I'm in search of other parents who's babies/young children have Septo Optic Dysplasia. We're north of Adelaide and are keen to meet others in the same situation. DD was diagnosed soon after birth with ONH and other issues but now has Pituitary Hypoplasia and so now fits SOD! DD is almost 11 months.We do attend a playgroup for visually impaired babies but we're way more complex than anyone else there, not to mention the only completely blind baby....Interested to see who's out there!?
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22-01-2013 14:51 #1
Anyone else's baby have SOD?
04-12-2014 21:00 #2Junior Member
- Join Date
- Apr 2010
I've just found your old post on a search.
My four year old has hypopituitarism, septo-optic dysplasia (very similar to SOD) and global developmental delay.
I hope that you get my reply. If you do, I'd like to share more about my son.
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