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  1. #31
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    ZE have you had a colonoscopy done? I don’t want to scare you, but my mum had severe anaemia and had to have blood transfusions and the stupid doctor didn’t perform one until my dad’s specialist recommended she had one. It turned out she had a large tumour in her bowel (bowel cancer). We were all so angry that it wasn’t picked up sooner.Other symptoms she had was pain in the tummy, weight loss and I *think* she sometimes noticed blood in her stool.
    Last edited by 2BlueBirds; 07-11-2013 at 21:58.

  2. #32
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    Zombie_eyes is offline Formerly Diamondeyes
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    No i havent. But one will be on the cards


    Mumma to two beautiful boys on the spectrum and one special little girl.

  3. #33
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    My MIL has Coeliac Disease. She went through years & years of blood tests, stool sample tests, colonoscopies and was continually misdiagnosed. Her main symptoms were severe abdominal pains, and literally not being able to leave the toilet for hours. Poor love.
    It was only after an endoscopy (scope down the throat & into the intestines) that she was finally & correctly diagnosed with Coeliacs.
    She's now been living gluten free for many years very happily.

    One of my old boss's had to have iron transfusions on a monthly basis. This was due to a combination of a huge stomach ulcer and multiple uterine fibroids.

  4. #34
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    Zombie_eyes is offline Formerly Diamondeyes
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    *Freaking out*


    Mumma to two beautiful boys on the spectrum and one special little girl.

  5. #35
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    SpecialPatrolGroup is offline T-rex is cranky until she gets her coffee.
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    Hey ZE, I have low iron levels as well, although not to the point of needing a transfusion, and was tested for coeliacs but that came back clear. I almost had myself convinced that I was a coeliac but I had the upper and lower endoscopy in April (was a breeze, but the bowel prep is not so fun - stay close to the loo and have someone with you to pass the baby to) and it all came back clear, not even a polyp. I am still supplementing with fgf.

    I have no idea about wls, and sorry if this has been asked, but could your wls mean that your body isn't handling iron like it should?

  6. #36
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    Zombie_eyes is offline Formerly Diamondeyes
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    Thanks spg- thats comforting to know that everything came back
    Clear for you despite having iron issues

    My type of wls doesn't cause any type of
    Malabsorption and the specialist yesterday said that IF it did it wouldn't be so bad as To cause this rapid decline (not even the wls that do cause some malabsorption cause this)

    I really hope that this is just a case of not being given enough iron in the last transfusion.




    Mumma to two beautiful boys on the spectrum and one special little girl.

  7. #37
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    Quote Originally Posted by beebs View Post
    I've always shown up negative on the bloods for coeliac, and for all my other autoimmune diseases as well. When they are positive , they work well. But people still slip through the cracks.
    Yep, same. Testing for coeliac is notoriously difficult. It's often a matter of putting together pieces of the puzzle rather than just one simple test.

    Which is way I would recommend you trying gluten free after you've finished your testing (even if it's all negative) because that's often the best way to know anyhow.

    Your decision of course!

    Oh and try not to freak out about all the things it *could* be. That is true of any symptoms and things are rarely as bad as we worry they might be.

    Hope you're hanging in there!

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    beebs  (08-11-2013)

  9. #38
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    Yeah, I got a bit over the testing coming back negative. So I went gluten free, after 6 weeks I went to a restaurant with friends, we all shared meals and I decide eat gluten and not be the 'gluten free' person because I thought what harm. 45 minutes later I was projectile vomiting with agonising gut pains and rushed to hospital with intussuception. Not pleasant - and it was all my doctors needed to see, they all say coeliac even though I was negative on the bloods, and my reactions are so severe they absolutely say no gluten challenge ever!

  10. #39
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    Wow, scary! I hate to think what a gluten challenge would do to you, you poor thing.

  11. #40
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    How did you go Z-E?


 

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