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  1. #831
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    Hi everyone. Although I don't post very often, I read everything on this thread. I put my name down on the donor list when I was 39 because I was single. After waiting 2 years and still not at the top of the list, went on a donor list interstate. At 42 got to the top. Still single, so went for it. 2 IVF cycles so far, both BFNs. One more to go in March. So frustrating knowing that my chances diminish with all the time I've spent sitting on a wait list . I'm also wanting to know of anyone past 40 who has been successful, and how many cycles they did. I just don't have the heart to give up just in case there is hope. I'm adopted and the thought of never having a biological child is so devastating...

  2. #832
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    Quote Originally Posted by mrsmac123 View Post
    I have heard of the natural killer cells I might look into it now thanks for the suggestion chiefsgir
    There is a thread on here called high natural killer cells, it's under reproductive immunology. there are three so far and it took me a cpl of days to read them all but it is very interesting. The book is an eye opener. It might be that your problem is keeping the embryo rather than getting pregnant, which might mean you can get away with different meds and trying naturally, worth looking into before spending lots of $$ on ivf. I wish I had been tested before I did my last 4 cycles!

  3. #833
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    Chiefsgirl I did find the thread I think and feel like I jumped into the deepend a bit so dont know what I was reading and hope that having to go to chicago is an extreme. So i will spend some more time gathering intel. I dont think the ivf clinic I was goin through will bother with anything like that, im also still struggling with gps that I even care to know...here I am still waiting to finish my MC with no sign of any bleeding...no pains...it doesnt seem right...not to mention tick tock...last time at same stage I bled for 17 days or something and a bit of cramping thats why I am a bit suss of this gp telling me I might have NO bleeding...its not natural?

    You have some natural killer cells? How common is it to have something that might affect pregnancy? This current MC been looking at it like it could be related to old eggs and sperm and statistics and hoping not related to the other 2 but dont know. Anyway if I can research a bit more and find a place to start or some specific tests I might see who is best to deal with (and what is affordable) there are so many decisions and touch and go options I dont know what to do in the time I have remaining

    Nvb dont lose hope I am just a negative nelly and it does happen regularly just not as regularly as younger. I like to believe the eggs are bad but in amongst them there are good ones so the ability to be persistent mentally and financially is the key. I remember crying years ago at the unfairness that I might not have a baby simply because of not having enough funds when there are pple who dont really want them and are on welfare who have many. I have really wanted to just get some eggs harvested and frozen with all the sitting around that happens. Do you have any frosties?

    I am distressed at the time I wasted telling myself no kids for me and the time I wasted in counselling trying to get over it before deciding I would put DH on the spot as even if he didnt want it what I want matters too.

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    Last edited by mrsmac123; 24-01-2014 at 04:22.

  4. #834
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    Hi Mrs Mac, to be honest I honestly think you need to find a decent FS and clinic as it sounds like you might need a full immunes blood work up and this clinic your attending sounds like it might be ok if you have some cut and dried infertility issues. I don't mean to be blunt, but moving on to my 7th cycle I have to say, I wish I had started with the FS I have now and not faffed around with the other two over 1.5 years. Where are you located? And we could suggest a good, progressive FS who will order the testing you need, even if you then go back to the lower cost clinic, you'll be aware of any issues that might be occuring and can bring it up. I'm inclined to say its better to spend a bit more with one great clinic/specialist than to spend less on two unsuccessful ones twice. Do you have PHI? Just my thoughts, and I don't mean to offend. X

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  6. #835
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    Hi MrsMac, I'm with Emski on this one. It's worth it to solve all the problems you can, and rule out others before spending the really big money on cycles. You want the best chance possible. You mentioned having a fibroid inside your uterus so I personally think it's definitely worth finding out about that as it would be terrible to get a successful pregnancy and have that then cause an issue.

    As for miscarrying, I didn't start bleeding until 2 weeks after my bub had stopped growing on the first one.
    Last edited by MrsErinR; 24-01-2014 at 07:25.

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  8. #836
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    @mrsmac123 I don't know if I have autoimmune or nk cell issues, but after 4 unsuccessful cycles and a FS who wouldn't try anything new I knew I had to take things into my own hands. I have had a first appt with an immune/nk specialist here in Sydney (he does do ph consults for interstate ladies) and am now going through testing to find out what, if anything, is wrong. I'm not having the bloods sent to Chicago, that is just for rare cases where the first round of test may not show up much. You don't have to go, you go to a special clinic here in Aus and the bloods are couriered to the US.

    As emski and MrsErinR said, it's worth getting thoroughly tested first before embarking on an expensive ivf cycle(s). Some of the ladies on the nk thread have actually been told they don't need ivf, with the immune protocol they can conceive naturally and carry to term.

    I wish I had done this testing first, I think it would have saved me a lot of heartache!

    AFM- have started dhea, I think some of you ladies have taken this? Emski? I must be on a lowish dose, 2x25mg per day. I think dr m said one in the morning and one at night, but I remember reading on another thread that is can cause insomnia if taken at night, is that right? I took one last night and went to sleep very easily, it might have been the early morning walk and yoga in the evening tho!

