Hugs op. I don't have a partner with a disability. My sister does. I hope you find someone to talk too.
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24-01-2014 07:52 #11
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25-01-2014 05:54 #12
Wow, thanks for all the lovely support. I must add that all my friends and colleagues are lovely and supportive too. It's just so weird and hard to try and convey certain concepts to someone who hasn't experienced a similar situation.
Because everyone's been so warm and willing to support, I will add that if you do come across a carer in your life (it could be a family member, friend or coworker- and it's estimated that 1 in 7 Australians are carers), your reactions of support and hugs are wonderful. There's not much to "do" or fix, but just knowing that people care in whatever way they can, and understand that they don't understand, is pretty good.
I've had some horrible, unhelpful responses (ranging from "oh it's not that bad", to "you should leave him"), and am more resilient and a better judge of character for it now!
Yes, MS Aust have carer resources that I'm starting to tap into; there's also carers associations in each state. Will start trawling facebook for groups, too
Many thanks again for all the posts so far
25-01-2014 05:59 #13
FITCHICK your situation sounds tough too, and it's great that you create a balance as best you can for your husband. I hope you both get plenty of support to care for each other and your daughter Carers support groups are great, hope to find one close by soon
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Mummy Potato (25-01-2014)
30-01-2014 01:03 #14
I hope you find some good support groups.
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30-01-2014 05:26 #15
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18-08-2014 23:53 #16
Hi OP.... My partner doesn't have MS but his Mum does as did her father (and they say it's not hereditary...)
We live with her as we don't like the idea of her being on her own. She's amazingly capable of anything and even shows me up in day to day life :P but if she were to get sick or something we just want someone to be around her at all times.
Feel free to send me a message if you ever want to talk!!! because I am sure I will know almost exactly what you're going through Well not really. But it's good to have someone in at least similar shoes, to know you're not alone
19-08-2014 00:42 #17
I am happy to be pm'd as well. My partner has aspergers, coeliac and ongoing physical disability from an old injury. He also has degenerative arthritis and refuses to me medicated for depression. I am 26 and he is 36. I have lost count of the times ive heard 'you should leave him'...'arent you so great supporting him'... Good lord. It is exhausting. He also gets very bored due to not being able to work and unforturnately I cop a lot of it as due to the aspergers he has very limited social contact. So yeah, while not purely physical... I feel your pain. Hugs xx
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