DS1 has some ongoing health issues. He frequents dermatologists, pediatricians, doctors, child psych etc
He has a skin auto immune disorder and is covered in blisters on all his bending points ie: knees feet ankles elbows, back, face, he has ongoing behavioural issues and hypersensitivity/anxiety, he gets severe growth pains in his legs at night that doctors are putting down to the fact that his body has trouble growing. He also says his head hurts occasionally and as a toddler used to scream and hold his head randomly but we've so far found nothing. He has reccuring respiratory problems including asthma and reccuring lung infections. He finds it really hard to put on weight and is in the 2nd percentile, when he is sick he can sometimes fall off the chart and ends up so skinny he looks like he could break.
In saying this, despite his skin and growing problems he can at times appear to be quite normal between the bad times.
When he was younger and occasionally still he would get night terrors, often quite a few times throughout the night. We would wake to his bloodcurdling screams and run into his room, unable to console him or even speak to him for up to an hour at a time, later finding out from a pediatrician that it was because he was actually still asleep and would often have no recollection of these times.
As he's gotten older he has started to get nightmares. I believe this is a mix of anxiety and his health problems. Sometimes he seems good, others he will come in every night saying he's had a nightmare.
Today I am taking him back to the doctor as we had incidents unlike before last night. He awoke with that scream like he was being murdered again, I was feeding DS3 in bed so couldn't get up quick enough and DH went in to console him, but he just kept screaming.
I went in and he was completely flipping out, more horrified than he had been in the past, I picked him up and he was screaming out that "Its going to get me its going to get me"
I carried him to the lounge for a change of environment saying to him that everything was ok and he was safe but he kept screaming out and suddenly yelled out, "I DONT WANT EVERYONE TO DIE!!"
I looked at him and he was wide awake and screaming like he was still in the dream. He screamed things like his brother was there and going to kill him (his 3yo brother was asleep in his room) that his Dad was "blowing up" and "had water growing on him" as he was saying these things he was having panick attacks and hardly able to speak through the cries.
he would seem to momentarily settle and ask for water but then would suddenly go back to saying these things. We were all going to blow up, there were "things" in his room. He kept reiterating that we were all dieing, we were all going to die.
This was so intense to hear from my son and see the genuine terror in his eyes, the way he was acting was as if he really was there, he was panicking and shaking uncontrollably.
I ended up putting him back to bed as he seemed to settle back to sleep but then he awoke again not long after with the same thing. he was so terrified I ended up bringing him to bed with me.
This morning he is sick and throwing up. We're seeing the doctor soon as I suspect he may have a nother lung infection.
I just want answers its horrible seeing him go through this. Has anyone experienced anything like it?? I always ask him and talk to him openly if anything has happened but it always comes back that he is just anxious. His psych hasnt given us any answers, We are looking for another one.
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02-03-2013 08:42 #1
6yo Horrific nightmares/ hallucinations
02-03-2013 08:54 #2Senior Member
- Join Date
- May 2006
What skin autoimmune diseases does he have?
had the most horrific nightmares, I'd be awake and screaming and adamant that it happened, every night, for 20+ years, they would get worse and then be not as bad, and then worse etc. It was only when I was referred to a phycologist after the birth of my first DS for PTSD, panic and anxiety, that I found out that is a common things with anxiety etc. And when I worked through my anxiety and stopped having panic attacks they completely stopped.
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02-03-2013 09:34 #3
Hi beebs, thanks for your reply.
He has Epidermolisis Bullossa (sp) Koebner
I think he has an anxiety disorder too, we need to find a better psych for him, and get him back to the pediatrician.
02-03-2013 09:52 #4Senior Member
- Join Date
- Feb 2006
Oh my gosh, I have no advice sorry but just wanted to give you and your baby some hugs! That sounds so so horrible for both of you to go through. The poor little guy. I hope you get some answers and that you can find someone that knows how to help him.
02-03-2013 10:27 #5
Thank you so much.
Beebs I couldn't imagine what it is like.. I feel for you suffering so long. I really hate this. I love him so much and I can see how out of control these fears are when he experiences them.
I don't know what's causing it other than his struggling little body not functioning so well. Maybe he feels a lot of pressure at school because of the behavioral issues he is trying to improve and the fact that his body is so easily drained. He's had to walk to school with me lately because of the car issue so I think that is draining him further.