    Do you take them morning and noon? Or morning and night? Thanks ladies!

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    MGC Bertie  (24-01-2014),mrsmac123  (24-01-2014)

  10. #837
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    Emski, erin, chiefsgirl I really appreciate your input for many reasons, you girls are experienced, I havnt done anything other than lose weight, I cannot talk to my hubby about options/money/issues/whatever...its intolerable and I am just over the effort to have him walk with me at this stage..takes too much out ofme trying to figure him out and keep the peace. My mum is trying to be there but she is blindly optimistic and clouded by having had 5 kids by just looking at her husband. She also intends for me to basically hock everything I own and divorce my hubby if I haf to to maybe get a baby...I just dont want to lose my head. You girls are also my age and understand my urgency. Im really overwhelmed. I am supposed to be goin to the fertility centre in springwood (bris) they only cost $1200 out of pocket 1st cycle then $550 each one after in same calendar year no phi required, compared to $5500 last check for the clinic near me and that prob includes phi which nope I only have basic cover...I had full cover until about a year ago and cut back because I was not able to use it once in the 6 years I had it and only got it to do ivf which we decided we couldnt afford 6 yrs ago even with it. Now here I am with a waiting period of a year again but I havnt reinstated it as springwood said no point cant use it with us anyway..I feel like im stuffed....we dont earn very much...im going to run out of time and im not going to be able to afford de even if dh was on board, aside from if I cant even carry a baby anyway. If you use say your sisters de in same vicinity as you any ideas of the cost...I have an idea of south africa but not a relative in same state.

    Anyway I feel really upset because I dont know who/what/where and im so afraid of wasting time and money and all I seem to be doing is waiting

    Those types of nkc tests are done by fertility clinics...proper ones? I did consider getting some things done at the local higher cost place with the intention of cycling with the lower cost but I dont know how to play it do I tell them or can you just go there and not even talk about ivf but wanting some testing

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  11. #838
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    Mrs Mac, I really feel for you as you are in a difficult spot. I had difficulty with my DH and IVF but I had more time on my side. I don't really know what to advise you but I do know when we got a second opinion we were upfront with FS saying we didn't know if we were going to cycle but we wanted some tests done to see what we were dealing with and then woukd decide. I think that's fairly normal and the expensive clinic would understand. I also think FS will do a plan and then just wait until you are ready, finances etc. I think you should have more investigations at the exp clinic and see what they come up with. Like has already been said, there may be issues that need addressing and you could be wadting your time and money at TFC anyway. It's definitely a hard journey. Good luck!

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  13. #839
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    MrsMac123, I so know where you are coming from with regards to money!

    I am having my immune/nk cells done by a different doctor to my fertility doctor. He will do the tests and then give me a protocol to do alongside what my FS says to do for the ivf if he thinks I need it, I might not). It is $300 for the first appt (I will get some back from Medicare), most of the bloods tests are covered by Medicare, one is going to cost 120 out of pocket. I am having a hysteroscopy and endometrial biopsy done on Tuesday and that is going to be 450 out of pocket (gap fee). I think that's not too much (considering how $$ ivf is) and for me I would rather spend money on that than waste it on ivf after ivf cycle.

    I see you are in qld. Have you looked at the threads for a doctor called wazza? He is in Brisbane (I think) and there are a lot of women on here who have had success on his protocols. I believe he understands nk cell issues. Maybe worth investigating first?

    It must be so difficult with a DH who isn't as understanding. I'm sure he is probably overwhelmed by it all, as we all grow up thinking it'll be so easy to fall pregnant!

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  15. #840
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    I think you need to go see Wazza and have a consult regardless of whether you go on to use him or not - get some advice.
    http://qfg.com.au/fertility-speciali...ren-deambrosis
    He may be able to help with immune testing, tell you whether spending your $1200 is worth it without testing etc. You're not obligated to do a cycle, you're just getting a consult. I had all my testing done in June/July with this current FS and didn't cycle until August. Just be upfront as while they work in conjunction with fertility clinics, they are still specialists in their own rights if you know what I mean? They can at least get your testing done and as you have no issue with getting up the duff may just find an immune issue, advise you on the fibroid etc. at least would know what you're facing whereas right now you're kinda flying blind and about to spend $1200... I think you'd have a bit more clarity of a way forward after that.

    DE with a local donor is still quite expensive depending on the clinic you use - you still pay for a full cycle and also any out of pocket expenses for the donor, like days off work etc. I saw some people on the Egg Donation Australia site saying 10k ... the thing with donor eggs is that it takes the urgency off the age factor too so don't feel like it's all over, you can do donor eggs until 50 overseas if you're at ease with using donor eggs!

    Chief's re DHEA I was on 3 a day and had no issues with sleep, I would have it at breakfast, lunch and about 5pm then my melatonin at night so that helped me sleep.

    Hope you're all going well
    Em x

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