I've been following along and thinking of you and your family. So glad he's still pulling through and hoping for a positive MRI on Thursday for you.
There is a woman in my support group whose son has a genetic syndrome where he is allergic to protein, I can ask her advice and if it's the same thing if you'd like me to? He's two now and a chubby gorgeous, thriving little man.
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18-03-2014 20:51 #411
18-03-2014 20:54 #412
Couldn't just pass by without sending some prayers
Me: 31, DH: 33
DD1: 8, DD2: 6 😃
#3 due 5th Sept 2014 ❤
18-03-2014 21:10 #413
I'm so sorry to hear :-( wishing all the best and your beautiful boy & family are in my thoughts and prayers
18-03-2014 21:14 #414Senior Member
- Join Date
- Jun 2011
Praying for your little boy and your beautiful family. Hugs
18-03-2014 21:52 #415
Hoping, wishing, praying for your little man Monnie. You and your family are in my thoughts.
18-03-2014 21:55 #416
Praying here too for you all x
18-03-2014 22:06 #417
Thinking of you and your wee man xx
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18-03-2014 22:08 #418
Im so overwhelmed by your support im crying in bed. I had to go home tonight because I think I have the cold or im just run down. (Didn't want the bf mum to get sick). She said I could stay but hell no am I letting her get sick.
My doctors have been so wonderful but no answers. Im so greatful but so frustrated!!!!!!!!!!!!!! As are they. Its looking metabolic which would mean terminal. I thought yay means we feed through a tube (you know we see this on tosay tonight all the time these rare conditions!) But they said no if the lumbar n swabs come back bad for other stuff then I have no idea.
Our step is mri which is Thursday. Im sorry if I repeat myself because I seriously cant remember who I tell n what ive said!!
The social worker told me I need anti depressants I was like wtf?! I dont even know if im grieving yet or going to be happy. So im a bit F'd off about her!!
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18-03-2014 22:14 #419
Oh Hun that is seriously not her call to make.
Please know we are all praying and sending love and strength your way.
18-03-2014 22:22 #420
Please try and get a good nights sleep tonight (as hard as it is), you need to keep your strength up too. Praying Thursday brings you good news and you little boy keeps getting stronger, he is such a fighter. Xoxo
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