I'm so sorry your little baby is sick. You'll be in my thoughts and prayers.
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16-03-2014 20:11 #101
16-03-2014 20:13 #102Senior Member
- Join Date
- Oct 2011
*hugs hugs hugs*
Can you speak with your baby's nurse to gain further insight? If you can get a good one they tend to "chat" more with you, especially since it's just you, them and baby.
Do you need to speak with the PICU social worker to talk to someone and who might be able to liaise between the drs and you so you feel like you're in a more knowledgeable position?
Remember to breathe. Remember to take a moment every hour or so for yourself. Hours get lost inside those hospital walls.
Wishing DS, you and your family all the best. xx
16-03-2014 20:13 #103
Oh wow. I hope you have lots of friends and family there to support you. I will be thinking of you.
16-03-2014 20:15 #104
I hope your little one is ok I cannot imagine what you must be going through. Will say prayers for him tonight x
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16-03-2014 20:15 #105
16-03-2014 20:19 #106
Babies are tougher than we give them credit for.
Fingers crossed for you and your family xxxxx
16-03-2014 20:21 #107Senior Member
- Join Date
- Jan 2013
Hugs and prayers for your little fella and your family
16-03-2014 20:22 #108
I am so so sorry this is happening/
I strongly suggest asking to see the social worker and asking her to arrange a family meeting.
In my experience (I am a hospital social worker), Doctors are always, always honest about outcomes and if there is a risk someone could die they always say so.
The best platform is a family meeting, the treating team will be there, the social worker to support you, and any family members you want there as well.
I really hope he is going to be ok. x
16-03-2014 20:26 #109
I hope your little man pulls through Monnie, you're in my thoughts. x
16-03-2014 20:28 #110
I know it's hard as I've been a mummy with a baby in PICU myself. .. but like pp said...
Ask the nurse who is on with your bubba. They can fill you in and may even print out info for you to understand.
Grab a notebook and write things down. It may be hard but it does help to concentrate on what drs are saying. Even ask them to stop so you can write it down.
And ask about the social worker. They are there to support you and help you understand. Though because it's the weekend they may not be there.
Also ask if you can see the consultant or intensivisit. This is the dr who overseas the whole case on your bubba. .. will talk to all the drs concerned and help you understand.
After rounds in the morning ask what their plan is for the day. They always plan the day and what they are going to do.
And tell them when you leave to call you (if you want) no matter what time if there is any change. Big or small. Then you will feel more comfortable.
I hope that isn't too overwhelming. You are the mummy and they do know is very difficult for you but sometimes they forget. Remember to ask for help from friends. Even ask a friend or family member to come and sit with you. And listen to the dr for you.
Lots of positive thoughts and prayers and hugs coming your way.
Hoping for a settled night for you both.
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