Well we are in the process of getting a gluten intolerance possible coeliac disease diagnosis for my just turned 2 year old. We have been instructed to start a GF diet immediately so I was wondering how do you cope with a GF diet what things do you substitute bread, pasta and biscuits with? What kind of meals do you offer for dinner and are there any good websites for recipes and support groups?
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04-04-2013 10:39 #1
Tell me about your toddler on a gluten free diet
04-04-2013 10:48 #2Senior Member
- Join Date
- Nov 2007
I'm certainly no expert but when my friend was in the process of being tested for coeliac disease (which she does have) she was informed to continue eating her normal diet or they cannot diagnose it because whatever it is in our intestines (sounds like 'vilias') will be upright if eating a GF diet, wheras to diagnose it they need to be flat. Once she was officially diagnosed she went and saw a nutritionist and joined the coeliac society for advice.
ETA: here's some info on diagnosis and why you must eat gluten to avoid a false negative result during tests http://www.coeliac.org.au/coeliac-di...diagnosis.html
Last edited by Benji; 04-04-2013 at 10:51.
04-04-2013 10:49 #3
My 26mth old has a wheat allergy. Diagnosed by the skin prick test.
We buy wheat free bread from the health food shop. There are some really good ones out there. The ones in the supermarket usually contain 282 or other "numbers".
She also has cruskits, rice thins and gluten free biscuits. Our favourite are the tamari seaweed ones in the healthfood section.
We buy gluten free flours or use corn/rice flour.
We use rice crumbs to coat/bulk.
She LOVES gluten free pasta with various toppings/sauces and eats it plain as well.
There are loads of gluten free snack foods available or it's easy to make gluten free muffins/biscuits etc.
We have rice as an accompaniment or just lots of veggies (roast veggies + greens).
She also loves noodles. You can get rice noodles from the Asian section.
We eat a lot of meals that just don't require anything wheat.
Marinated chicken/fish with salad
04-04-2013 10:57 #4
OP, my DS isn't completely gluten free (although he probably should be) but I have just cut out most things. I make a lot more rice meals now, and when we do have pasta he has San Remo gluten free (we have regular, I make two lots. Sometimes I make double quantities for him and he'll eat it over a couple of days). I've replaced his beloved Weet Bix with a variety of cereals, none of which he's very fond of. Freedom Foods do a nice Maple Crunch, and there are also Corn Flake and coco puff substitutes. Corn Flakes, Rice Bubbles, Coco Pops etc aren't completely gluten free, but seem to be enough so for him.
The health food aisle has nice gluten free cake and cupcake mixes, and we have a lot of rice cakes, corn cakes, rice crackers. One thing he just won't touch is the gluten free bread, not interested at all. I'm not sure why, I don't think it's that bad!
Last edited by lambjam; 04-04-2013 at 11:07.
04-04-2013 11:00 #5
Thanks Benji, we have been told if he needs the biopsy we will need to do a gluten challenge? In order to get correct results but for now our Paed is content with the blood test and we will go down the more invasive path of gastroscopy if the results come back positive, my son has been too sick for too long to not start GF straight away and we will be put on the waiting list to see a specialist and the wait time at the moment is 12 months plus
Those are some great ideas faroutbrusselsprout do you find it easier for the whole family to eat GF I'm thinking whilst it may be more expensive it would be easier than cooking seperate meals for myself and DF. I have bought some gluten free lasagne sheets so will use them when making dinner tonight and DS is having corn thins and veggie sticks for lunch
The Following User Says Thank You to Ashley595 For This Useful Post:
04-04-2013 11:06 #6Senior Member
- Join Date
- Nov 2007
Poor little darling best of luck with it
04-04-2013 11:13 #7
He has a bowel intersusception in the middle of last year which seems to have triggered this but after seeing numerous specialist we keep being told its reflux (he had it as a baby but outgrew around 6 months old) finally it seems we are on the right path to a diagnosis after a year of him vomiting almost daily suffering with bouts of diarrhea, then extreme constipation stomach cramps and bloating, unexplained rashes, mouth ulcers and more recently he has started to not put on any weight and is always exhausted sleeping up to 18 hrs a day and falling asleep anywhere he can I'm really hoping this is the answer if its not I really don't know what to do!
04-04-2013 12:04 #8
We eat a lot of eggs and egg based meals, meat and vegies. It's really a simplified way of cooking and eating - back to bare basics of meat, veg, and dairy if you can get good quality and your bub can have it? Cheese is great for a protein hit.
Today we've had frittata with capsicum, mushies and cheese. Then grazed for lunch (cream cheese, vegie sticks) and a beef curry for dinner.
Keep in mind if his tummy is irritated by wheat, it may be affected by other grains as well i.e. corn, rice etc. A food diary might be helpful to keep track of his reactions.
If he has had antibiotics due to his surgery you might find it helpful reading books like GAPS - Dr Natasha Campbell-McBride or the Specific Carbohydrate Diet to learn about foods that help his tummy recover.
Best of luck to you and your little one, OP. It's hard stuff.
04-04-2013 12:11 #9
Oh your poor family, what a rough road. Wishing you an easier time from now on!
04-04-2013 12:23 #10Senior Member
- Join Date
- Mar 2008
I am so sorry for all that you (and he) have been through, I really hope you can get to the bottom of things.
I just read about the 12 month waiting list, that is horrid! Just so you have all the info though, gluten challenges aren't very reliable, especially in young children. I read recently of a specialist in the US that says the minimum for a gluten challenge should be 6 months. I know it's hard to see him unwell and if I were you I would probably remove gluten too, but just be aware that the scope may not provide you with the 'gold standard' diagnosis if he has been off gluten a year. Children heal very quickly (which is good!!!!)
All that said, in some ways a diagnosis isn't important anyway. If he is better off gluten, then he is better off gluten.
There is also a DNA test that can confirm your genetic suseptibility to having coeliac disease. It's not a diagnosis on it's own, but sometimes it's another piece of the puzzle...
I really hope things improve for you soon My DD1 and myself both have coeliac disease and we are sooooo much healthier than a year ago. DD improved very quickly (within 3 months I think), but she wasn't as sick as your little boy.
The other thing is, it might be worth you and your DH getting a blood test too because of the genetic component, and sometimes it can be relatively 'silent'.
Sorry for the long winded reply!
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