or neupogen instead of intralipids. he has also been known to use other medications too.
    not dissimilar to you, i had 5 early miscarriages, the last two on the bondi protocol. i am currently pregnant in my 3rd trimester being on the more aggressive protocol comprising the hardcore immune drugs. i would strongly recommend you speak with dr matthias before you continue ttc your second child. he is one of the few specialists in reproductive immunology who can best tailor a treatment protocol in line with your specific immune problems.
    there are several women with high NKC who have gone on to have healthy babies with the correct combination of immune medication. like you and me, nidhulaine who also posts regularly on this thread is another lady who has suffered recurrent pregnancy loss and is now pregnant, being on a very similar medication protocol to mine. and like you, she had her first child without any problems.
    you may not have success on your first cycle, but i strongly believe you have a better chance of maintaining a pregnancy with dr matthias or another reproductive immunologist rather than handing immune problems over to fertility specialists.
    i wish you all the very best in your journey
    Last edited by Gentay; 19-07-2014 at 12:32.

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  13. #710
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    Quote Originally Posted by Hopefullyanotherbaby View Post
    Hi ladies - I am just wondering if I could join in please..... I got my nk cells results today.......
    My story: I was diagnosed with pcos in 2011... I lost 15kg and fell pregnant accidentally with my now 2yr old daughter. We have been ttc for the past year and have had 3 miscarriages including the last miscarriage was pgd tested 2 embryos!! I did all the tests and I got my test results today and I have very high nk cells!!! They told me normal is under 12% high is 18% and my levels are 20% I am freaking out!!!!!!!!

    I am am due to start next cycle first week of August and ivfa are putting me on the "bondi" protocol....

    Has anyone had very high levels and been able to have a baby???
    hello and and welcome hopefullyanotherbaby. You asked whether anyone has had one child been diagnosed with high NKs had repeated miscarriages and now has a second child? Well I am hoping to be there very soon. My daughter is 4 (natural conception and easy pregnancy) and when she 1 we started trying for a sibling and what followed was 7 consecutive miscarriages but the good news is as I write this I am 21 weeks pregnant with that second baby (pregnancy no 9) hopefully due in nov.
    I want to save you some time and hopefully heartache. My FS was Gavin sacks and I tried the Bondi protocol with both natural pregnancies and we were also convinced to do ivf with PGD and I lost that too. The Bondi protocol was simply not strong enough for me and the main reason I believe is Dr Sacks only focuses on NK cells where most immune ladies and particularly reoccurring miscariage patients have more than just that going on. Also every time you miscarry it becomes harder to hold onto the next one.
    Dr Sacks is a good FS and prob one of the few ones that are open to the idea of immune issues and at least he actually does his own research on the area. I have heard a whole lot of worrying stories including my own SIL who's currently cycling on prednisolone and clexene with no testing. Some clinics are now doing intralipids but they have no idea of how to correctly administrate them or when to give them. I actual believe there are several women on this board who know far more than certain FS who are just jumping on the bandwagon.

    Anyway sorry for my rambling but I wasted so much time until I found Dr M and I wouldn't wish 7 miscarriages on anyone. The reality was for me I had more than just NK cells and my protocol didn't even involve intralipids but did involve other heavy immune drugs Neupogen (the reoccurring miscarriage special lol!), IVIG and a different steroid called Dexamethasone. I can tell u straight away Sacks will not be prescribing most of them and you need a reproductive immunologist.

    i cannot describe how it feels to even be 21 weeks and feel my baby kicking after so many losses but I know I woukd not be even at this point without dr M. I strongly suspect that if you do the Bondi protocol you will get a chemical or another early loss because after 3 miscarriages your body is already primed to attack your embies. Unfortunately that's what happened to so many of us before we moved from the Bondi protocol to Dr m. There are lots of immune ladies seeing dr Sacks for FS and Dr M for the immune treatment at the same time.

    I also know of lots of success stories of women with their take home babies but your story seemed so similar to mine that I wanted to urge you to see Dr M as although 3 miscarriages is tragic, it can unfortunately get even worse and each one rips a little piece off you. Good luck and I hope to hear very soon that you are a dr M patient and are pregnant with number 2.

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