You are invited to participate in a research study investigating the experiences of parents raising a child with an undiagnosed medical condition. This study aims to understand the unmet needs of parents with the goal of improving coping resources and support available to families in similar situations. Individuals who are 18 years or older and have at least one child with a medical condition that has remained undiagnosed for more than 2 years are invited to participate.
Participation involves the completion of an anonymous online survey which should take approximately 30 minutes to complete. This study is being conducted by a Masters of Genetic Counselling student from Griffith University, Brisbane Australia, and will be conducted in accordance with the National Statement on Ethical Conduct in Human Research.
Please pass this information on to anyone who might meet the criteria for study.The survey can be found at:
If you have any questions please contact:
Ph: +61 7 3735 7564
Principle student researcher
Masters of Genetic Counselling
+ Reply to Thread
Results 1 to 2 of 2
06-07-2013 13:15 #1Junior Member
- Join Date
- Jul 2013
Parents share your experiences raising a child with an undiagnosed medical condition
28-07-2013 16:32 #2Junior Member
- Join Date
- Jul 2013
Just a quick note to say thank you to everyone who has participated in our study so far! The research project will be finishing up soon so if you would like to participate please click on the link below:
By TAD654 in forum Serious Health IssuesReplies: 16Last Post: 23-09-2012, 00:45
By lovesushi in forum General Parenting Tips, Advice & ChatReplies: 18Last Post: 02-09-2012, 23:41
Sarah Tooke Childbirth & Parenting EducationProviding private, personalised antenatal childbirth & parenting education to expectant parents in the comfort of their ...
FORUMS - chatting now ...
IVF at Embryoland in GreeceIntroductions
How long did it take you to conceive?Conception & Fertility General Chat
Egg Donation in Greece #5Egg Donation
Undecided whether to try for no 2?General Chat
IVF Babies due August/Sept/Oct' 16 #4pregnancy and babies through IVF
Homework - is it necessary?General Parenting Tips, Advice & Chat
Childcare sign in/out regulation - who can sign in?Childcare Options
Premmie 36 weeker still in hospitalGeneral Parenting Tips, Advice & Chat