He is clearly sick as well, which most definitely contributed. But he does seem to be so anxious in general. When he is in trouble for not listening and we have to punish him ie:Go to your room until you're ready to listen, he gets extremely overdefensive and screams and cries.
He's at the doctors now. My mother took him in with her car, I'm very lucky to have her because otherwise I'd be on foot with all three and its pouring with rain outside. So hopefully find some answers and get some refferals asap.
02-03-2013 10:42 #6
I suffer from night terrors. I'll be dreaming that I am asleep in bed, in my room and that there are spiders or snakes or some other "monster" in the room with me. When I do wake up, screaming, its hard to understand that its not real, as the dream is so realistic.
I've been doing this since a child and although its not as frequent now, it happens every few months. I usually wake myself up with my scream (and probably some of the neighbours) but if not, DH will turn on the light which will wake me up. I'm much better at going back to sleep as I can understand that its not real. It was very difficult as a child and usually the night was a Write off.
I remember once thinking there was a massive spider a the end of my bed, and I sent the rest of the night curled up near my pillow. I'm not really sure what to suggest, I never saw a Dr about it as a child and now I can get back to sleep, so haven't bothered. I also sleep walk and sleep talk, which is much nicer than night terrors.
The only thing I would recommend is once your DS has told you what he was dreaming about, not matter how ridicoulous, show him that its not real. So if it was a monster some where, show him that there is nothing there And explain that it is just because he has such a great imagination. He may not be at the age where you can reason with him, but that is the only thing that helps me, that I know it was a dream.
All the best, I know how terrifying they can be!
02-03-2013 10:49 #7
Thank you Pantsy. That gives me a lot of insight into how it must be.
He was so hysterical last night that when I explained to him it was a trick in his mind and everything was OK he couldnt hear me really over his intense fears. When I pointed to his dad and said see dad is fine, hes normal he loves you ( with dad smiling reassuringly) He would scream more looking at him pointing saying he was blowing up and he was growing water on him.
He was literally seeing these things while awake. At one point he broke into sobbing and started begging us to 'stop please stop stop growing stop blowing up, he saw something that wasnt there on us or about us and was screaming at what was happening there and then, awake. That part has me seriously concerned.
I really appreciate all of this advice Im having a really good think about all of it.
02-03-2013 10:52 #8
Oh, gosh. That sounds so awful for both of you. I hope you get some answers soon.
Does he actually remember the things he is screaming out? Maybe he is actually still asleep and having something similar to the night terrors?
My DD#2 used to get night terrors all the time for years. The usual thing, Screaming, yelling, kicking thrashing, standing, eyes open etc. Looks awake but really not. Never remembers a thing.
She finally stopped having the night terrors as often but then graduated to also sleep walking and yelling weird things. She will often stand in her room or walk around the house and yell thats there is something not right and that she doesn't like it and to get her out of here etc. She looks very scared and agitated. Again she looks awake but she really isn't. And again never remembers anything.
And now she has also started having other sleep issues and will take ages to get her to sleep. Lots of anxiety with all sorts of things. Then finally she will fall asleep only to wake again maybe an hour or so after saying she is scared. And we start all over again trying to get her to sleep. Then because she doesn't sleep properly it's like a vicous circle. Peadiatrician wants her to try melatonin and he told me to order some from overseas. Still waiting for it to come though.
DD#2 does have more problems when she is sick too and when she is overtired. She also has ADHD and Anxiety.
02-03-2013 11:01 #9
That sounds very similar to DS1. Its really hard not being able to help in the moment isnt it.
He remembers fully. It is really strange this time.
02-03-2013 11:22 #10
Oh, that's so awful that he remembers At least when they don't remember you can cling to that even when you have to see it.
It does sound pretty similar. DD#2 gets the look of terror. But where your DS will say he doesn't want everyone to die etc DD#2 will say something along the lines of everythings not right here, or I don't like it, get me out of here. Or even no no no, I don't like this game I want to play a different game. That one would seem funny if you didn't see the look of terror on her face at the time.
One night getting to sleep was a nightmare because she didn't believe me that "that weird thing that isn't right" was actually just a piece of sticky tape on the picture she had stuck on her drawers. Taking it off didn't work because it was still weird there apparently. Other times she can hear things that are scary. None of things bother her during the day.
I hope you don't have a long waiting list for wherever you get referred to.
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